rp1954 wrote:It should be this simple:
1. give them extensive blood work ...
2. give those in satisfactory shape ...
rp1954, Have you proposed this regimen yourself?
Has it already been tested in a field trial?
rp1954 wrote:It should be this simple:
1. give them extensive blood work ...
2. give those in satisfactory shape ...
rp1954, Have you proposed this regimen yourself?
Has it already been tested in a field trial?
O Stoma Mia wrote:behconsult wrote:.. I got in. Appt with my Senator on April 16 for a 1/2 hour proposal.....after my onc appt in the morning-- Irony. B
Good! I'm happy to hear that you got an appointment. Have you decided what to focus on during your half-hour appointment? Do you have an actual proposal to present?
rp1954 wrote:rp1954, Have you proposed this regimen yourself?
[Code of Federal Regulations] [Title 21, Volume 1] Sec. 50.25 -- Elements of informed consent
...Article 4:
In addition, the Informed Consent Form for clinical-trial patients is designed to give detailed contact information, including telephone number, for the person(s) who are qualified to answer questions.
"A disclosure of appropriate alternative procedures or courses of treatment, if any, that might be advantageous to the subject. ."
Article 7:
"An explanation of whom to contact for answers to pertinent questions about the research and research subjects' rights, and whom to contact in the event of a research-related injury to the subject."
behconsult wrote:O Stoma Mia wrote:behconsult wrote:.. I got in. Appt with my Senator on April 16 for a 1/2 hour proposal.....after my onc appt in the morning-- Irony. B
Good! I'm happy to hear that you got an appointment. Have you decided what to focus on during your half-hour appointment? Do you have an actual proposal to present?
Thank you. I will draft a proposal statement, the actual elements to include in a "Cancer Patient Bill of Rights" and the educational requirements to be be provided to all patients by all oncologists personally. This includes current evidenced based treatment of other medical disciplines, closest availability of said services if not offered at that treating facility, a reference to CAM (Alternative treatment), right to second opinions in any discipline they seek, and also explain the right to shop around for best prices on medications. Current system is a buy and resell program in American, Onc buy the drug and resells to you. For example, many other outlets list my Avastin for 6k per dose. My insurance reimburses 25K every two weeks for it I don't think the infusion nurse is pocketing the difference. I am blessed with amazing insurance. I have an email in to someone I know who was a legislative aid on the best and most influential delivery style. My 1/2 hour has to count
behconsult wrote:The Senator liked the proposal and is agreeable to sponsoring. He is sending the proposal to Legislative Services to be drafted and they will be in touch with me to craft it. I will need Ohio Buckeye Help from locals on the colon club board. He was curious who would oppose it as every piece of legislation as some opposition groups.
behconsult wrote:This may be a little psychological venting: Twice so far I have had to battle my oncologists for alternative treatments such as cryo or SBRT consultants. Each onc was a "chemo for life" proponent. This most recent occasion I think I bludgeon my Onc to the point where he said I will support you in whatever decision making. Prior to that he gave me crap for requesting a PET stating I didn't need it, only later to learn I had it sent to the tumor board in pulmonary who found concerns.
He later explained his position that a met elsewhere is still considered colon cancer and that they treat with colon cancer drugs.
A second opinion and research confirmed- Many oncs will allow a stage 4 patient to progress through various chemo regimens until death without even considering MWA, RFA, Cryo, SBRT of some of the other treatments. My second opinion onc states that many oncs aren't interdisciplinary and have research to support there narrow views of chemo only.
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