mixed mri results

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O Stoma Mia
Posts: 1709
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation. Off-line for now.

Re: mixed mri results

Postby O Stoma Mia » Fri Apr 05, 2019 10:06 pm

hopie wrote:surgery scheduled for 29th!!!!

I won't be here on the 29th, so I just wanted to send best wishes now to your mom for a successful surgery and for a quick recovery. Hopefully this will be the last major surgery and you will be able to return to your university studies next year.
Last edited by O Stoma Mia on Sat Apr 06, 2019 7:58 pm, edited 1 time in total.
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mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: mixed mri results

Postby mpbser » Sat Apr 06, 2019 3:16 pm

O stomo mia, Where are you going??? Will you return?
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED
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brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Re: mixed mri results

Postby brokenwings » Mon Apr 08, 2019 10:14 am

hopie wrote:surgery scheduled for 29th!!!! mom will get her 5th roubd on monday without avastin! plan is to do resection laparoscopically(?).

...and she has been resectable right from the beginning!

morale of the story: TAKE ACTION! PUSH DOCTORS!


Your mom and I will have surgery the same day! :)
I wish I had a laparoscopy: for me it'll be a nice and long laparotomy (cyto-reductive surgery + HIPEC).

I wish all the best for your mom. Wish me luck!

Hugs,

Paola
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.
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hopie
Posts: 90
Joined: Fri Jan 18, 2019 12:15 pm

Re: mixed mri results

Postby hopie » Mon Apr 08, 2019 10:51 am

brokenwings wrote:
Your mom and I will have surgery the same day! :)
I wish I had a laparoscopy: for me it'll be a nice and long laparotomy (cyto-reductive surgery + HIPEC).

I wish all the best for your mom. Wish me luck!

Hugs,

Paola


i'm so happy for you Paola!! right now i'm worried sick that something will happen and she won't get the surgery so i'm wishing myself sanity and lots of luck and health to you!!!
Caregiver to my super-mom (62), diagnosed Dec 2018
Sigmoid colon, Stage IV
G3, Poorly differentiated adenocarcinoma (5,5 x 4 x 1 cm)
T4N2bM1
13 positive out of 23 lymph nodes, largest one 1,8 cm
4(?) mets in liver, located at Segment 3 & 7, largest one 2 cm
LVI & PNI present
Clear surgical margins
MSS, KRAS G13D mutant
Laparoscopic anterior resection, Jan 2019

First chemo 11 Feb 2019 (Folfox). 25/2/19 Folfox + Avastin.
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brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Re: mixed mri results

Postby brokenwings » Tue Apr 09, 2019 10:54 am

hopie wrote:
brokenwings wrote:
Your mom and I will have surgery the same day! :)
I wish I had a laparoscopy: for me it'll be a nice and long laparotomy (cyto-reductive surgery + HIPEC).

I wish all the best for your mom. Wish me luck!

Hugs,

Paola


i'm so happy for you Paola!! right now i'm worried sick that something will happen and she won't get the surgery so i'm wishing myself sanity and lots of luck and health to you!!!


I feel exactly the same. I think it's "normal" to have that kind of feeling. We've been waiting for surgery for so long! We just need to try to stay calm (easy to say...).

Keep us updated!
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.
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hopie
Posts: 90
Joined: Fri Jan 18, 2019 12:15 pm

Re: mixed mri results

Postby hopie » Tue Apr 09, 2019 1:32 pm

brokenwings wrote:
I feel exactly the same. I think it's "normal" to have that kind of feeling. We've been waiting for surgery for so long! We just need to try to stay calm (easy to say...).

Keep us updated!


i hate this new "normal." also, mom might have surgery a bit later planned so she would have 6 weeks off avastin as opposed to 5. but still, your surgery dates will still be pretty close. and you're so right, we should stay calm and enjoy this thing we were looking forward to. as opposed to reaching a borderline state of paranoia & "control freakness" (what's the word i'm looking for?); imagining potential disasters that might happen and diligently doing research to come up with rescue scenarios...
Caregiver to my super-mom (62), diagnosed Dec 2018
Sigmoid colon, Stage IV
G3, Poorly differentiated adenocarcinoma (5,5 x 4 x 1 cm)
T4N2bM1
13 positive out of 23 lymph nodes, largest one 1,8 cm
4(?) mets in liver, located at Segment 3 & 7, largest one 2 cm
LVI & PNI present
Clear surgical margins
MSS, KRAS G13D mutant
Laparoscopic anterior resection, Jan 2019

First chemo 11 Feb 2019 (Folfox). 25/2/19 Folfox + Avastin.
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brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Re: mixed mri results

Postby brokenwings » Thu Apr 11, 2019 2:11 am

hopie wrote:
brokenwings wrote:
I feel exactly the same. I think it's "normal" to have that kind of feeling. We've been waiting for surgery for so long! We just need to try to stay calm (easy to say...).

Keep us updated!


i hate this new "normal." also, mom might have surgery a bit later planned so she would have 6 weeks off avastin as opposed to 5. but still, your surgery dates will still be pretty close. and you're so right, we should stay calm and enjoy this thing we were looking forward to. as opposed to reaching a borderline state of paranoia & "control freakness" (what's the word i'm looking for?); imagining potential disasters that might happen and diligently doing research to come up with rescue scenarios...


"imagining potential disasters that might happen and diligently doing research to come up with rescue scenarios..." ---> That's my specialty :mrgreen:
Now, seriously I can't live without a B Plan (is that what you call it in English?). But once I've found that... what's the point in keeping the paranoia?
We should just try to wait calmly... or at least as calmly as we manage to stay!!! :roll:
Best of luck!!!
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.
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