Well this is interesting

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Gravelyguy
Posts: 199
Joined: Thu Jul 05, 2018 6:03 pm

Well this is interesting

Postby Gravelyguy » Wed Mar 27, 2019 12:26 pm

7:30 last night my abdomen started hurting, by 1 am and after several Tylenol PMs and OxyCodone. I could bear the pain no more, I headed to the ER.

I have never had a bowel blockage but assumed it was, only to find out it is gall stones.

I have gone through my share of things over the past couple of years including kidney stones just after my last round of chemo but nothing, I mean nothing, compared to that pain.

I was told by the ER Dr. that the local surgeon could do it laparoscopicly and I should be home tonight.


After visiting with the surgeon and him reading the notes from my combo resections, he decided that he would rather not open me up and then discover an issue he wasn’t prepared for. He was mainly concerned about with my liver as they had resected right in front of where the gallbladder is. They do not do liver surgery locally.

So I find my way in the back of an ambulance (for the first time) heading down to my friends at Mayo. A 3, very bumpy, hour ride.

So glad for good pain meds.

Oh the joy!

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Well this is interesting

Postby mpbser » Wed Mar 27, 2019 12:40 pm

Good luck with the surgery!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Well this is interesting

Postby LPL » Wed Mar 27, 2019 12:54 pm

Thinking about you Dave.
Best of Luck <3
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

brokenwings
Posts: 101
Joined: Mon Jan 07, 2019 1:50 am

Re: Well this is interesting

Postby brokenwings » Wed Mar 27, 2019 2:00 pm

Oh gee... Good luck with your surgery and your recovery.

Hugs.
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy. Primary tumour still there.
Folfirinox: 6 cycles
CT Scan/PET Scan: ok for surgery
Surgery (CRS + HIPEC) 04/29: not optimally resectable, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin).
07/04: exploratory laparoscopy - necrosis of peri mets
4 more cycles
09/11: CT scan
09/12: last exploratory laparoscopy and final decision

Punky44
Posts: 349
Joined: Mon Oct 01, 2018 4:29 pm

Re: Well this is interesting

Postby Punky44 » Wed Mar 27, 2019 2:03 pm

Oh no! But glad you are on your way to Mayo! Keep us updated!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Gravelyguy
Posts: 199
Joined: Thu Jul 05, 2018 6:03 pm

Re: Well this is interesting

Postby Gravelyguy » Wed Mar 27, 2019 2:12 pm

Made it to Mayo, haven’t really talked with anyone but it seems that surgery will be today.

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

martd
Posts: 107
Joined: Tue Nov 21, 2017 3:48 pm
Location: Phoenix, Az

Re: Well this is interesting

Postby martd » Wed Mar 27, 2019 3:04 pm

Sounds like a good call getting you over to Mayo, hope all goes well and they find a whole lot of nothing!

Dan
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT Tp53 LOF
12 rounds folfox , avastin
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7
01/19 clear scan CEA .9
04/19 clear scan CEA .9
07/19 clear scan CEA 1.0

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Well this is interesting

Postby mpbser » Wed Mar 27, 2019 3:12 pm

I can't remember if I heard it here or on a Colontown facebook group but Dr. Grotz at Mayo is supposed to be a phenomenal surgeon. https://www.mayo.edu/research/faculty/g ... o-20349934
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

tbt4snow
Posts: 26
Joined: Sat Oct 27, 2018 3:16 pm
Facebook Username: Tina tran

Re: Well this is interesting

Postby tbt4snow » Wed Mar 27, 2019 3:47 pm

Pray for you with the best outcomes from the surgery and speedy recovery.
DX: CC stage 4/w ovaries & omentum mets in 12/17 49/F
High grade pT3N1bM1b sigmoid Adenocarcinoma colon
MSS-h TMB=16, NRAS-mutant
Lymph nodes: 1/2 left colic; 3/8 regional
12/2017: Exploratory laparotomy & resect of sigmoid & ovaries
Folfox/avastin 12 sessions from 1/8-6/18. 6/18 CEA 2.1
1/19: CT shows peri mets;
CEA: 12/18 5.1, 1/7/19 7.9; 1/15/19 9.1; 1/30/19: 10.6
4/3/2019 CRS/HIPEC after 4 Folfiry sessions...

Gravelyguy
Posts: 199
Joined: Thu Jul 05, 2018 6:03 pm

Re: Well this is interesting

Postby Gravelyguy » Thu Mar 28, 2019 10:16 am

Hi all,

Thanks for the well wishes. Other than having to switch from a laparoscopic surgery to an open one mid surgery all went well. The gallbladder was definitely the culprit. The lead resident surgeon assisted on the original surgery and remembered me.

I didn’t get done with surgery and to my room until after 10 but am feeling up to being discharged today!

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Punky44
Posts: 349
Joined: Mon Oct 01, 2018 4:29 pm

Re: Well this is interesting

Postby Punky44 » Thu Mar 28, 2019 3:33 pm

Great news!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Well this is interesting

Postby Maggie Nell » Thu Mar 28, 2019 3:40 pm

Don't forget to ask for your stones so you can take them home and
mount them over the fireplace...

I had a lap cholecystectomy back in 1994 and the recovery pain was somewhat
worse and lasted longer than the pain from the open right hemi I had in 2015.

Wishing you a strong recovery and your body not making any more stones
behind your back!
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Well this is interesting

Postby mpbser » Fri Mar 29, 2019 7:11 am

Glad to hear the surgery went well!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

AppleTree
Posts: 267
Joined: Fri Mar 18, 2016 8:16 am

Re: Well this is interesting

Postby AppleTree » Fri Mar 29, 2019 11:30 am

Sounds like they took care of you fast and efficiently! Speedy recovery. I always beg to stay an extra day so the hospital pharmacy can fill my RX, etc.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Well this is interesting

Postby teri3 » Sat Mar 30, 2019 9:58 pm

Good luck! Hope all goes well.
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(


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