Dr. wants an ultrasound (liver/gallbladder) SCARED

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Koreysue
Posts: 101
Joined: Mon Apr 30, 2018 2:36 pm

Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby Koreysue » Thu Mar 14, 2019 4:01 pm

Hi all,
I’m struggling a bit. My cea test is Monday 3/18 and so I’m struggling with the typical anxiety over that. In the meantime, I called the dr. report my right rib area pain that I have had off and on, for 2 weeks, and he has ordered an ultrasound for tomorrow. So here I sit trying to process this, hoping for gallstones- really, really, hoping. Just needed to vent this fear somewhere. Don’t really like to share my true level of anxiety with my family, because I try to stay positive for their benefit- and I know that worrying doesn’t change the outcome, but I find it impossible not to.
Was really hoping to make it past the 2 year mark with out a recurrence. So scared.
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4

stu
Posts: 1173
Joined: Sat Aug 17, 2013 5:46 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby stu » Thu Mar 14, 2019 4:25 pm

Hi ,

Hoping it’s something totally benign and there is every reason to think that at the moment . I know no two cases are the same but my mum had a significant spread to her liver without a single symptom . One tumour alone was the size of a small orange . She has had over ten Mets and not one caused any pain . However she has had random rib pain but her scans have never shown anything concerning .
Holding out for a good scan .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Koreysue
Posts: 101
Joined: Mon Apr 30, 2018 2:36 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby Koreysue » Thu Mar 14, 2019 5:08 pm

Thank you Stu.
It’s so nice to be able to talk to people who really understand the stress of this. Definitely hoping for some silly benign cause that I’ll laugh about later. Haha
It’s great also to hear that even though you mom had mets, she continues to do well. Thank you for your input.
Korey
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4

Trying
Posts: 170
Joined: Sun May 13, 2018 10:11 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby Trying » Thu Mar 14, 2019 6:09 pm

I wilp be sending positive thoughts your way.
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets and peri metApril 2018
Folfox as of June 2018
Down to 2 mets in liver dec 2018.

Koreysue
Posts: 101
Joined: Mon Apr 30, 2018 2:36 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby Koreysue » Thu Mar 14, 2019 7:32 pm

Trying wrote:I wilp be sending positive thoughts your way.

(Learning how to do the quote thing on here)

Thank you, Trying. I appreciate it.
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4

Punky44
Posts: 335
Joined: Mon Oct 01, 2018 4:29 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby Punky44 » Thu Mar 14, 2019 8:55 pm

Hoping it’s nothing and you can relax!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Koreysue
Posts: 101
Joined: Mon Apr 30, 2018 2:36 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby Koreysue » Fri Mar 15, 2019 1:13 am

Punky44 wrote:Hoping it’s nothing and you can relax!


Yes me too! Thanks Punky44
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4

Patty17
Posts: 5
Joined: Tue Nov 20, 2018 9:37 am
Location: Ohio

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby Patty17 » Fri Mar 15, 2019 6:26 am

Hi KS —

Fingers-crossed everything is fine and you get results quickly!

I’ve had gall bladder issues (and subsequent removal) and what you’re describing sounds very familiar (right side under rib, pain can range from achy to stabbing, comes and goes). First step to explore those issues is a liver/gall bladder ultrasound.

Good luck today!

P
First colonoscopy at 50, asymptomatic
DX CC: 8/2017, CEA 3.9
Colon Resection: 9/2017
Stage: IIIB, T3N1bM0. Sigmoid Adenocarcinoma; 3 of 46 LN biopsied positive
Lynch Negative
FOLFOX 10/2017 - 3/2018; completed 11 of 12; #12 canceled due to low platelets
Neulasta administered after chemo treatment numbers 3 through 11
CT 7/2018 and Colonoscopy 8/2018: NED
CT 3/2019: NED

Koreysue
Posts: 101
Joined: Mon Apr 30, 2018 2:36 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby Koreysue » Fri Mar 15, 2019 3:28 pm

Patty17 wrote:Hi KS —

Fingers-crossed everything is fine and you get results quickly!

I’ve had gall bladder issues (and subsequent removal) and what you’re describing sounds very familiar (right side under rib, pain can range from achy to stabbing, comes and goes). First step to explore those issues is a liver/gall bladder ultrasound.

Good luck today!

P

Thank you Patty.
Never thought I’d be hoping for a bad gallbladder, but I am today!
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4

User avatar
CRguy
Posts: 9958
Joined: Sun Feb 10, 2008 6:00 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby CRguy » Fri Mar 15, 2019 7:28 pm

Koreysue wrote:Just needed to vent this .....

Never thought I’d be hoping for a bad gallbladder, but I am today!

Hey homie ....
Rants and/or Vents 'R us
BRING 'EM
that IS why we are all here !

AND ...you have no idea over the years, ALL the weird things we HAVE wished for ...
instead of a recurrence or a new "whack-a-mole" met game to play. :twisted:

Here's hoping for the gallbladder thing, right along with you :shock:

Cheers and best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Koreysue
Posts: 101
Joined: Mon Apr 30, 2018 2:36 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby Koreysue » Fri Mar 15, 2019 11:36 pm

CRguy wrote:
Koreysue wrote:Just needed to vent this .....

Never thought I’d be hoping for a bad gallbladder, but I am today!

Hey homie ....
Rants and/or Vents 'R us
BRING 'EM
that IS why we are all here !

AND ...you have no idea over the years, ALL the weird things we HAVE wished for ...
instead of a recurrence or a new "whack-a-mole" met game to play. :twisted:

Here's hoping for the gallbladder thing, right along with you :shock:

Cheers and best wishes
CRguy

Thanks so much CRguy, it means a lot to not feel alone in this. Won’t have results til Monday but and prepared to face whatever it may be.
Smiles,
Koreysue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4

User avatar
CRguy
Posts: 9958
Joined: Sun Feb 10, 2008 6:00 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby CRguy » Sat Mar 16, 2019 12:11 am

Hey we can be scan buddies !!!!

You get your results on Monday and I am going for an echocardiogram Monday !!!! :shock:
SO ...
We'll compare notes when the dust settles :mrgreen:

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby mpbser » Sat Mar 16, 2019 2:41 pm

Good luck to CRguy and Koreysue on Monday. Sending good vibes and PRAYERS (hope that's ok) your way. Keeps us posted!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

User avatar
CRguy
Posts: 9958
Joined: Sun Feb 10, 2008 6:00 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby CRguy » Sat Mar 16, 2019 4:44 pm

Will do
Thanx

CR
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Koreysue
Posts: 101
Joined: Mon Apr 30, 2018 2:36 pm

Re: Dr. wants an ultrasound (liver/gallbladder) SCARED

Postby Koreysue » Sat Mar 16, 2019 10:54 pm

CRguy wrote:Hey we can be scan buddies !!!!

You get your results on Monday and I am going for an echocardiogram Monday !!!! :shock:
SO ...
We'll compare notes when the dust settles :mrgreen:

Cheers
CRguy


Such fun! Twins, haha
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4


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