AmyG wrote:Not that I know what was said, but from where I sit, I would much rather be the patient than the caregiver. I can't imagine how tough it must be for you to watch your loved ones in the fight for their lives and having relatively little control of things.
I feel like my job is much easier than my husband's, all I have to do is get better!
LPL wrote:Thank you Stu for your comment.
. . . We had a thread here long ago, started by a caregiver for caregivers. That thread helped me So much when I first joined ColonClub. But here it was of course not really ‘only caregivers’ since everyone can read... There are forums with specific safe places for only(!) caregivers to talk. I do feel understood & respected there.
“Never mind”? or maybe we should talk about this!?
stu wrote:Hi ,
You are always very balanced in your approach so try not to worry .
I actually don’t use the term “ care giver” very often as she is just my mum requiring more support from time to time . Just as she has done for me over the years . We are family making the required adjustments . As soon as she steps into her doctors office I completely respect the dr/patient relationship and only speak where appropriate with permission. She calls all the shots regarding her health as I do with mine .
I think the post was possibly making references to situations when that balance is skewed with the attention being focused on the person without cancer or worse interfer with the treatment process . Having worked in health care it happens a lot and you spend more time dealing with the relatives needs than the patient.
You are a lovely advocate for your husband and that is what we do for people we love . When they don’t need that we step back ! It is a process of evaluating what’s best .
You keep on loving him .
Stu
Lee wrote:LPL wrote:Thank you Stu for your comment.
. . . We had a thread here long ago, started by a caregiver for caregivers. That thread helped me So much when I first joined ColonClub. But here it was of course not really ‘only caregivers’ since everyone can read... There are forums with specific safe places for only(!) caregivers to talk. I do feel understood & respected there.
“Never mind”? or maybe we should talk about this!?
While I totally missed what is now deleted, is this the long ago thread you are talking about?
http://coloncancersupport.colonclub.com ... has+cancer
I always felt cancer was the elephant in the room that no one wanted to talk about.
Lee
LPL wrote:Yes that’s the thread Lee. 236 pages!
Not sure I understand what you mean by “I always felt cancer was the elephant in the room that no one wanted to talk about.”
Boxhill wrote:
If people need to express themselves outside the hearing of cancer patients, I'd suggest checking out the caregiver support groups on colontown.
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