LPL wrote:Yes that’s the thread Lee. 236 pages!
Not sure I understand what you mean by “I always felt cancer was the elephant in the room that no one wanted to talk about.”
Must be a USA slang. When I was diagnosed, most stats at that time had me at about 30% (some at 50%) of being alive in 5 yrs. FOLFOX was an experimental drug then, along with Avastin. My Onc used to talk about me going to stage IV. For many years, we lived with this idea that I was probably going to stage IV, you are going to die, (the elephant in the room). My Onc got me aboard with FOLFOX as a stage IIIC, game changer!!! And probably one of the biggest reason I am alive today. That and my colostomy bag, I beat the odds at that time. Along with Ron50. And a few other people who are not apart of this forum today.
A high school buddy, her dad died from this disease about 25-30 yrs prior to my diagnoses. They found his via exploratory surgery, scope were not on the road map then (President Ronald Reagan was probably the 1st USA president to get scoped, that I am aware of, another game changer). Anyway, from the time of my friend's dad diagnoses to death, about 6 months. Believe me A LOT of advancements in the last 50 years, cancer wise.
Stats were not on my side when I was diagnosed. At that time, if you were diagnosed with stage IV liver met, you could be a candidate for MD Anderson if it was 1 "singular" met (2 or more, excluded you from any clinical trials. I believe this was before Dr. Kemeny and HAI pump, again, another game changer.
The testing they did on my tumor then was SIMPLE compared to what they test today. Again there was only 1 or 2 chemo options, 5FU and something else, in my opinion, Keytruda is another game changer.
Anyway, "the elephant in the room" was I probably was not going to beat this and we are not going to talk in that direction, the goal was to keep me alive until my kids graduated from high school (they were 9 & 11 at diagnoses). I was several weeks out from surgery, we were seeing some doctor for I don't remember, my daughter was crying, I'm scared I'm going to lose my mother. Doctor looked at me then said, your mother is in remarkable condition for the surgery she just had, if you ask me, she's going to beat this, not die from this cancer. Your mother is stronger than you give her credit for. I truly believe that statement was a game changer for my daughter.
I hope this answers your question, if not, let me know.