NEW-Need some positivity here.

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juliej
Posts: 3052
Joined: Thu Aug 05, 2010 12:59 pm

Re: NEW-Need some positivity here.

Postby juliej » Wed Jan 23, 2019 5:41 pm

teacher2017 wrote:I guess it could be. But it is often under the rib. I’m hoping it’s only healing...

Your liver has completely grown back since your resection date was back on September 12th. However, there's a fair amount of fluid left surrounding the area that needs to dissipate. Sometimes it can cause weird twinges/pains as it reduces in size and everything moves back into place.

It could also be something simple, like a kink in your intestines or a gas bubble. After you have cancer, it's hard not to worry about every little ache and pain, especially a sharp pain like you had. I'd put money on the liver respositioning itself, but try not to worry. Your CEA is low, your last scan was clear, you're doing GREAT! :D

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

DonutHead
Posts: 60
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Fri Jan 25, 2019 10:43 am

so i asked my doctor and he said cancer itself does not hurt...only if it is obstructing or has impinged a nerve. believe it may be your liver healing. it's an amazing organ.
Male 49 yrs.
09/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma
- CT - slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: PET/CT - NED
03/2019: CT - NED
Still Here!

teacher2017
Posts: 254
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sun Feb 17, 2019 8:40 am

Sooooooo- I went to the general dr the other day for a check up and mainly because my last one will not take my insurance anymore. I tell her my story and I cry. I was stage 3c and it went to my liver. Had it resectioned - now NED. She says “well at least you aren’t stage 4!!!” I was in shock! Wtf?

Anyway she attributed my bloody stool episodes to the low dose aspirin I was taking. So I stopped. That was a week or so ago. Today- another epsilon’s. I’m worried. I have a scan on March 2nd. Should I wait or run to a gi dr??? Could it just be a hemmoriod? Food related? Or am I in trouble again???
48 yo mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19

DonutHead
Posts: 60
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Sun Feb 17, 2019 8:51 am

hey, i had blood before and it was nothing. it actually takes time for aspirin even low doses to completely leave your system and lessen the side effects. i doubt it is anything related to your diagnosis, likely just a hemi. hang in there!
Male 49 yrs.
09/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma
- CT - slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: PET/CT - NED
03/2019: CT - NED
Still Here!

teacher2017
Posts: 254
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Wed Feb 27, 2019 8:42 pm

Scan on Saturday plus blood work. I’ll have the blood work results on Saturday. The onc tells me the results on Tuesday. I could use all prayers, lucky charms, positive thoughts, good juju, whatever. Thanks in advance! Scanxiety is real!
48 yo mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19

Beckster
Posts: 399
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: NEW-Need some positivity here.

Postby Beckster » Wed Feb 27, 2019 9:18 pm

teacher2017 wrote:Scan on Saturday plus blood work. I’ll have the blood work results on Saturday. The onc tells me the results on Tuesday. I could use all prayers, lucky charms, positive thoughts, good juju, whatever. Thanks in advance! Scanxiety is real!


Hey teacher2017! It has been a long time since we talked...I will be praying and sending positive vibes for great results!
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18 6/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8
Clear Colonoscopy 10/17, 11/19 :D

DonutHead
Posts: 60
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Wed Feb 27, 2019 10:11 pm

I have my one year next week as well. You will come through just fine, I have no doubt. Hang in there, you will get through this like everything else!
Male 49 yrs.
09/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma
- CT - slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: PET/CT - NED
03/2019: CT - NED
Still Here!

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susie0915
Posts: 941
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: NEW-Need some positivity here.

Postby susie0915 » Thu Feb 28, 2019 9:44 am

Positive vibes coming your way. I understand the anxiety, my one year scan is coming up in April. It's the first one since graduating to a yearly scan schedule. Been having them every 6 months which gave me more security. I know being moved to yearly scans is a good thing, but some much can happen in a year. I still get bloodwork every 6 months and CEA in November was 0.6. Prayers for a great scan.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

Milk Tea
Posts: 29
Joined: Wed Feb 13, 2019 1:14 pm

Re: NEW-Need some positivity here.

Postby Milk Tea » Thu Feb 28, 2019 9:09 pm

Hi Teacher 2017,
Yes, I hate scan time. We are all in this together. You are in my prayers. Sending you best luck. By the way, our kids are about the same age. My two boys are 10 and 14.
Wife to DH
09/2016: Dx at 50, CC Ascending colon, 10+ liver Mets
KRAS-Mut G12V, MSS, CEA 8
09/2016: Nearly blocked, Emergency colon surgery (LAR)
FOLFOXIRI+Avastin: 6 before and 6 after liver resection
01/2017: Liver resection, open, both lobes, 40% total liver cut, tumors either cut out or microwave ablation burn, all tumors are out
02/2017-01/2019 : Clean CT every 3-4 months, CEA between 2-3
06/2017-Present: Maintenance Chemo: Xeloda + Avastin

Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: NEW-Need some positivity here.

Postby Punky44 » Thu Feb 28, 2019 10:10 pm

Sending you all the good vibes!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

teacher2017
Posts: 254
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sun Mar 03, 2019 9:55 pm

Milk Tea wrote:Hi Teacher 2017,
Yes, I hate scan time. We are all in this together. You are in my prayers. Sending you best luck. By the way, our kids are about the same age. My two boys are 10 and 14.



Hi Milk Tea-
Just saw your signature. Curious- why are you on maintenance if you had all tumors out???

Lydia
48 yo mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19

teacher2017
Posts: 254
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sun Mar 03, 2019 9:56 pm

Beckster wrote:
teacher2017 wrote:Scan on Saturday plus blood work. I’ll have the blood work results on Saturday. The onc tells me the results on Tuesday. I could use all prayers, lucky charms, positive thoughts, good juju, whatever. Thanks in advance! Scanxiety is real!


Hey teacher2017! It has been a long time since we talked...I will be praying and sending positive vibes for great results!



hey there-
I PMed you!
48 yo mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19

Caat55
Posts: 673
Joined: Sat Dec 23, 2017 6:01 pm

Re: NEW-Need some positivity here.

Postby Caat55 » Sun Mar 03, 2019 10:20 pm

Waiting to hear some good news. In my thoughts!
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Milk Tea
Posts: 29
Joined: Wed Feb 13, 2019 1:14 pm

Re: NEW-Need some positivity here.

Postby Milk Tea » Mon Mar 04, 2019 12:00 am

Hi Lydia,Our oncologist wants to put my husband on maintenance chemo because of his extensive liver involvement. He had 12 lesions in the liver. Our oncologist strongly believes doing maintenance chemo can minimize the chance of recurrence especially for the most critical first two three years after surgery.

The interesting thing is our liver surgeon disagrees. He doesn’t think it’s necessary to do maintenance chemo. However, my husband feels that he can manage the side effects ok so he decided to be on it, at least for the first two three years.
Wife to DH
09/2016: Dx at 50, CC Ascending colon, 10+ liver Mets
KRAS-Mut G12V, MSS, CEA 8
09/2016: Nearly blocked, Emergency colon surgery (LAR)
FOLFOXIRI+Avastin: 6 before and 6 after liver resection
01/2017: Liver resection, open, both lobes, 40% total liver cut, tumors either cut out or microwave ablation burn, all tumors are out
02/2017-01/2019 : Clean CT every 3-4 months, CEA between 2-3
06/2017-Present: Maintenance Chemo: Xeloda + Avastin

Beckster
Posts: 399
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: NEW-Need some positivity here.

Postby Beckster » Mon Mar 04, 2019 6:58 am

teacher2017 wrote:
Beckster wrote:
teacher2017 wrote:Scan on Saturday plus blood work. I’ll have the blood work results on Saturday. The onc tells me the results on Tuesday. I could use all prayers, lucky charms, positive thoughts, good juju, whatever. Thanks in advance! Scanxiety is real!


Hey teacher2017! It has been a long time since we talked...I will be praying and sending positive vibes for great results!



hey there-
I PMed you!



I didn't get it! Resent!
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18 6/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8
Clear Colonoscopy 10/17, 11/19 :D


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