Postby Rikimaroo » Wed Dec 12, 2018 5:02 pm
Hello All,
Things have been improving after ileostomy reversal, going much less, still hate the unpredictability when I have to go, but it's been better.
Just had my NM PET/CT SKULL-THIGH and MRI done. All came back clear and good. So still NED. My CEA was 1.2 when I did the test in September, This time it is 3.2 and even though all came back fine, with PET/MRI I am feeling a bit nervous and concerned. My oncologist after I emailed him and asked what it was, he released it, and that usually means there not concerned.
Anyone else seen this fluctuation. I am taking Metamucil daily and probiotics and immodium, no sure if that would cause any of this. From Scanxiety to CEA Anxiety, ugh...
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.