hopie wrote:... I hope you don't mind my asking: what brought you here?
I was on the Internet looking for information on quality of life after ileostomy reversal, since it was almost time for my scheduled ileostomy reversal surgery. The search engine found some links to "reversal logs" and "takedown logs" on the Colon Talk website, so I clicked on them. This also led to another thread on something called LARS - - an acronym that I had never heard of before and that had never been mentioned by any of my doctors. So I spent some time here trying to familiarize myself with the jargon and trying to learn enough new technical keywords so that I could find the kind of information I was looking for.
When I was first diagnosed, I knew next to nothing about rectal cancer. Earlier, when I had been at university, I hadn't taken any pre-med or science courses at all - no organic chemistry courses, no molecular biology courses, no physiology courses, no anatomy courses. So, in order to understand my current diagnosis and all of the tests and medical reports that were coming in after my diagnosis, I had to learn everything from the beginning, almost like taking a crash course in "Rectal Cancer 101", but without the benefit of having a professor or a proper syllabus.
At the time of my diagnosis, I looked far and wide for a comprehensive, easy-to-read book on rectal cancer, complete with footnotes, illustrations, scientific references, a technical glossary, a proper index and table of contents, etc., but I couldn't find anything at all. So I set out to create my own rectal cancer knowledge-base. I bought a new computer with a 580 gigabyte hard drive and I started collecting articles, documents, and scientific references that I thought would be of use to me. That was over 6 years ago. Now my computer's hard drive is almost full. What I have now is a rather unstructured collection of various documents and reference links, mainly in the area of rectal cancer, including topics like neo-adjuvant chemo/radiation, low anterior resection syndrome (LARS). I sometimes share what I have with others if I think the information might help.
What's E-selectins, in particular? My mother has a KRAS mutation (G13D)
her CEA and CA199 levels are within normal range per the ones established by this particular lab.
How did you go about optimizing which components to use??
Do you target particular biomarkers or experiment and observe?
O Stoma Mia wrote:hopie wrote:... So I spent some time here trying to familiarize myself with the jargon and trying to learn enough new technical keywords so that I could find the kind of information I was looking for.
[...]
What I have now is a rather unstructured collection of various documents and reference links, mainly in the area of rectal cancer, including topics like neo-adjuvant chemo/radiation, low anterior resection syndrome (LARS). I sometimes share what I have with others if I think the information might help.
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