It’s been a while since I posted on here but I have been lurking most days.
I’ve been sick since before Christmas and we found out on Christmas Eve via CT scan of my head that I had at least 2 brain Mets in my cerebellum that have been causing my sleepiness, nausea, not drinking any fluids, dizziness, and blurred vision. I started dexamethasone steroids on Christmas Eve and it has helped my sleepiness and nausea and allowed me to eat and drink normally. I still have problems with dizziness and blurred vision with the steroids but it better than before the steroids. I was referred to a radiation oncologist over the holidays and they performed an MRI in the New Year. My current oncologist was shocked that it spread to my brain and after consulting a few other oncologists agreed that there was no chemo to treat these tumors and radiation was the only way.
The MRI came back with 3 tumors in the cerebellum and 1 small tumor in the front part of my brain that isn’t causing an issue at this point. After speaking with the radiation oncologist about go forward steps we decided on SRT targeted radiation at the spots in my cerebellum. I am currently done 3/5 SRT treatments. The hope is that once the swelling goes down in a couple weeks my vision and balance will return to normal for a few months. This treatment won’t extend my life but it should ease the symptoms for the duration of a few moths until it spreads further and there is no more treatment. We will continue with MRIs of the brain every 4-6 weeks and possibly do more SRT radiation if it is an option as new brain Mets appear, although we aren’t sure of this plan yet.
My oncologist and I thought it would spread from my para-aortic lymph nodes and lungs and into my liver but it turns out it kept going up.