Yvana1 wrote:Oh Ok Thanks for that Beth. I haven't experienced the pain for about 10 days now (just occasional random slight pulling-type minor cramping twinges. Eating or using the bathroom doesn't seem to make any difference). My pain is on an angle from the point between the belly button and right hip going down towards the bladder-ish. I guess that means it is most likely in the descending colon (?) When you say your pain/cramping was on and off could you tell me please, how long were the gaps inbetween pain events for you? Believe me, I am not looking for trouble, but I find the pain having subsided rather odd (but apparently it's not an altogether unheard of thing either), but I am also thankful it's not constant. Thinking about it, before the big pain event, I may have had minor pains/twinges in the same area but probably didn't think anything of it. Do you think that the intermittancy of it suggests that the mass grows in "spurts"? Did you have pain when the one lymph node expanded so quickly? Did you also have little to no other symptoms ? (I have little to no appetite. And for a long time now, occasional constipation for no apparent reason even though I've always eaten a high-fiber diet and drink lots of water). Thank you again Beth and I also hope for the best.
Yvana1 wrote:Well before surgeon felt the abdomen he said that it could possibly be fecal matter or gas (ha ha, yeah right). But after exam and he saw how tender the area was for me, he said that we needed to get additional testing as soon as possible. I asked about diverticul. but he did not respond to that. (also I do not have any symptoms of IBS, diverticulitis, crohns). Something I have wondered about is if could be something "outside" of the colon (cat scan rep said mass was "at" the colon which puzzles me. Is that a common word to use I wonder?) The ultrasounds done both at the ER and 2 months previously found that the liver is enlarged, which, from what I've read is not uncommon with colon masses. Yes, answers sooner than later would be fabulous but I don't think I'll know anything until next wk after the colonoscopy (but maybe if Pet shows something on Wed they'll let me know?) If he thinks the results of colonosc. merit surgery, that has already been scheduled for the day after the colonoscopy. Thank you for your support Del (btw I have immediate family in W.A. and S.A. Sydney harbour is so lovely! Go aussies !)
Stewsbetty wrote:I didn’t get to see the CT report from my dx ER visit but I had a mass right at the caecum. I had been having on and off pain for 2 months before they did the CT. I would wake up with terrible cramping occasionally and be in so much pain but then it would go away and I would be fine for a few days. So I guess I would say it is possible to have the pain go away and it still be cancer. I totally can’t speak to a scope having missed it. I do know though that when I had lymph node Mets I had one node go from just over 1 cm to 10 cm in 4.5 months. I hope this isn’t sounding doomsday. I would really like to come on here next week and find out there is a different reason for your pain.
Beth
Yvana1 wrote:Stewsbetty wrote:I didn’t get to see the CT report from my dx ER visit but I had a mass right at the caecum. I had been having on and off pain for 2 months before they did the CT. I would wake up with terrible cramping occasionally and be in so much pain but then it would go away and I would be fine for a few days. So I guess I would say it is possible to have the pain go away and it still be cancer. I totally can’t speak to a scope having missed it. I do know though that when I had lymph node Mets I had one node go from just over 1 cm to 10 cm in 4.5 months. I hope this isn’t sounding doomsday. I would really like to come on here next week and find out there is a different reason for your pain.
Beth
So had Pet scan today. Pain has returned to an unpleasant level (enough to take half Vicod). Got results of some bloodwk ordered by surgeon last week. Liver enzymes still elevated, and first time CEA test at 4.7 so... oh well. Where can I find info on low residue diet? is it just low fiber? Thanks
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