Scanxiety - Good thoughts Please

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Scanxiety - Good thoughts Please

Postby LPL » Sun Jan 06, 2019 1:08 pm

Tomorrow it will be hubby’s first ‘6 month between’. He is feeling fine and the blood tests is not alarming. But these scans are always!! making me scared :?
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

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O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

Re: Scanxiety - Good thoughts Please

Postby O Stoma Mia » Sun Jan 06, 2019 1:57 pm

LPL wrote:Tomorrow it will be hubby’s first ‘6 month between’. He is feeling fine and the blood tests is not alarming. But these scans are always!! making me scared :?

Jag ber för dig.

ӧʂɱ

Punky44
Posts: 384
Joined: Mon Oct 01, 2018 4:29 pm

Re: Scanxiety - Good thoughts Please

Postby Punky44 » Sun Jan 06, 2019 2:29 pm

Sending positive vibes!!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Scanxiety - Good thoughts Please

Postby LPL » Sun Jan 06, 2019 4:11 pm

Thank you for kind support O Stoma Mia & Punky44.
Also it is so good to see a post from you O Stoma Mia :) I was afraid that you had left us. Please stay.. I have learned So Much from your posts !! <3 & thank you for words in my 1st language! How did you know ;-)
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

stu
Posts: 1211
Joined: Sat Aug 17, 2013 5:46 pm

Re: Scanxiety - Good thoughts Please

Postby stu » Sun Jan 06, 2019 4:56 pm

I hate them too . My mum has had over 25 and they still cause a reaction although getting better .
All the very best for the scan .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

lakeswim
Posts: 212
Joined: Sat Mar 31, 2018 9:37 am

Re: Scanxiety - Good thoughts Please

Postby lakeswim » Sun Jan 06, 2019 8:22 pm

I just had my post-TNT treatment scans (to determine next steps) and I can understand how you feel. (And the kicker is that I met with my surgeon the next day and she said results were vague, so I still don't know the deal.) Sending positive vibes to you!

And, yes, O Stoma Mia - so happy to see a post from you - even though you definitely deserve a "sabbatical" if you want one! Hope you are feeling good.
50 - F - Mom
RC - dgns 3/18 at age 49
Adenocarcinoma
10-11 cm frm anal verge ("large")
Stage 3a - T4N0M0
FOLFOX May -Sept '18
Capecetabine + Radiation - 28 sessions - Oct - Nov 2018
Jan 19 - MRI & flex sig show tumor gone
Feb 19 - MRI & flex sig show tumor gone
W&W
May 19 - flex Sig - looks good
Sept 19 - Chest/ab CT no change, MRI no change, flex Sig looks good
*grateful*

dliu
Posts: 66
Joined: Sun Jun 03, 2018 7:16 am

Re: Scanxiety - Good thoughts Please

Postby dliu » Mon Jan 07, 2019 4:19 am

You are in my thoughts! Hoping for good results!
Caring for my mum, 65
Sigmoid resection, multiple liver mets
09/05/2018 Dx Stage IV, 6/11 LN - KRAS G12V
28/05/2018 First round of FOLFOX + Avastin

CEA down from 6000+ (05/2018) to 843 (08/2018) to 377 (11/2018)
9/10 rounds with Oxaliplatin
8/10 rounds with Bevacizumab

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Scanxiety - Good thoughts Please

Postby LPL » Mon Jan 07, 2019 4:28 pm

Thank you all <3
The CT-scan result...+ appointment with the Onc, was not the best=what I had hoped for iike -> “all is fine!”
She wanted a PET-scan.. of DH’s lungs.. and a biopsi and perhaps if possible an ablation at the same time. There is a nodel (ore some nodels) in the lungs that has been there (watched..) for a long time. Have grown?! This has not been a priority until now.
Yes, I am worried :(
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

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O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

Re: Scanxiety - Good thoughts Please

Postby O Stoma Mia » Tue Jan 08, 2019 12:28 pm

LPL wrote:... The CT-scan result... She wanted a PET-scan.. of DH’s lungs.. and a biopsi and perhaps if possible an ablation at the same time...

LPL - I'm sorry to hear the news of lung nodules. Actually, I think the best strategy for dealing with them right now is just what the oncologist suggested: a PET scan. This will determine if they are in fact cancer, or just benign scar tissue -- such as what you frequently find with atelectasis-related nodules

If you want to read some posts or articles before your PET scan review, here are some links you might want to explore:

What Does Having a Nodule on the Lung Mean?
https://www.verywellhealth.com/lung-nodules-symptoms-causes-and-diagnosis-2249304

Some ColonTalk posts on "Nodules" and "Lung Thingies":
http://coloncancersupport.colonclub.com/search.php?keywords=nodules+lung+atelec*&terms=all&author=&sc=1&sf=all&sr=posts&sk=t&sd=d&st=0&ch=300&t=0&submit=Search

A Wikipedia article describing the atelectasis type of benign nodule:
https://en.m.wikipedia.org/wiki/Atelectasis

I'm mentioning the atelectasis-related benign nodule specifically because that is what I had to deal with two years ago, and the PET scan cleared up any ambiguity. In my case, the nodules had been there all along since my original surgery, in all 5 of the previous CT scans, but were never large enough to be reported in the scan reports until the 6th CT scan in 2016. These types of benign nodules tend to develop during abdominal surgery and recovery, and consist basically of scar tissue.

"Surgery: Having surgery is a major risk factor for having atelectasis. There are two primary reasons for this: the being on a ventilator during surgery and the inability to cough to clear the lungs while under anesthesia. The ability to take a deep breath and cough helps prevent atelectasis.
Ref: https://www.verywellhealth.com/atelectasis-after-surgery-3156853"

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Scanxiety - Good thoughts Please

Postby LPL » Tue Jan 08, 2019 12:35 pm

Thank you SO Much O Stoma Mia
I will read your links to learn more about this.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

User avatar
O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

Re: Scanxiety - Good thoughts Please

Postby O Stoma Mia » Sun Jan 13, 2019 2:08 am

LPL wrote:...The PET is Thursday next week. We see Onc the Monday after. Reading now about different scenarios ... trying to be prepared...

Best wishes for a good PET scan on Thursday. Be sure that DH follows the PET preparation guidelines closely in order to avoid possible mis-diagnosis. If you weren't given prep guidelines by the doctor you can find some suitable ones on the internet:

https://m.scintigraphie-tep.fr/precautions-a-prendre-pour-un-petscan.php

This week, be sure to stay warm and not catch a cold. (It's not a good idea to show up for a lung scan when you have a bad chest cold!)

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Scanxiety - Good thoughts Please

Postby LPL » Sun Jan 13, 2019 7:33 am

O Stoma Mia wrote:
LPL wrote:...The PET is Thursday next week. We see Onc the Monday after. Reading now about different scenarios ... trying to be prepared...

Best wishes for a good PET scan on Thursday. Be sure that DH follows the PET preparation guidelines closely in order to avoid possible mis-diagnosis. If you weren't given prep guidelines by the doctor you can find some suitable ones on the internet:

https://m.scintigraphie-tep.fr/precautions-a-prendre-pour-un-petscan.php

This week, be sure to stay warm and not catch a cold. (It's not a good idea to show up for a lung scan when you have a bad chest cold!)

Thank You OSM for your kind comments & info.
We are waiting for them to call us and give instructions - thanks to your link I am now prepared with questions ;-)
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

mpbser
Posts: 934
Joined: Wed Apr 19, 2017 11:52 am

Re: Scanxiety - Good thoughts Please

Postby mpbser » Sun Jan 13, 2019 8:09 am

You are in my thoughts. Best of luck and keep us posted!

P.S. I second what has said about getting this PET scan done.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

stu
Posts: 1211
Joined: Sat Aug 17, 2013 5:46 pm

Re: Scanxiety - Good thoughts Please

Postby stu » Sun Jan 13, 2019 8:47 am

All the best for Thursday . Thinking of you both .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Scanxiety - Good thoughts Please

Postby LPL » Sun Jan 13, 2019 3:13 pm

Thank you lakeswim, dliu, mpbser and stu for your kind words.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets


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