So my journey with DH has been hard. We fight for everything in this life together and his cancer battle is no different. So I just want to put this out there according to the nurse practitioner working with our oncologist his CEA was the highest she'd ever seen being over 10,000. After 6 months of chemo and 5 and a half of those months with oxaliplatin in December his CEA was down to 69!
I know CEA isn't exactly reliable but given our situation I feel deep down those numbers mean something good something hopeful.
I'm constantly battling my head so many of you have given me hope some with lots of mets and one person who had said dozens of mets is surviving because of MSK. Why can't it feel this way from our doctors ALL OF THEM. Why should anyone feel the despair of am I watching them die? I don'tt ask it often because my faith/hope/strength comes from that question he is not going anywhere if we have to file bankruptcy in the process. Sometimes the despair I feel is so many patients go straight to surgery, some have many extra mets and favorable out comes what makes any of us different in the same situations? In that my husband could die while others very similar to his state go on?
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI