cartech78 wrote:Sorry to hear about these results. I posted to you awhile back about that Abbvie trial, My wife works there. I was at MSK when the Duke people were shadowing Dr.Kemeny earlier in the Month. What a small world. Im currently doing 3 rounds of FolFox here in Chicago and going back to MSK on Dec18th to see what surgery options i may have available if any. I also started my own little supplement regimen sorta under the table. Im taking 2g a day of Curcumin, 3g of Micronized Reservatrol, baby aspirin and considering another. Anyways I just wanted to wish you some luck with your new plan and I hope they get things under control.
stu wrote:Hi ,
Sorry you have a rough day but you are a great responder to chemo and certainly in my mum’s case it took two years for most of disease to make itself know and be controlled .
Great that you tolerate chemo so well .
Hope the next cycle sorts it out for you .
Take care,
Stu
Punky44 wrote:Praying for you that your new plan brings you as much success as the first time!
Cmac1275 wrote:cartech78 wrote:Sorry to hear about these results. I posted to you awhile back about that Abbvie trial, My wife works there. I was at MSK when the Duke people were shadowing Dr.Kemeny earlier in the Month. What a small world. Im currently doing 3 rounds of FolFox here in Chicago and going back to MSK on Dec18th to see what surgery options i may have available if any. I also started my own little supplement regimen sorta under the table. Im taking 2g a day of Curcumin, 3g of Micronized Reservatrol, baby aspirin and considering another. Anyways I just wanted to wish you some luck with your new plan and I hope they get things under control.
Thank you, Cartech. Small world indeed. My oncologist was telling me how incredibly detailed and thorough Dr. Kemeny is. When my onc and I were discussing the possibility of Duke offering HAI, she cautioned me about the success rates at other hospitals that perform HAI implants. She said, Dr. Kemeney's results are basically unmatched. Having spent time with her in NYC, my onc understands why. That woman pioneered this treatment. Made a career out of it, actually. My onc told me she literally has binders upon binders of data, notes and algorithms to treat different situations. I'm glad a couple of MSK surgeons will be working with the oncology team here at Duke. Their experience will be key once they start performing the procedure.
I admit that I'm also considering using CBD/THC oils as well. It's hard to ignore the data suggesting real clinical benefit for cancer patients. But, I'm hopeful that this next round of chemo will resolve the lymph node inflammation so I can become eligible for HAI.
Side not on the supplements. I see a naturapathic doctor myself. She's cautioned me on taking Reservatrol during chemo. Data suggests it may interfere with the chemo treatments, apparently. Something to keep in mind in case you want to dig into.
cartech78 wrote:Cmac1275 wrote:cartech78 wrote:Good luck my friend.
rp1954 wrote:I hope that you are able to track some of the extra blood markers and panels that I've talked about, at least before and after any treatments, particularly CA199 (especially at least once), AFP, LDH, with hsCRP(and ESR) for an inflammation level(s). Also the trial is likely to be tracking more blood data, I would try to insist on all your personal blood data, especially after the administration period.
Cmac1275: ...I’m taking Curcumin, Fermented COD fish oil, Sulforaphane Glucosinolate, Modified Pectin Citrus, Vitamin D, Conium Maculatum, and loads of green tea.
If you list your supplement dosages, it will help our conversations distinguish usage between supportive amounts and cancer therapeutic amounts, for your benefit. Although I avoid "over advertisement", I did list many of ours early on (eg 2010) and discuss quantity in many areas since.
Cmac1275: ...a naturapathic doctor myself. She's cautioned me on taking Reservatrol during chemo. Data suggests it may interfere with the chemo treatments, apparently. Something to keep in mind in case you want to dig into.
If you could get more definite names or references from her, it might be important to you what basis she is reacting to.
Whether it is a series of animal experiments, what particular chemo molecules that might interact. We and other have used it for long times with 5FU (e.g. UFT, Xeloda) with good results. No so sure on data for oxi- and iri-.
Some papers:
Regulation of Cell Signaling Pathways and miRNAs by Resveratrol in Different Cancers
Resveratrol Oligomers for the Prevention and Treatment of Cancers
Resveratrol: A Double-Edged Sword in Health Benefits (despite its title, its pretty positive)
Resveratrol, a natural polyphenol, prevents chemotherapy-induced cognitive impairment: Involvement of cytokine modulation and neuroprotection
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Users browsing this forum: Google [Bot], Google Feedfetcher and 350 guests