2 full doses away from a break..

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Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

2 full doses away from a break..

Postby Mohrfamily » Wed Oct 31, 2018 11:49 am

I just wanted to say how proud I am of my husband. Today his potassium was low so they added it to his chemo 3.5 is the low normal his was 3.2 so not terrible. His liver numbers are all back to normal only 1 was a few points high. His platelets were a little low and he told me today his body is tired of chemo.

I am proud of his kick ass attitude he's had all summer May 29th to present every 2 weeks for hours of sitting in a chair getting chemo. His second scan showed slight and mild progress but the surgeon in Cleveland said he was doing great and it was reassuring. I am proud because after today he's only got 2 more rounds of regular chemo and his body is just now saying "dude I'm tired of this crap".

We found this cancer by way of a routine biometric screening everything was out of whack. In January he was pushing 290 pounds and now he's leveled off at high 220 low 230s he just retook that screening and I anxiously await the results to compare them.

I am proud of my husband and not that you need a stranger to say so but I'm proud of you for enduring the storm.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI
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Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: 2 full doses away from a break..

Postby Gravelyguy » Wed Oct 31, 2018 6:54 pm

That is such good news. Chemo is such a grind. I know it was so hard to go through the last rounds. Is he off the Vectibix? What is the plan after the break? Hopefully, things will have shrunk enough for surgery.

It is so wonderful how supportive you are. My wife was the same. I felt worse for her as she was forced to take on many jobs that should have been mine.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!
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Nohogirl
Posts: 116
Joined: Sun Oct 14, 2018 12:15 am

Re: 2 full doses away from a break..

Postby Nohogirl » Fri Nov 02, 2018 5:14 pm

That's great!. Wonderful progress.
04/18 DH 49 Stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm, including entire rectum out
Path -Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
10/18-02/19 8 cycles of Folfox
02/19 Pet Scan. NED
08/19 Pet Scan NED
08/19 Colonoscopy Clear
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stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: 2 full doses away from a break..

Postby stu » Fri Nov 02, 2018 5:43 pm

He has endured everything so well . Respite is essential. All the very best to you both .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
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Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Re: 2 full doses away from a break..

Postby Mohrfamily » Mon Nov 12, 2018 5:46 am

Gravelyguy wrote:That is such good news. Chemo is such a grind. I know it was so hard to go through the last rounds. Is he off the Vectibix? What is the plan after the break? Hopefully, things will have shrunk enough for surgery.

It is so wonderful how supportive you are. My wife was the same. I felt worse for her as she was forced to take on many jobs that should have been mine.

Dave


He is down 75% "power" on vectibix he still gets the rash but not as severe so he's had it 3x in a row now. He's got an MRI and CT scheduled the week after his last dose and we will head back to Cleveland to review and find out what's next from there. Over the last month the neuropathy in his hands had progressed and his feet about a week ago. But he's a trooper he'll bent on not leaving us anytime soon.
Last edited by Mohrfamily on Mon Nov 12, 2018 5:50 am, edited 1 time in total.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI
Top
Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Re: 2 full doses away from a break..

Postby Mohrfamily » Mon Nov 12, 2018 5:49 am

So last chemo day his potassium was a little low. And I got the results from his biometric screening and not as good as I was hoping. BP was about the same (yellow) all cholesterol levels were about the same (red) but his triglycerides were 847! His BMI was still red but his glucose, a1c, and waist circumference were all green. Help!
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI
Top
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