Need prayers

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Hopegirl
Posts: 55
Joined: Wed Nov 08, 2017 10:06 am
Location: Modesto ca

Need prayers

Postby Hopegirl » Thu Nov 08, 2018 1:27 am

Hi everyone. Haven’t post in awhile . I just had my 6 months CT scan today and won’t know the results for a few days . Feeling Nervous and lots of anxiety . I hate feeling scared , and stress just thinking about it so much. I Pray for Clear scans again
Please pray for me . Thank you
Diagnosed 10/11/17 at 46 years old . Now 48,4 kids 27,23, 13, 12
Colon cancer Stage 3b 5/26 lymph nodes positive
Surgery 10/19/17
Cea 0.6 11/15/17
Finished last Xeloda pills 6 cycles 4-10-2018
Did only 3 infusions of oxilaplatin due to bad neuropathy
5-8-2018 Cat Scan clear
5-8-18 Cea 0.6
5-10-18 Port removed
8-7-2018 Cea 0.7
11-13-2018 Clear Scan
11-13-2018 Cea 1.4
12-11-2018 Clean colonoscopy
3-13-2019 Cea 0.8
7-19-2019 Clean scan
7-19-2019 Cea 0.7
1-14-2020 Cea 0.5 :D
Pray for NED Always

Spazzyjanet
Posts: 54
Joined: Mon Oct 01, 2018 3:28 pm
Facebook Username: Heather Stoker

Re: Need prayers

Postby Spazzyjanet » Thu Nov 08, 2018 5:54 am

Sending you vibes for a positive outcome.
40 yr old, 3 kids. Dx 9/2018, Stage IV
KRAS G12V (resistant to Cetuximab)
CEA levels normal at diagnosis
4.2 cm Tumor, PT3, PN2B
11 of 18 with adenocarcinoma
+ removal of one cancerous node in Peritoneum.
9/2018, Colon resection and Ostomy-- Margins Negative
10/2018, PET shows 6 liver mets
10/2108, begin FOLFOX (Oxi+5 FU)
11/2018, MRI updates potential liver metastasis to 11 mets, both lobes.

Gravelyguy
Posts: 329
Joined: Thu Jul 05, 2018 6:03 pm

Re: Need prayers

Postby Gravelyguy » Thu Nov 08, 2018 7:17 am

Praying!
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!
6/17/20 clear scans CEA 1.1 still NED!

Nohogirl
Posts: 116
Joined: Sun Oct 14, 2018 12:15 am

Re: Need prayers

Postby Nohogirl » Thu Nov 08, 2018 9:42 am

Praying for you.
04/18 DH 49 Stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm, including entire rectum out
Path -Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
10/18-02/19 8 cycles of Folfox
02/19 Pet Scan. NED
08/19 Pet Scan NED
08/19 Colonoscopy Clear

margiej
Posts: 104
Joined: Sat Apr 14, 2018 8:46 am

Re: Need prayers

Postby margiej » Thu Nov 08, 2018 10:03 am

I was in your shoes two weeks ago. Sending you a ton of positive energy!
Margie
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/2017 and 1/2020
CT 10/3/17 clear
CT 10/17/18 clear
CT 10/17/19 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

dliu
Posts: 66
Joined: Sun Jun 03, 2018 7:16 am

Re: Need prayers

Postby dliu » Thu Nov 08, 2018 10:56 am

You are in my thoughts. Hoping for clear scans!
Caring for my mum, 65
Sigmoid resection, multiple liver mets
09/05/2018 Dx Stage IV, 6/11 LN - KRAS G12V
28/05/2018 First round of FOLFOX + Avastin

CEA down from 6000+ (05/2018) to 843 (08/2018) to 377 (11/2018)
9/10 rounds with Oxaliplatin
8/10 rounds with Bevacizumab

Maelleous
Posts: 125
Joined: Tue Nov 01, 2016 8:13 am
Location: FL

Re: Need prayers

Postby Maelleous » Thu Nov 08, 2018 11:01 am

Praying for you! We all know that feeling unfortunately!
M 35 yr
DX Rectal Cancer, 10/16 (symptoms Feb 2016)
Dx stage 2 - Surgery Oct 25 201 Loop ileo w/ j-pouch
Close margins within 1mm
9/38 lymph nodes involved on path / Stg IIIc,pT4, pN2 B, p.M0. MSS, K‐ras, NRAS, no mutation
Started Folfox - 3rd Treament, Dec 30th 2016 Cardiac Arrest - Lucky to be part of the 6% to survive!
S-ICD installed / Port Removed
Vaccine Clinical trial at UPMC - last shot June 2017
Reversal 8/1/17 - Praying this is it!
Still NED

Punky44
Posts: 451
Joined: Mon Oct 01, 2018 4:29 pm

Re: Need prayers

Postby Punky44 » Thu Nov 08, 2018 11:16 am

Sending prayers and good vibes your way!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: Need prayers

Postby Trying » Thu Nov 08, 2018 11:59 am

Sending good thoughts your way
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

thubler
Posts: 59
Joined: Tue Sep 27, 2016 9:22 am

Re: Need prayers

Postby thubler » Thu Nov 08, 2018 1:16 pm

Hello. Prayers coming your way for good scans! Im also a 3b with four kiddos! Waiting is definitely the worst!
III b CC @ 35 yoa.
two primary tumors on ascending/transverse stage 1 and stage 3.
Lynch Positive
Resection 05/16
2/41 nodes +
FOLFOX 6/16-11/20/16
Clear Endoscopy and Colonoscopy 12/6/16, 02/13/18,01/24/19,02/27/20
CT 02/07/17 enlarged mesenteric node.
Clear PET 02/15/17
Stable CT 06/05/17,10/16/17,04/02/18, 01/08/19, 01/14/20
Deported 11/03/17

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Need prayers

Postby juliej » Thu Nov 08, 2018 6:21 pm

Sending lots of prayers your way!!!

Hang in there! Waiting to hear scan results can be excruciating. Try to distract yourself by hanging out with your besties or doing something super-nice for yourself!

xo,
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

Lotus
Posts: 48
Joined: Thu Mar 29, 2018 10:03 pm

Re: Need prayers

Postby Lotus » Thu Nov 08, 2018 7:37 pm

Hopegirl
Waiting for results is the worst. There is so much power in prayer and you will certainly be in mine. I hope you can find ways to distract yourself. Please keep us posted
female age 72
3/21/18Colonoscopy. Dx "rectal mass" colonic adenocarcinoma
3/22/18 Ct scan no metastatic disease
4/1/18 MRI shows left lateral wall thickening of the rectosigmoid junction originating app 13 cm. from the anal verge. Overall lesion 3.5 cm. No progressive adjacent adenopathy.
Depth T2 no lymph node spread.
Stage 1 t2n0
3/22/18 CEA 0.8
10/24/18CEA 0.9
4/19/19 CEA 0.8
4/23/19 colonoscopy normal
4/16/18 Robotic Assisted LAR
Pathology negative for malignancy

Basil
Posts: 270
Joined: Thu Mar 16, 2017 12:33 pm

Re: Need prayers

Postby Basil » Thu Nov 08, 2018 9:03 pm

You’re going to be all good. Been there recently. Odds are greatly in favor of, “NED, see you later.”
40 y/o male, kids 8&11
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear

pantufla
Posts: 134
Joined: Thu Dec 03, 2015 12:44 pm
Facebook Username: kelleykulina

Re: Need prayers

Postby pantufla » Thu Nov 08, 2018 9:11 pm

Prayers going up.
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
10/3/16 CT scan clear.
11/10/17 CT: "Focal opacity along the left lower lung, 7 mm. Two small peripheral opacities along the right lower lobe, 2 to 3 mm. A few small to mildly prominent left-sided central mesenteric nodes, up to 13 mm.
June 2019: NED.

Hopegirl
Posts: 55
Joined: Wed Nov 08, 2017 10:06 am
Location: Modesto ca

Re: Need prayers

Postby Hopegirl » Fri Nov 09, 2018 2:20 am

THANK YOU so much everyone for your prayers. I really appreciated. I will let you guys know as soon as I know . Thanks again
Diagnosed 10/11/17 at 46 years old . Now 48,4 kids 27,23, 13, 12
Colon cancer Stage 3b 5/26 lymph nodes positive
Surgery 10/19/17
Cea 0.6 11/15/17
Finished last Xeloda pills 6 cycles 4-10-2018
Did only 3 infusions of oxilaplatin due to bad neuropathy
5-8-2018 Cat Scan clear
5-8-18 Cea 0.6
5-10-18 Port removed
8-7-2018 Cea 0.7
11-13-2018 Clear Scan
11-13-2018 Cea 1.4
12-11-2018 Clean colonoscopy
3-13-2019 Cea 0.8
7-19-2019 Clean scan
7-19-2019 Cea 0.7
1-14-2020 Cea 0.5 :D
Pray for NED Always


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