Hi folks, recently I had posted on another thread about several new liver mets that showed up only 2 months after liver resection. I had a biopsy on Monday, and it came back positive. I confirmed today that I am KRAS/MSS. I was tested for HER2 and that came back negative. Full Foundation One test is being ordered.
The disappointing part is that my surgeon now says there’s a very slim chance I would ever reach NED stage. I was told today I’m probably looking at continuous chemo moving forward.
That S-U-C-K-S.
Especially because everything was going extremely well. Until now. Not to mention my now unreliable CEA markers are totally normal.
On a related note, I was supposed to sign a consent form to start a Phase II trial from Abbvie. However, my onc wants to keep me on FOLFOX + Avastin because I did have a very good response to it for 6 rounds—which made liver resection possible in the first place. Plus, the doctor overseeing the trial said I might not get cleared to participate anyway.
Despite several “new” spots showing on my latest scans, they don’t know if all of them are truly new. It’s possible prior CTs missed them. The surgeon may have missed them too as they are quite small. Or, the microdisease was there and simply grew in the absence of chemo over the last 4 months. Therefore, they won’t necessarily consider my current diagnosis as real progression. You have to show quantifiable disease progression after taking FOLFOX/Avastin to qualify for the trial.
So for now, more FOLFOX/Avastin starting in a couple of weeks. Then re-staging. I suppose if we don’t like what we hear after this next round of chemo, we’ll start looking at other places like Memorial Sloan Kettering and MD Anderson for second and third opinions.
In the meantime, I’ve also setup an appointment in a couple of weeks with a naturopathic doctor to discuss adjuvant treatment with diet and supplements. It works for some. Maybe it will help me.
Thanks for letting me vent.