Jannine wrote:NHMike wrote:You might consider electric handwarmers to counteract the cold if the cold sensitivity or neuropathy becomes a problem.
That's a good idea; thanks. I am already considering buying legwarmers for cold weather, ha. I still associate legwarmers with the 1980s, but I think they're a good idea all the same.
I already have a heated footpad I keep under my desk because I tend to get cold in the winter. I'm sure that will help with my feet, when cool weather gets here.
boxhill wrote:lakeswim, I'm one round behind you on FOLFOX--#8 next week, assuming my platelets hold up--and the hair thinning thing is what I find hardest to deal with. I am TOLD that it stops falling out after #8. I sure hope so. Let us know what happens for you.
lakeswim wrote:Boxhill - I'm with you. I hesitate to even comb/brush my hair that much these days because it's so alarming to see all that hair. And, yes, in/after the shower is the worst. It just keeps coming - so many long strands. I wonder why this one side effect is so upsetting to me when I can choose so many other ones that affect me more.
lakeswim wrote:Jannine. I am so impressed with you. I think we are around the same age and FOLFOX really affects me - I can't imagine running or working out. (Then again, I haven't run in a year or two due to achilles problems I got training for triathlon a few years back and from fatigue that I thought was from perimenopause but now think may have been the cancer trying to talk to me - so you probably started out more fit than I did.) In fact, I couldn't even walk or even hold things in my hands during the weeks of Round 2 and Round 3 because the Oxaly made my hands and legs cramp up. Thank goodness they lowered my dose. (Still, I am lucky to get a walk. There's no way the gym was an option for me.)
Anyway, I see you discussed the belching and stomach discomfort. This is me! So, I am wondering about the CBD oil. (Though - I am about to do Round 7 of 8 and wonder if it matters at this point). It helps you? How do I get some? Is this a "special pharmacy" thing? Thanks for any tips.
Also, how do you get your Neulasta shot at home? I need to go get it in the hospital in the same (triggering) infusion suite where I get my chemo. (I'd rather not go there when I don't have to -but, then again,I can't imagine giving myself a shot.)
Just this round, the neuropathy is really noticeable. I now have a numb spot on my left foot that was numb briefly but, after being in our (actually, really warm) pool, it's been numb for hours now. Also, my hands generally feel weird when I touch things and walking barefoot is not comfortable. And, yes, I have been on the laptop now for a while and my hands feel weird after typing for a while. The cold neuropathy isn't remotely as noticeable as it was at first (on 100% dose) but I can see the regular neuropathy kicking in now. I hope it goes away. We will see.
My hair is drastically thinning. I am wondering how long this lasts because I am not sure what I will have left. I lose more every day.
I feel lucky to be doing FOLFOX during this hot summer! I live in a cold climate. I enjoy the cold but can't imagine dealing with it while on this treatment....
Jannine wrote:
Got my first mouth sore a week after disconnect from infusion #4 (2 days ago). Started doing the baking soda rinse religiously and it has healed up, thank goodness. Will make sure I do the baking soda rinse after chemo regularly from now on. So much to remember, ugh....
juliej wrote:Jannine wrote:
Got my first mouth sore a week after disconnect from infusion #4 (2 days ago). Started doing the baking soda rinse religiously and it has healed up, thank goodness. Will make sure I do the baking soda rinse after chemo regularly from now on. So much to remember, ugh....
You might try kefir for your mouth sores. Just take a sip and hold it in your mouth for a few minutes, making sure to swish it around everywhere. It has helped prevent mouth sores in many patients.
In case you aren't familiar with it, kefir is like a yogurt shake. It's available in most grocery stores. Lifeway and Helios are both good brands.
Hope this helps!
Juliej
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