Good news!

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Mohrfamily
Posts: 47
Joined: Tue May 22, 2018 4:04 pm

Good news!

Postby Mohrfamily » Fri Aug 17, 2018 4:48 am

So the new scans show the liver mets are shrinking! We are talking between 1-2 cm down from scans done in April!
They noted even a slight decrease in the colon!

The oncologist finally showed us the CEA and its still to high to measure but the hope is to see it come down although on here I have heard many different views on CEA so not letting it get me down. A couple months ago the doctor said my husband was inoperable now she is suggesting we call up to Cleveland clinic to talk to a liver surgeon!

Thanking God, and all of your for providing wisdom and support.
DH dx officially stage IV with liver mets
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.

rtcasper
Posts: 43
Joined: Sat Aug 04, 2018 12:12 pm
Location: Ohio

Re: Good news!

Postby rtcasper » Fri Aug 17, 2018 6:00 am

That is wonderful news! Please keep us up to date on everything and I'll continue to keep you in my prayers. Best of luck.
By the glory, by the grace, by the strength of God, I will be made whole.

43-M
Aug 3, 18-colonoscopy, 5cm mass 12cm from AV rectal cancer
Aug 16-MRI
Aug 17-CT,chest and pelvis
CEA-.99-likely not a good marker
Clinical DX-T2/T3n1 -3cm mass, 13.5 from AV-might be colon? - let surgeon make determination
Sept 10-14 radiation
Sept 25-CR lap surgery, temp loop ileostomy
Oct 2-path stage pT1N0M0

Gravelyguy
Posts: 76
Joined: Thu Jul 05, 2018 6:03 pm

Re: Good news!

Postby Gravelyguy » Fri Aug 17, 2018 6:42 am

That is great news indeed!

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 very small liver Mets

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection
11/17-3/18 8 rounds Folfox
6/18 NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12 clear scans, CEA .9 still NED!

martd
Posts: 61
Joined: Tue Nov 21, 2017 3:48 pm

Re: Good news!

Postby martd » Fri Aug 17, 2018 9:40 am

Right on! Very good news indeed!!
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT
12 rounds folfox , avastin / oxi
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7

boxhill
Posts: 125
Joined: Fri Apr 06, 2018 11:40 am

Re: Good news!

Postby boxhill » Fri Aug 17, 2018 9:53 am

Great news! I can't recall: did your H have his primary tumor removed, so that it was just the liver mets that were considered inoperable?
F, 64 at DX CRC Stage IV (or "3 1/2" per Dana Farber consult, LOL)
3/17/18 blockage, emergency surgery, r hemicolectomy
11 of 25 nodes
5 of 5 mesentery nodes, matted
0.5 cm sub-capsular liver met removed
pT3 pN2b pM1
Neg CEA, neg BRAF, KRAS G12D, germline mut ATM
dMMR, MSI-H, Neg for Lynch
5/4/18 FOLFOX
Added Neulasta 6/28/18
7/9/18 CT scans show no masses or enlarged nodes, 2mm indeterminate lung nodule
11/20/18 CT scans NED. Lung nodule likely calcified granuloma. Enlarged spleen.

Mohrfamily
Posts: 47
Joined: Tue May 22, 2018 4:04 pm

Re: Good news!

Postby Mohrfamily » Fri Aug 17, 2018 10:17 am

The doctor said he was inoperable with the amount of disease on his liver, before yesterday.

I feel like if he'd been able to continue vectibix without having to stop every 2 weeks things would be even smaller.

He's not had any resecting done yet anywhere
DH dx officially stage IV with liver mets
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.

child#6
Posts: 30
Joined: Wed May 16, 2018 7:51 pm
Facebook Username: John Smith

Re: Good news!

Postby child#6 » Fri Aug 17, 2018 8:28 pm

Awesome news! Take a breath. Wishing you all the best. This place is so wonderful. So many people with loads of info and hope!

DarknessEmbraced
Posts: 3182
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Good news!

Postby DarknessEmbraced » Sat Aug 18, 2018 8:53 am

That's wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

teacher2017
Posts: 210
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: Good news!

Postby teacher2017 » Sat Aug 18, 2018 1:46 pm

Awesome! Operable is a beautiful thing!
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18
Cea level- 1.5 10/1/18
Cea level- 1.2 12/1/18
Clear scan- 12/5/18

NHMike
Posts: 1837
Joined: Fri Jul 21, 2017 3:43 am

Re: Good news!

Postby NHMike » Sun Aug 19, 2018 8:44 am

Good to hear and hoping that they get to resectable or vanish altogether.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

Mohrfamily
Posts: 47
Joined: Tue May 22, 2018 4:04 pm

Re: Good news!

Postby Mohrfamily » Tue Sep 11, 2018 5:20 pm

I am happy to share that DHs, AST ALT and Alkaline Phosphate numbers are all back to or 8 points from normal ranges.

He has done 2 back to back rounds of vectibix and hating every bit of the rash. He talked them into adjusting the dosage to 75% but it's pretty bad and he's not sure he could fight them on it if they say he needs a break from it.

We've seen 1-2 centimetres of shrinkage of leisons on the liver and slight/mild decrease in the colon. Continued prayers and good vibes!
DH dx officially stage IV with liver mets
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.

heiders33
Posts: 310
Joined: Sat Nov 04, 2017 11:08 am

Re: Good news!

Postby heiders33 » Tue Sep 11, 2018 6:43 pm

Can you tell me more about the rash side effect? I don’t know much about it except it shows up on the face and chest. I might be doing Vectibix.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, KRAS G12A
June-July 2017: 28 days of XEL/radiation
Sep 2017: laparoscopic LAR/loop ileostomy
Oct 2017 - February 2018: XELOX six rounds
Mar 2018: reversal
Apr 2018: CEA 2.1, normal blood counts
May 2018: CT liver spot
Aug 2018: Abnormal PET, CEA 2.4
Sep 2018: robotic and laparoscopic liver resection with HAI pump
Oct 2018: Clear CT and colonoscopy, CEA 1.7, begin six months FUDR and FOLFIRI

mhf1986
Posts: 158
Joined: Sat Mar 11, 2017 8:30 pm
Location: near DC

Re: Good news!

Postby mhf1986 » Tue Sep 11, 2018 8:02 pm

DH has been doing Vectibex since May. First session was nothing and then boom...his face looked like really bad acne, complete with white/yellow zits. Red dots spread to chest and back. It has calmed down now some since he's learned how to take care of it.

He has learned several lessons: don't pick at the pimples! They'll bleed and create nasty scabs. Don't use acne cream or harsh soap. DO slather on sunscreen when going outside and DO wear a hat. DO use a moisturizer in the morning and in the evening. He's used Jack Black brand and Nivea on the face with Aveeno and/or Eucerin on the chest and back. Like all over and a lot of it.

The doctor gave him a prescription for a gel which he puts on too and an antibiotic which he takes for the week after treatment.

Onward,
M
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials
11/19/18 Peace

Mohrfamily
Posts: 47
Joined: Tue May 22, 2018 4:04 pm

Re: Good news!

Postby Mohrfamily » Wed Sep 19, 2018 10:11 am

DH CEA dropped last month was 1573 after not being able to read it since May and is down to 623!
DH dx officially stage IV with liver mets
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.


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