dauofcamom wrote:...
Does anyone have any idea what might be going on??
O Stoma Mia wrote:dauofcamom wrote:...
Does anyone have any idea what might be going on??
It might be DPD deficiency. Has she been tested for DPD?
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=43901&p=314059#p314059
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http://www.dpd-deficiency.com
SteveNZ wrote:YUK...!?
This has alarmed me a bit as I had similar reactions to Xeloda and then had the TIA.
I am no Dr but am being careful as especially the chest pains, sweating away at night, breathing hardship (nothing drastic but an ever present extra force required) were real. And even now, for quite a while after the chemo the chest/breathing pains are real. The good news is that my heart is in great shape as they assumed this was causing the chest pains and thoroughly checked me out.
But I am epileptic so a few of the other symptoms (tingling, sometimes shaking, memory loss) are quite normal for my medication.
Thanks for introducing this topic. My chemo specialist took me off Xeloda as soon as he heard the word 'chest pain'.
Again I need to advise I am no Doctor but this topic has given me the right questions to ask.
PS- Interestingly enough I have just read that DPD (the enzymes involved/lacking) are also linked to some forms of epilepsy. Enough for me to ask questions?
dauofcamom wrote:My mom finished her first round of Xelox regime last Wednesday. On the last three or so days of the pills she really had a hard time eating or drinking anything. Then on Sunday she was having abdominal pains that were severe enough for the on-call oncologist to tell her to go to urgent care. Urgent Care sent her to the ER and she's been in the hospital since then. Her blood work and vitals are good and she had two CT scans that showed mild inflammation in her small intestine but nothing else.
Her oncologist thinks it's an adverse reaction to the capecitabine. It's been five days and my mom is still in severe abdominal pain and they are keeping her on pain meds. My mom is very sleepy and can hardly stay awake. I spoke with her this morning and she was talking nonsense. She is very confused. I'm not sure if it's the pain meds or if something else is going on. She had a CT scan of her head this afternoon but we don't know the results yet. She was dehydrated when she was admitted and she is very weak. I know they are keeping her hydrated and are aware she hasn't eaten.
Does anyone have any idea what might be going on?? I'm getting really worried. I live on the opposite coast and I flew out and have been with her for two months, since her diagnosis. I just came back home Friday and then this happened Sunday. I am worried sick. I have been in limited contact with her treating physician at the hospital and her oncology nurse because it's so hard to get a hold of them. All I can do is leave a message and wait for someone to call me back. I do know the two doctors are talking but it's hard to get any solid information from anyone. Does anyone know how long this might last?
My brother and aunt and I have been talking and not sure if mom should even continue the chemo at this point. My mom already told my brother she doesn't want to do it anymore. We just don't know what to do. I have never felt so helpless.
I would be shocked if a doctor didn't order this test as it's likely standard of care as it can result in patient death.
dauofcamom wrote:My mom finished her first round of Xelox regime last Wednesday. On the last three or so days of the pills she really had a hard time eating or drinking anything. Then on Sunday she was having abdominal pains that were severe enough for the on-call oncologist to tell her to go to urgent care. Urgent Care sent her to the ER and she's been in the hospital since then. Her blood work and vitals are good and she had two CT scans that showed mild inflammation in her small intestine but nothing else.
Her oncologist thinks it's an adverse reaction to the capecitabine. It's been five days and my mom is still in severe abdominal pain and they are keeping her on pain meds. My mom is very sleepy and can hardly stay awake. I spoke with her this morning and she was talking nonsense. She is very confused. I'm not sure if it's the pain meds or if something else is going on. She had a CT scan of her head this afternoon but we don't know the results yet. She was dehydrated when she was admitted and she is very weak. I know they are keeping her hydrated and are aware she hasn't eaten.
Does anyone have any idea what might be going on?? I'm getting really worried. I live on the opposite coast and I flew out and have been with her for two months, since her diagnosis. I just came back home Friday and then this happened Sunday. I am worried sick. I have been in limited contact with her treating physician at the hospital and her oncology nurse because it's so hard to get a hold of them. All I can do is leave a message and wait for someone to call me back. I do know the two doctors are talking but it's hard to get any solid information from anyone. Does anyone know how long this might last?
My brother and aunt and I have been talking and not sure if mom should even continue the chemo at this point. My mom already told my brother she doesn't want to do it anymore. We just don't know what to do. I have never felt so helpless.
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