Stage IV...NED....AGAIN

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crazylife
Posts: 255
Joined: Wed Dec 30, 2015 11:29 am

Stage IV...NED....AGAIN

Postby crazylife » Thu May 24, 2018 6:45 pm

DH is NED 4 months after his last lung surgery. 5 lung nodules removed between the left and right lung.

Hoping for a nice long stretch this time or even NED forever!
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

Geoman
Posts: 19
Joined: Sun Apr 29, 2018 8:48 pm

Re: Stage IV...NED....AGAIN

Postby Geoman » Thu May 24, 2018 8:02 pm

Great news! Congratulations.

What type of surgery was utilized on the lungs. (Vats, etc).

Thanks
Dx @ 44, rectal cancer-stage 4 with Mets to liver 8/16
CEA 19
Kras g12d; Braf
Ypt3,ypN1a,ypM1
5 rounds 5fu with avastin (4) 9/16-11/16
PVE/Liver Resection 12/16
28 days rad/xeloda 2/17-3/17
APR-4/17
Clear Margins
7 rounds 5Fu with avastin- 5/17-8/17
CEA-1.2
NED-12/17, 1/18,
Multiple spots in lungs-5/18

jep
Posts: 256
Joined: Sun Jun 11, 2017 7:45 pm
Location: New England, USA

Re: Stage IV...NED....AGAIN

Postby jep » Thu May 24, 2018 8:14 pm

Yes! So great to hear news like this!
Stage IV CC 5/16/17
Loc: recto-sig
Type: Adenocarcinoma
Size: 7.4 cm
Grade: G3
TNM: T3N2M1
LNs: 8/20
BL CEA: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps
PET 10/17/18: 3 pos LNs
Irino + Vecti (11/18)
CEA: 1.7 (2/19)
Xel + rad (5/19)
Surgery: 8/21/19 (aborted)
P1 Trial 10/19 - 12/19
Bypass 12/6/19
Folfox + vecti 1/2/19 - 4/3/20
Kid Fail 5/1/20
Folfiri + Avastin 5/20 - 6/20
bypass 6/29/20
Stivarga 7/18/20 -
Home 9/10/20

crazylife
Posts: 255
Joined: Wed Dec 30, 2015 11:29 am

Re: Stage IV...NED....AGAIN

Postby crazylife » Thu May 24, 2018 8:53 pm

Geoman wrote:Great news! Congratulations.

What type of surgery was utilized on the lungs. (Vats, etc).

Thanks


I am not sure. I know they did a few wedge resections and did take an entire lobe from the right. He lost about 35 percent lung capacity. We are told his body will adjust to it and we slowly see it happening.
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

stu
Posts: 1383
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage IV...NED....AGAIN

Postby stu » Fri May 25, 2018 2:36 am

Enjoy and I hope it last a long time too.
Take care,
Court
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

stu
Posts: 1383
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage IV...NED....AGAIN

Postby stu » Fri May 25, 2018 2:36 am

Enjoy and I hope it last a long time too.
Take care,
Stu
Last edited by stu on Fri May 25, 2018 2:37 am, edited 1 time in total.
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

DarknessEmbraced
Posts: 3499
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Stage IV...NED....AGAIN

Postby DarknessEmbraced » Mon May 28, 2018 3:10 pm

Congratulations! That's wonderful news!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Beccaschocked
Posts: 39
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: Stage IV...NED....AGAIN

Postby Beccaschocked » Fri Jun 01, 2018 7:09 pm

Congrats! I’m approaching my 6 month scan from lung recurrence resection. This news helped brighten my day :)

Sending good vibes and prayers for forever NED!
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection; 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.; 1.0; 1.1; 1.1; 0.9
7/18, 1/19, 7/19 clean scans NED

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Stage IV...NED....AGAIN

Postby LPL » Fri Jun 01, 2018 7:24 pm

Such Good News :) Congratulations :!:
Hoping you will have many more good scans!!
Kind regards /LPL
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Stage IV...NED....AGAIN

Postby teri3 » Sun Jun 03, 2018 9:02 am

Wow what wonderful news! Prayers for a long term NED.

Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

RulaLenska
Posts: 24
Joined: Fri May 04, 2018 8:13 pm

Re: Stage IV...NED....AGAIN

Postby RulaLenska » Sun Jun 03, 2018 9:10 am

Fantastic! It must feel amazing to hear NED.
Cyn
Dx 8/16 IV stage with mets to lungs liver adrenals
KRAS wt MSS CEA over 400
2 x folfori caused refractory diarrhea but dropped CEA to 200
Switched to folfox stopped after 10 due to neuropathy
Avastin leucorvorin 5fu dropped after 11 due to hfs
Chemo break to travel.
Nov. 2017 emergency sleeve colectomy of primary tumor.
Vectibix irinotecan
PET scan shows no lung or adrenal tumors
5/2 Portal Vein Embolisation in preparation for liver resection.
6/12 extended right resection removing 60%.


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