Is it an ovarian cyst or a potential ovarian met?

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lovelife789
Posts: 114
Joined: Thu Aug 24, 2017 5:28 am

Is it an ovarian cyst or a potential ovarian met?

Postby lovelife789 » Sun Apr 01, 2018 10:35 am

Hey all,

Just one question to all who have ovary mets. I had my quarterly scan last week and they found im all clear except a 2.5cm ovarian cyst and a uterus fibroid. The fibroid has always been there but the cyst is new. My period stopped during chemo and have just resumed normal in the last two months.

My PET in January didn't pick up any met in my ovary (but I also did not have my period back then), but I know there are different types of cysts and some can turn cancerous. My current doctor is an expert of liver surgery . He felt inadequate to offer any professional advice on the cyst... he said he trusts since my PET didn't pick up anything and my CEA is normal, it's probably nothing. But he did suggest I go to an OBGYN to have it checked out to give myself peace of mind.

I have scheduled an appt with my OBGYN, what kind of things should I ask her? To do an ultrasound to determine what's the cyst about?

Thanks a lot for your help in advance!!! Any info would help!
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
Aug - VATs done, colon met cfm

heiders33
Posts: 285
Joined: Sat Nov 04, 2017 11:08 am

Re: Is it an ovarian cyst or a potential ovarian met?

Postby heiders33 » Sun Apr 01, 2018 12:25 pm

I had a pelvic ultrasound done last summer and it found an ovarian cyst but my OB GYN said nothing to worry about. This was after I finished my initial regimen of chemo and radiation. It’s probably a good idea to get the ultrasound just to be sure. I didn’t ask too many questions of my doctor, I just trusted what she said. Maybe others could chime in with questions to ask. But I feel like I remember her saying it could have been treatment-related.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, KRAS
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR with loop ileostomy
October 2017 - February 2018: XELOX six rounds
March 2018: reversal
April 2018: CEA 2.1, all blood counts normal
May 2018: CT scan showed liver spot
August 2018: Abnormal PET, CEA 2.4
September 2018: liver resection with HAI pump

User avatar
Atoq
Posts: 311
Joined: Wed Oct 25, 2017 9:31 am

Re: Is it an ovarian cyst or a potential ovarian met?

Postby Atoq » Sun Apr 01, 2018 1:28 pm

I had a 10 cm ovarian cyst and the gynecolog was able to detemine that it was not cancerous by an ultrasound. It was then removed and the pathologist confirmed it was only full of water.

Best

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

LisaMargo
Posts: 21
Joined: Sun Feb 26, 2017 10:26 pm

Re: Is it an ovarian cyst or a potential ovarian met?

Postby LisaMargo » Sun Apr 01, 2018 5:58 pm

Hi, I also understand that they can tell from the ultrasound what type of cyst it is.
Best of luck
LM
20 feb 17 Went in for a colonoscopy, woke up with cancer
21 feb 17 LAR descending colon, Stage 3c
27 mar 17 port in
29 mar 17: 12 sessions FOLFOX.
51 yo F, married with 3 teenage girls

debb
Posts: 161
Joined: Sun Dec 21, 2008 9:03 pm
Location: NJ

Re: Is it an ovarian cyst or a potential ovarian met?

Postby debb » Mon Apr 02, 2018 10:12 am

Definitely go to your gyn and get an ultrasound. I would actually advise that you ask for two, during two different cycles totrack for changes. I did that, and nothing was changing and docs said it was just a complex cyst. I thought about it and went back and said take it out please. I didn't need it and I didn't want to worry about it any more.

The doc told me before surgery if it was nothing he would remove the cyst, if it was ovarian, they'd do a hysterectomy, and if it was colon, he'd take both ovaries. I woke from surgery and before my doc came in, I asked the nurse, what happened. She said I'd had both ovaries removed. Colon cancer met.

Please follow up, and trust your instinct. Good luck!!
Stage 3C, Dx at 42, mom of 4
Colon resection 7/08
Folfox 9/08-2/09
Met to right ovary, both ovaries removed 7/10
HIPEC 8/10
VATS 7/12, 2 nodes, right lung
10/14 3 lung nodes, Stivarga clinical trial
3/15-7/15 Folfiri & avastin for lung things
Break! One year of freedom
8/16 Folfiri & avastin..lung things again
Break! 10 months of freedom
1/18 rib mets, radiation, folfiri & avastin

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Is it an ovarian cyst or a potential ovarian met?

Postby Aqx99 » Mon Apr 02, 2018 1:35 pm

Get it checked out. My surgeon removed my ovaries and fallopian tubes during my LAR because they "didn't look right." Pathology came back as ovarian cancer. I am now monitored by a gyn oncologist in addition to my medical oncologist.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

lovelife789
Posts: 114
Joined: Thu Aug 24, 2017 5:28 am

Re: Is it an ovarian cyst or a potential ovarian met?

Postby lovelife789 » Tue Apr 03, 2018 1:53 am

Thank you so much everybody!!! Wow, I actually debated about whether or not I should post something here asking for help! I should have done it right away!

After my lead doctor said the MRI reported just a 2.5cm ovarian cyst, it should be nothing big, probably just a cyst with water inside. But when he added "You can go to an OBGYN if you wanna be on the safe side", it got me alarmed. So me being Stage IV, he is asking "if" I wanna be on the safe side?? :evil: I worked so hard to beat this monster, I want to be on the absolute safest side! :? :?

Since I have seen everybody's response, I have called a lot of OBGYN's clinics with most of the doctors away during Easter break :( ... I was gonna just wait around until next week when more doctors are back (including my usual one). But now I feel like I want to have an ultrasound now!!
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
Aug - VATs done, colon met cfm

lovelife789
Posts: 114
Joined: Thu Aug 24, 2017 5:28 am

Re: Is it an ovarian cyst or a potential ovarian met?

Postby lovelife789 » Tue Apr 03, 2018 1:54 am

My surgeon removed my ovaries and fallopian tubes during my LAR because they "didn't look right.


Didn't look right.... did it show in your PET scan? or CEA? or any sign?
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
Aug - VATs done, colon met cfm

lovelife789
Posts: 114
Joined: Thu Aug 24, 2017 5:28 am

Re: Is it an ovarian cyst or a potential ovarian met?

Postby lovelife789 » Tue Apr 03, 2018 2:01 am

during two different cycles totrack for changes. I did that, and nothing was changing and docs said it was just a complex cyst


This is exactly the point I was thinking about - a complex cyst or what cyst. There are different types of cysts, aren't there? :!:

I called one OBGYN's clinic and I probably had one of the rudest nurses. I asked for an appointment and I told her briefly I have Colon Ca and from my last MRI scan, it showed there's a 2.5cm ovarian cyst which didn't exist in my previous MRI or PET scan. The doc asked me to find an OBGYN to look into it. She laughed, literally laughed and said MRI should have a clearer image than an ultrasound, so for me to see my MRI report saying it's a cyst, then it's a cyst. Ultrasound isn't gonna clarify anything. She gave me a time slot that comes in a month's time. :evil:

I was gonna argue with her about types of cysts and that she shouldn't talk to patients like that, but I didn't want her negative vibes getting to me, I just quietly said thank you, goodbye and hung up. :cry:
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
Aug - VATs done, colon met cfm

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Is it an ovarian cyst or a potential ovarian met?

Postby Aqx99 » Tue Apr 03, 2018 3:41 am

lovelife789 wrote:
My surgeon removed my ovaries and fallopian tubes during my LAR because they "didn't look right.


Didn't look right.... did it show in your PET scan? or CEA? or any sign?


No, he was literally looking at my ovaries while doing my surgery. He called out to the waiting room and talked to my mom about having to remove them, since it was not part of the original plan. My CEA is not a good indicator of colorectal cancer for me, since it was 0.9 at diagnosis. Besides, CEA would not show ovarian cancer. I am tested for CA-125 now, but do not have a level at diagnosis since my ovaries were removed by the time we knew to test me for it.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

Nicolouna
Posts: 30
Joined: Fri Nov 08, 2013 6:30 pm

Re: Is it an ovarian cyst or a potential ovarian met?

Postby Nicolouna » Thu Apr 12, 2018 1:31 am

Please get a second opinion. MRIs and CTs are not as accurate as vaginal ultrasounds to image the ovaries. I had a CT scan last year that showed cysts in both ovaries. It was followed up with an ultrasound that showed just one large cyst on my left ovary but they thought it looked like hyperstimulation of the follicles. The gyne wasn’t convinced so he sent me for a second opinion. That doc didn’t think the ovary looked normal but could not tell from the ultrasound whether it was cancerous or not. He said he had patients with similar presentations who just waited it out and the cyst disappeared. In my case, because of my history of cancer, he recommended I have my entire left ovary and tube removed. Turns out it was a malignant cyst. They are still trying to figure out if it’s a new primary or a met from the colon. All this to say, please push for more testing. I wish you the best.
Diagnosed @ 27, female w colon cancer (T4N0M0)
Right hemicolectomy -Aug 2013
FOLFOX - Oct 2013 - April 2014
May 2016 - had a baby ❤️
June 2017 - L ovarian malignancy (L ovary and tube removed) - ?met unsure
July 2017 - ?met to duodenum/pancreas
Started FOLFIRI Aug 2017
Dec 2017 - Whipple’s surgery. 1/36 lymph nodes+, treating it as mCRC - pathology not quite the same as original tumor
Scans postop - declared NED
Continuing FOLFIRI (12 cycles total) until May 2018
What a journey....

lovelife789
Posts: 114
Joined: Thu Aug 24, 2017 5:28 am

Re: Is it an ovarian cyst or a potential ovarian met?

Postby lovelife789 » Fri Apr 20, 2018 11:22 am

Hello all,

Just reporting back to everybody who has shared your experience with me. Thanks to your advice, I did locate a very experienced OBGYN to check on my scans and did a thorough virginal ultrasound on me.

Not only did the cyst become smaller, he is also quite confident it's a simple cyst with very clear fluid and nothing to be of concern. He recommends a check back in 6 months or earlier if my next MRI shows difference in size or look in the scan.

It was a relief and I'm glad I found a really good doctor who was caring and listened to me very carefully. Thank you so much and I keep you all in my prayers.
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
Aug - VATs done, colon met cfm

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Is it an ovarian cyst or a potential ovarian met?

Postby Aqx99 » Fri Apr 20, 2018 2:14 pm

lovelife789 wrote:Hello all,

Just reporting back to everybody who has shared your experience with me. Thanks to your advice, I did locate a very experienced OBGYN to check on my scans and did a thorough virginal ultrasound on me.

Not only did the cyst become smaller, he is also quite confident it's a simple cyst with very clear fluid and nothing to be of concern. He recommends a check back in 6 months or earlier if my next MRI shows difference in size or look in the scan.

It was a relief and I'm glad I found a really good doctor who was caring and listened to me very carefully. Thank you so much and I keep you all in my prayers.


So glad to hear this. I'm sure it is a huge weight off your mind!
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

menreeq
Posts: 66
Joined: Fri Jun 30, 2017 10:26 am

Re: Is it an ovarian cyst or a potential ovarian met?

Postby menreeq » Sun Apr 22, 2018 12:06 am

Sounds like question has been answered, but in case someone sees this in the archive...

MRI is better than US for evaluation of ovarian masses and cysts, but MRI protocols for surveillance of colon cancer are typically different than protocols that evaluate the “female pelvis” (uterine, ovarian, adnexal lesions). When there is a concerning lesion on US, the next step is usually MRI tailored for those structures.

Simple cysts are typically benign. They have characteristic appearances on US and MRI. Complex cysts can be benign or malignant.
Stage IIA rectosigmoid CC (T3N0M0)
Dx 6/5/17 @age 41, mom to 5 & 2yo girls
Workup: c-scope, EUS, rectal MRI, CT C/A/P
AdenoCA 5.5cm, WHO Grade 2, 0/22 LN, no distant mets
CEA 1.9 (6/5/17), 0.8 (2/28/18)
No lymphovasc/perineural invasion, clear margins
MSI intact, OncotypeDx RS 7
Lap sig colectomy 6/23/17, no ileo/colostomy
Genetics counseling negative for mutations, 4 VUS
Xeloda monotherapy 8/13/17-1/22/18
PET/CT 3/21/18 NED


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