Jack&KatiesMommy wrote:Hi there!
I had the HAI pump to administer chemo to my liver WHILE I continued with systemic chemo. (The liver mets are the dngerous ones....they are the ones that you have to get under control.) I take it that your Mom's oncologisit thinks she sin't a candidate for a liver resection. I would get at least one other opinion on that. (Are youclose to NYC? Memorial Slaon Kettering is a great facility when dealing with liver mets.) I also have had 8 RFA procedures to small mets in my lungs (some had to be done several times as they were not completely erradicated with the first rfa procedure.) I guess the most important thing is to be sure that you ahve an oncologist that is working toward curing and/or extending your Mom's life as long as possible and is opent o using a multidisciplinary approach to do it....not just stick to standard chemotherapy protocols (whch we know will not cure her.)
Cynthia
Tnguyen wrote:Thank you for everyone concern and advice! Our onc is really sweet and the reason we picked him was due to his caring personality. But I will definetly look for more opinion if he's not willing to look pass the standard treatments!
Jack&KatiesMommy wrote: I also have had 8 RFA procedures to small mets in my lungs (some had to be done several times as they were not completely erradicated with the first rfa procedure.)
Cynthia
MaiaW wrote:Tnguyen, maybe your mom could consider some immunotherapy trial --at the moment, immunotherapies are not standard of care for colon cancer, but there are already good results, in some cases (as you can see even reading about some fellows in this board). There are several types; Emory has a good clinical trials unit, so the doctors there surely will be able to guide you:
https://winshipcancer.emory.edu/patient ... index.html
"call (404) 778-1868 or send an email to winshipcto@emory.edu"
These might be some of the trials pertinent for your mom:
A Study of Nivolumab and Nivolumab Plus Ipilimumab in Recurrent and Metastatic Colon Cancer (CheckMate 142) https://clinicaltrials.gov/ct2/show/study/NCT02060188
(it's for both, MSI-H and non-H (i.e., MSS)
Emory University Recruiting
Atlanta, Georgia, United States, 30322
Contact: Bassel El-Rayes, Site 0008 404-778-1900
Phase 1/1b Study to Evaluate the Safety and Tolerability of CPI-444 Alone and in Combination With Atezolizumab in Advanced Cancers https://clinicaltrials.gov/ct2/show/study/NCT02655822
Winship Cancer Institute of Emory University Recruiting
Atlanta, Georgia, United States, 30322
Principal Investigator: Taofeek Owonikoko, MD
The following is not mainly immunotherapy but it's very interesting, since it's an initiative of the National Cancer Institute (NCI); it involves genetic testing for targeted therapy (many locations; I invite other persons, in other locations, to consider this one):
NCI-MATCH: Targeted Therapy Directed by Genetic Testing in Treating Patients With Advanced Refractory Solid Tumors or Lymphomas https://clinicaltrials.gov/ct2/show/study/NCT02465060
About immuno at Emory: http://news.emory.edu/stories/2016/07/h ... ampus.html
How immunotherapy differs from chemotherapy: https://www.youtube.com/watch?v=OhJyBWjcpvA
Tnguyen wrote: Thank you so much for all the information and links.(...)I'll definetly look into these and I'm also very interested in immunotherapy
Nik Colon wrote:If you put all the details in your signature (you can click the link in mine) about dx, tx, etc, it will help people be able to help more since there are different posts. We can then see it all on any post you make.
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