Postby CAGirl » Thu Mar 08, 2018 2:17 pm
After seeing your other posts and comments, I can see you are really worried about missed metastasis (rightfully so -- and I am so sorry about your mom.)
I love and trust my oncologist immensely. When I told him I was having severe, debilitating back pain, he assured me it would be too soon for anything to have spread to my bones (it was a quick onset of pain, following chemo.) Still, he recommended I follow up with primary care doc for Xray, and he agreed to push up my CT Scan a month. I do believe mine was normal 46-year-old woman back troubles, probably exacerbated by stress and chemo.
However, your pain has been with you since your CRC symptoms, AND it wakes you up at night. I am not sure if the Xray would show bone mets (anyone?), though my primary care doc seemed to think the Xray ruled it out for me (CT scan confirmed, though.) Plus, back pain cleared up.
I do think that if your oncologist is not taking your concerns seriously, though, you might consider changing and/or a second opinion? You want to be heard. Or -- tell him you want... what? a PET or CT Scan? -- of your leg. And tell him it will be on him if it has spread and he ignores you now. (I mean, not threatening, but helping him realize his responsibility in all this.)
Definitely be proactive.
Sure hope you feel better!
Dx 2/2017, age 45, 2 kids: 6 yrs & 3 yrs
History of Crohn's disease - dx in 1997; in remission, thus no colonoscopy in over 10 years
Anemia dx 11/16: GI doc assured me "the likelihood of colon cancer" was "very low".
Stage 3C - T3N2b
8/64 lymph nodes; clear margins surgery 3/17
12 cycles of Folfox 4/17-9/17
3-month CT scan midway through chemo, no changes
2-3-mo CT scan post chemo 11/17 slightly larger lung nod (incr. from 7mm to 8 or 9mm)
CT scan 3/18 - NED
clear CT scan 1/2019 NED