Just back from a trip to DC and it's my first trip since surgery so I had to manage the Illeostomy and I had to change the bag once. I brought three bags with me, the one that works really well (Convatec Convex), a Convatec Flat and a Coloplast Mio which I don't know how to use. So I had two backups in case I had a problem. I also carried one in my backpack and the other two in my small bag in case I lost one.
We took Amtrak as I didn't want to deal with the TSA and my port and appliance which turned out to be a good decision because of the weather problems on the East Coast. Amtrak was pretty simple going as there were plenty of bathrooms and they were functional and the train didn't have a lot of people on it. Coming back, it was more difficult because many of the bathrooms were locked (out-of-order I assume) and the few that were open didn't have toilet paper. I noticed that the bathrooms in Union Station weren't in great shape. Many didn't have functional locking mechanisms and many didn't have toilet paper dispensers. That is they were broken off and removed. So I always bring my own when traveling and that worked out.
I was fairly exhausted last night and assessed the amount of work to deal with snow and ice and went to bed. Carrying luggage all over the place and lifting it up and taking it down was a lot of work. I got up at 8, did a little work clearing snow and icicles off the roof, dug out a car, took a shower and went to work. So I'm physically tired but mentally in good shape. Now I need to take care of paperwork and house chores tonight to catch up.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT