NEW-Need some positivity here.

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O Stoma Mia
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Dehydration

Postby O Stoma Mia » Sun Dec 03, 2017 10:27 pm

Aqx99 wrote:
    heiders33 wrote:I think I've started having some diarrhea -- waves of pain in the intestine in the mornings usually followed by some liquid output. I assume that it's diarrhea? So hard to tell with the ileostomy. I'm going to mention it to my onc tomorrow. It's been pretty regular in the mornings in the last week before I eat, and has happened a couple other times as well.

A high volume of liquid output is considered diarrhea with an ileostomy. Measure your output, anything over 1000 ml/day is diarrhea and you need to be careful of dehydration. Up your fluid intake.

Yes, you need to be able to recognize diarrhea while on ileostomy, and you need to know how to deal with dehydration in order to avoid serious kidney problems.
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=43233&p=310141#p310141

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52710&p=414918#p414918
.
.

heiders33
Posts: 275
Joined: Sat Nov 04, 2017 11:08 am

Re: NEW-Need some positivity here.

Postby heiders33 » Mon Dec 04, 2017 6:20 pm

Thanks. It seems like it was just minor diarrhea and I'm not dehyrdrated. Been drinking a ton of water and some pedialyte and urinating normally.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, KRAS
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: XELOX six rounds
March 2018: reversal
April 2018: CEA 2.1, all blood counts normal
May 2018: CT scan showed liver spot
August 2018: Abnormal PET, CEA 2.4
September 2018: liver resection with HAI pump

teacher2017
Posts: 188
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Fri Dec 08, 2017 3:02 pm

Question regarding anemia. I was told that I had low iron counts this time but not enough to postpone chemo. The next one may be pushed back due to Christmas. I am wondering if it is normal? Perhaps still from the surgery? I had a bloody stool episode after this chemo and maybe I lost a lot of blood? I have no idea. Onc said we will avoid the shot if we postpone a week. I'm bummed but I get it. Big sigh...
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18

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susie0915
Posts: 840
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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: NEW-Need some positivity here.

Postby susie0915 » Fri Dec 08, 2017 6:45 pm

teacher2017 wrote:Question regarding anemia. I was told that I had low iron counts this time but not enough to postpone chemo. The next one may be pushed back due to Christmas. I am wondering if it is normal? Perhaps still from the surgery? I had a bloody stool episode after this chemo and maybe I lost a lot of blood? I have no idea. Onc said we will avoid the shot if we postpone a week. I'm bummed but I get it. Big sigh...

My hemoglobin was always low. It tends to run on the low side of normal anyways. My oncologist prescribed ferrous sulfate. My hemoglobin was regular below 10 during chemotherapy.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Aqx99
Posts: 403
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Facebook Username: aqx99
Location: Pfafftown, NC

Re: NEW-Need some positivity here.

Postby Aqx99 » Fri Dec 08, 2017 7:35 pm

teacher2017 wrote:Question regarding anemia. I was told that I had low iron counts this time but not enough to postpone chemo. The next one may be pushed back due to Christmas. I am wondering if it is normal? Perhaps still from the surgery? I had a bloody stool episode after this chemo and maybe I lost a lot of blood? I have no idea. Onc said we will avoid the shot if we postpone a week. I'm bummed but I get it. Big sigh...


I was severely anemic to start with, and have never gotten into the normal range. My numbers fluctuated during chemo. I take iron and vitamin C twice a day to help combat it.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

DonutHead
Posts: 45
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Sat Dec 23, 2017 7:03 pm

Merry Christmas, everyone! Hug your family tight and enjoy the holidays!
Male 49 yrs.
09/10/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma - NOT Genetic
- CT - No Mets - Very slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds of 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: PET/CT - NED

teacher2017
Posts: 188
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Mon Jan 15, 2018 8:25 am

Happy new yr everyone! Hoping you are all ok. Just checking in. Had chemo 5 and the fatigue has been hard. Onc wants me to ge the neulasta shot today. Depression continues. I don’t hear enough stories of stage 3c survivors and I get so worried. Reading everything about diet- trying the green tea, blueberries, dried plums, tumeric and cayenne ideas too. Wish I had the energy to exercise. NY winters are hard. Hoping you all are well!
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18

NHMike
Posts: 1680
Joined: Fri Jul 21, 2017 3:43 am

Re: NEW-Need some positivity here.

Postby NHMike » Mon Jan 15, 2018 9:18 am

teacher2017 wrote:Happy new yr everyone! Hoping you are all ok. Just checking in. Had chemo 5 and the fatigue has been hard. Onc wants me to ge the neulasta shot today. Depression continues. I don’t hear enough stories of stage 3c survivors and I get so worried. Reading everything about diet- trying the green tea, blueberries, dried plums, tumeric and cayenne ideas too. Wish I had the energy to exercise. NY winters are hard. Hoping you all are well!


I had Chemo 2 and it's been hard.

I do hear about stage 4 survivors and that's a good sign but the statistics overall aren't that good (still I think). It's five days since infusion and I'm going to try to walk today. Have been spending a lot of time in bed the long weekend. I need to go into the office for a while too.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

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Atoq
Posts: 302
Joined: Wed Oct 25, 2017 9:31 am

Re: NEW-Need some positivity here.

Postby Atoq » Mon Jan 15, 2018 9:51 am

Hi! I am also 3c but possibly IV. I also have two kids, a bit younger than yours. Having surgery to remove the tumor in two weeks, but I already have a colostomy because of blockage after radiation.

About being depressed, I am so happy because I started again doing exercizes for the abdomen, I was expecting some hormonal swings because of radio induced menopause. I don’t know maybe is the chemo as well making you depressed?

We are going to make the next statistics, the one available now is old with respect to new therapies. I think I have to live the last time I have as happy as possible for the people around me, maybe it will be a long time or not, but at least lets’ make it be nice.

However I think hormons, chemo, radio, can also make us depressed, it doesn’t help to be positive if there is a chemical or physical problem. Have you tried to get something against depression?

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: NEW-Need some positivity here.

Postby Aqx99 » Mon Jan 15, 2018 10:59 am

teacher2017 wrote:Happy new yr everyone! Hoping you are all ok. Just checking in. Had chemo 5 and the fatigue has been hard. Onc wants me to ge the neulasta shot today. Depression continues. I don’t hear enough stories of stage 3c survivors and I get so worried. Reading everything about diet- trying the green tea, blueberries, dried plums, tumeric and cayenne ideas too. Wish I had the energy to exercise. NY winters are hard. Hoping you all are well!


I finally had to get medication for my depression. I was trying to be strong, but it was taking its toll on me. There is no shame in asking for help. We go through a lot with this.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

teacher2017
Posts: 188
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sun Jan 21, 2018 8:30 am

Ok freaking out. Four days of some bright red blood on the stool and in the bowl. Headed to the gi dr tomorrow. Scared too death. I’m in the middle of chemo. I have #6 on Friday and onc said it may have to stop for a colonoscopy. Could it be the chemo? Lack of water? Something minor?
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18

DonutHead
Posts: 45
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Sun Jan 21, 2018 9:40 am

hey, teacher!

i have worried about all of the same things...from all of my readings and talking to the doctor, could be several issues. one could be your resection site. takes several months for it to properly heal and chemo exacerbates this process. could be the chemo itself and the havov it wreaks on you immune system and cellular well being. your white and red blood cells are certainly affected. platelets as well. the doctor will want to take a look. but i sincerely doubt with your low grade diagnosis there has been a resurgence or new growth, not in a relatively short time with your chemo almost halfway done. i am no doctor, for sure, but i would guess that it’s chemo related.

please let us know what you learn and prayers to you. all will be okay, you have to believe that!

Mark
Male 49 yrs.
09/10/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma - NOT Genetic
- CT - No Mets - Very slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds of 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: PET/CT - NED

teacher2017
Posts: 188
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sat Feb 17, 2018 10:27 pm

Haven’t posted in a while and I hope you are all well. I am coming upon chemo 8. It hasn’t been easy and the onc lowered the oxi due to neuropathy. She did say that as long as I did 6 full oxis, it was the same as 12 according to recent studies. She also said all my numbers are good. That we will wait for a scan and colonoscopy at the end of treatment. I can actual see the end in sight and really hope I’m all clear. I have to focus on being ok and getting this port out too. I feel well. It’s the chemo that kicks me down. I am sleeping better at night and the nightmares have subsided. But it’s like a see saw. Let’s hope chemo 8 isn’t too terrible. Hopin gyou are all making plans to do something fun. Spring is coming...
Last edited by teacher2017 on Mon Feb 19, 2018 9:18 am, edited 1 time in total.
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18

User avatar
Atoq
Posts: 302
Joined: Wed Oct 25, 2017 9:31 am

Re: NEW-Need some positivity here.

Postby Atoq » Sun Feb 18, 2018 3:37 am

You are really close to the end of the mop up chemo! I hope the next rounds are not so hard and you will be NED for ever!

If the oncologist says 6 is like 12, are you not tempted to stop now that you are over 6?

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

NHMike
Posts: 1680
Joined: Fri Jul 21, 2017 3:43 am

Re: NEW-Need some positivity here.

Postby NHMike » Sun Feb 18, 2018 10:13 am

Atoq wrote:You are really close to the end of the mop up chemo! I hope the next rounds are not so hard and you will be NED for ever!

If the oncologist says 6 is like 12, are you not tempted to stop now that you are over 6?

All the best

Claudia


I think that the onc meant the total amount of Oxy. If you cut the dosage it can take more to get there.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal


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