starla566 wrote:I agree this stuff sucks and is hard on the body and mind. My chemo brain is getting worse, my neuropathy is getting worse and no one forwarned me about the possibilities of these long-term side effects. Also, the doctors all act like it shouldn't be going on but with all of us that have this crap they have to be aware. Of course, we shouldn't be surprised we let them put that poison in us
heiders33 wrote:I am wondering the same thing. I asked my onc about the effectiveness of 4 cycles of Oxi versus 6, and he basically said that it was about maximizing effectiveness vs. minimizing side effects. If I have persistent numbness at any point, they will stop the treatment. However, if this shows up a month or so later, then what good is that approach? Am wondering if I should just ask my onc to stop at 4 cycles and continue with the Xeloda.
heiders33 wrote:Has anyone experienced professional massage of the hands and feet helping with neuropathy, at least temporarily?
debbieshields wrote:Nine years out from treatment with oxaliplatin, and my fatigue and neuropathy are getting worse. Have seen primary doctor, oncologist, neurologist - all looked for OTHER causes because they have no solution for side effects of chemo and don't want to admit that's the problem. Is ANYONE doing anything for survivors with these problems?
peanut_8 wrote:debbieshields wrote:Nine years out from treatment with oxaliplatin, and my fatigue and neuropathy are getting worse. Have seen primary doctor, oncologist, neurologist - all looked for OTHER causes because they have no solution for side effects of chemo and don't want to admit that's the problem. Is ANYONE doing anything for survivors with these problems?
Hi Debbie,
I'm linking a previous post with info regarding a topical cream that has helped other members with their neuropathy.
viewtopic.php?f=1&t=56876&hilit=neuropathy+topical+cream
Hope it can be of assistance to you.
peanut
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