teacher2017 wrote:Chemo 1 done. I'm proud of myself. But the thought of 11 more is daunting. The day after disconnect I was very sleepy and this headache/fog thing. I feel like I'm being preventative and proactive but I get depressed just thinking that this is a long road and it guarantees nothing. I guess these feelings are normal. Any suggestions to keep a positive attitude? Mine comes and goes.
teacher2017 wrote:Chemo 1 done. I'm proud of myself. But the thought of 11 more is daunting. The day after disconnect I was very sleepy and this headache/fog thing. I feel like I'm being preventative and proactive but I get depressed just thinking that this is a long road and it guarantees nothing. I guess these feelings are normal. Any suggestions to keep a positive attitude? Mine comes and goes.
Robino1 wrote:My kids and grandkids made me a countDOWN calendar. Instead of the number going up each time, the number goes down. After the pump comes off, I change the number to one less.
Down to 3
I was tired after my first session also. I think it was more the stress and sleeplessness prior. I haven't had that same tiredness since. After the second session, I pushed myself into not taking any naps and just going for walks and keeping as active as possible. Even though I felt a little draggy at times. I just pushed through.
Now I don't feel the blah anymore.
We have planned several trips through this. The first was going to my oldest grandchilds graduation party in Michigan. We live in Florida so it was my first time going through security with the port. I had the med card on me in case I needed it... they didn't say a word and went through the scanner no problem.
We have upcoming next week a train trip with the MIL to Pennsylvania for Thanksgiving and I am so looking forward to our Christmas trip to Michigan. Flying first class!!! Woot!!!! Our Christmas gift to each other.
We are starting to plan a trip to Oregon to see another of our kids. Probably sometime in April. We are looking at making it an actual vacation and driving to several states after spending a couple of days in Portland. I've always wanted to see Mt Rushmore and Yellowstone. So we are working out a driving route from Portland and ending in Denver to fly back home. Stopping at several places and states along the way.
All this really gives me something to look forward to.
heiders33 wrote:I have had one cycle so far and found it emotionally draining as well. I was fatigued and nauseous and napped a lot. Mentally I felt like I was never going to get out of the fog I was in. But I did! Now I am gearing up for my next Oxi infusion tomorrow and am determined to not let it take over my life. My mom will be with me all week from out of town, and then on Saturday I will go back with her to spend Thanksgiving with family. We all need something to look forward to! I like the idea of getting out and walking, although I tried that last time and my lip swelled up and my eye twitched a lot due to the cold air. Still, I'm determined to be more active this time, and to take my anti-nausea drugs ahead of the nausea, lol. I haven't been nauseous in years so I couldn't even identify it when it came. It's all about attitude going in, and when you know what to expect it's much more manageable.
heiders33 wrote:I have had one cycle so far and found it emotionally draining as well. I was fatigued and nauseous and napped a lot. Mentally I felt like I was never going to get out of the fog I was in. But I did! Now I am gearing up for my next Oxi infusion tomorrow and am determined to not let it take over my life. My mom will be with me all week from out of town, and then on Saturday I will go back with her to spend Thanksgiving with family. We all need something to look forward to! I like the idea of getting out and walking, although I tried that last time and my lip swelled up and my eye twitched a lot due to the cold air. Still, I'm determined to be more active this time, and to take my anti-nausea drugs ahead of the nausea, lol. I haven't been nauseous in years so I couldn't even identify it when it came. It's all about attitude going in, and when you know what to expect it's much more manageable.
Aqx99 wrote:heiders33 wrote:I have had one cycle so far and found it emotionally draining as well. I was fatigued and nauseous and napped a lot. Mentally I felt like I was never going to get out of the fog I was in. But I did! Now I am gearing up for my next Oxi infusion tomorrow and am determined to not let it take over my life. My mom will be with me all week from out of town, and then on Saturday I will go back with her to spend Thanksgiving with family. We all need something to look forward to! I like the idea of getting out and walking, although I tried that last time and my lip swelled up and my eye twitched a lot due to the cold air. Still, I'm determined to be more active this time, and to take my anti-nausea drugs ahead of the nausea, lol. I haven't been nauseous in years so I couldn't even identify it when it came. It's all about attitude going in, and when you know what to expect it's much more manageable.
I'll be in the chair for an oxaliplatin infusion as well. It will be my sixth, and final, one.
susie0915 wrote:Aqx99 wrote:heiders33 wrote:I have had one cycle so far and found it emotionally draining as well. I was fatigued and nauseous and napped a lot. Mentally I felt like I was never going to get out of the fog I was in. But I did! Now I am gearing up for my next Oxi infusion tomorrow and am determined to not let it take over my life. My mom will be with me all week from out of town, and then on Saturday I will go back with her to spend Thanksgiving with family. We all need something to look forward to! I like the idea of getting out and walking, although I tried that last time and my lip swelled up and my eye twitched a lot due to the cold air. Still, I'm determined to be more active this time, and to take my anti-nausea drugs ahead of the nausea, lol. I haven't been nauseous in years so I couldn't even identify it when it came. It's all about attitude going in, and when you know what to expect it's much more manageable.
I'll be in the chair for an oxaliplatin infusion as well. It will be my sixth, and final, one.
Congrats. I bet you can't wait to be done.
heiders33 wrote:Congrats, Aqx99! I will be you in a few months.
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