New to this thing called colon cancer

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Valkara
Posts: 4
Joined: Sun Nov 05, 2017 4:37 pm
Facebook Username: Bobbie Jean Valle
Location: Texas

New to this thing called colon cancer

Postby Valkara » Sun Nov 05, 2017 4:46 pm

I was diagnosed this past April and have had 28 days of radiation. I currently am scheduled for surgery this Tuesday the 7th of November. scared and feeling alone.
My main question is being left with a two inch rectum and having this bag until I can get the plumbing reconnected to function in a more normal manner.
Can anyone tell me the length of the rectum that they have and issue that me be in having only two inches.

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: New to this thing called colon cancer

Postby Bev G » Sun Nov 05, 2017 8:29 pm

Hello and welcome to the board.

I had colon, not rectal, cancer so I can't really speak to your question regarding residual length of your rectum. I can reassure you though that there are many folks on this forum who have/had rectal cancer so you will have plenty of people to get advice and support from. I know just from reading here for many years that there are many things that can be done to deal with your new shortened rectum.

Good luck with your upcoming surgery.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: New to this thing called colon cancer

Postby NHMike » Mon Nov 06, 2017 1:06 am

I had surgery last week and have a temp ileostomy right now and I’m getting used to it. My distance to the anal verge was 5.1 cm which is not that far from two inches. The surgeon said that things went well so I assume I have enough sphincter muscle remaining to function when it’s reversed. The surgeon will make the final decision during surgery on temp vs permanent.

Is that what you were asking or were you asking about the level of functionality after the reversal. I’m not there yet so I can’t comment.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: New to this thing called colon cancer

Postby DarknessEmbraced » Wed Nov 08, 2017 11:16 am

I hope your surgery went well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Valkara
Posts: 4
Joined: Sun Nov 05, 2017 4:37 pm
Facebook Username: Bobbie Jean Valle
Location: Texas

Re: New to this thing called colon cancer

Postby Valkara » Sun May 06, 2018 7:42 pm

Yes all has been good. I will have reversed ileostomy on 5/29/18. 6 months of chemotherapy over with yes!!

mesh123
Posts: 10
Joined: Sat Oct 24, 2015 6:50 pm

Re: New to this thing called colon cancer

Postby mesh123 » Mon May 07, 2018 9:54 am

you will be fine I had all my colon removed. check my posts


Good luck.
26 years old, Male, age of diagnosis 25.
DX: Rectal Cancer (RC) and Colon Cancer (CC)
Tumor Location: Rectum 5.4 on the day of surgery, 9cm before radiation.
Tumor grade: G3: Poorly differentiated (high grade)
T3N0M0
Stage: III
Positive lymph nodes: Zero
Primary surgery type:
LAR, J-pouch reversal
Radiation 6 weeks follow with Xelox prior surgery. After 6 round of Xelox&Flofox.
if you have any question about my jornery please message me.


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