plastikos wrote:Hi Janis. Sorry to hear about your situation. It may sound cliche but there is always hope. Other people with similar situations have reached NED status again. It is true that you may have to face the possiblity of having treatments indefinitely but even this is not a certainty. Just worry about the problem at hand which is controlling the disease. Look at trials. Have your tumor tested for MSI status. Good luck Janis.
Janis wrote:Hello everyone. I have been reading this forum for about a year now. I have found the articles on this forum to be very informative and the most kindest and caring people I have come across. I find my heart and my mind in a tug of war over my situation. I was diagnosed Nov 2015 with stage 3 cc. Dec 2015 had surgery to remove lemon size tumor in my sigmoid and had 18in removed No ostomy.. Caught staph infection from surgery and during a x-ray they discovered 11 nodules between both lungs. Started Folfox w/oxi. Dropped oxi and added Avastin. Everything stayed stable until about 2 months ago. Had to take a break from 5 fu Due to horrible mouth sores. During this one month break I had a scan. Now comes the Dilemma my scan showed it had spread to the right side of my liver and to my ovaries as well as my chest wall, peritoneum and trachea oh and let me not forget my hemorrhoidal nerve. I asked my Oncologist who gets cancer on their hemorrhoid. That's the only laugh I had that day. I am now on Irinotecan/Avastain. Now with 40ish chemo rounds my mind tells me I will never reach
NED and therefore stop the treatments. But my heart tells me for the sake of my children to keep going. I know that by God's grace would be the only way I would be cured. Am I wrong for thinking this way because everyone here is fighting for their life.
mpbser wrote:"get to MD Anderson and get your tumor tested for MSI status"
I would imagine that that was already done. Janis is a patient at MD Anderson. Wouldn't such a big cancer center test MSI as a matter of course?
Janis -- sending positive thoughts your way.
mpbser wrote:"get to MD Anderson and get your tumor tested for MSI status"
I would imagine that that was already done. Janis is a patient at MD Anderson. Wouldn't such a big cancer center test MSI as a matter of course?
Janis -- sending positive thoughts your way.
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