Hate prepping and now They found a polyp!

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Buckeye
Posts: 109
Joined: Mon Jan 18, 2016 7:02 pm

Hate prepping and now They found a polyp!

Postby Buckeye » Thu Oct 12, 2017 5:58 pm

I am going in for my two year check up. I was diagnosed with lynch last year after having tumor removed with colon surgery. I am so bloated and the suprep is nasty. I know it is for my health, but I wish they could come up with a better way for us to get cleansed. Gotta go I feel my bowels starting to loosen! :mrgreen:
Last edited by Buckeye on Sun Oct 15, 2017 5:18 pm, edited 2 times in total.
Dx 10/20/15 stage 1 T1N0M0 1.3cmx1.1cmx1cm low grade ( well to moderately differentiated) Rectal cancer age 47
Loving Husband and father of two girls age 19 & 15 Sole income provider
CEA <0.5
CT, MRI and PET show no metastatic spread
LAR Laparoscopic TME 11/30/15 with Illo
Pathology clean no lymph node or vascular involvement. Confirmed Stage1
No chemo/rad cancer free now and forever.
Illo reversal 01/26/16

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Hate prepping

Postby susie0915 » Thu Oct 12, 2017 7:38 pm

I did suprep for my last colonoscopy and it is nasty. Made me sick to my stomach. Better than the go lightly because not as much to drink. Next time I'll ask if I can do miralax/Gatorade mixture. Good luck with your cleanse.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Hate prepping

Postby Aqx99 » Thu Oct 12, 2017 8:07 pm

I had Suprep for my colonoscopy in February. It tastes like salty Dimetapp to me. The first cup of it went down better than the second, because by the second I knew what it tasted like and my mouth was desperately trying to avoid it. I chugged it, chugged the prep cup full of water, then sipped Gatorade.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: Hate prepping

Postby TXLiz » Thu Oct 12, 2017 9:11 pm

Ick! I just did the same last week...Suprep and lemonade...the worst combo ever. It was sour, salty, chemical tasting, and medicinal all at the same time. So gross.

Good luck on the prep.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Buckeye
Posts: 109
Joined: Mon Jan 18, 2016 7:02 pm

Re: Hate prepping

Postby Buckeye » Fri Oct 13, 2017 3:25 am

It’s 3:30 in the morning I’m tired as hell, my asshole is on fire and I’m bloated and making more noise out of my rear end than a marching band!! :shock: This sucks. Hoping for a clean colon so I can skip a couple of years . Thanks for all the luck everyone.
Dx 10/20/15 stage 1 T1N0M0 1.3cmx1.1cmx1cm low grade ( well to moderately differentiated) Rectal cancer age 47
Loving Husband and father of two girls age 19 & 15 Sole income provider
CEA <0.5
CT, MRI and PET show no metastatic spread
LAR Laparoscopic TME 11/30/15 with Illo
Pathology clean no lymph node or vascular involvement. Confirmed Stage1
No chemo/rad cancer free now and forever.
Illo reversal 01/26/16

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susie0915
Posts: 945
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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Hate prepping

Postby susie0915 » Fri Oct 13, 2017 10:08 am

That prep is not fun after a rectal resection. I remember being exhausted. I work an adult diaper to the colonoscopy did not want to risk it. I remember sitting on the toilet for so long. Test will be done today, you will be cleaned out and can eat whatever. Good Luck.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Hate prepping

Postby NHMike » Fri Oct 13, 2017 10:11 am

I have to do the prep for surgery so I'll be joining you and I'm sure that I'll have to do many more of them in the future.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Buckeye
Posts: 109
Joined: Mon Jan 18, 2016 7:02 pm

Re: Hate prepping

Postby Buckeye » Fri Oct 13, 2017 1:23 pm

Well I am back at home and they found a 15mm poylop. They removed it and I’m waiting on biopsy. I feel sick and wAnt to cry. I had 5 small poylops last year and now this. I hate lynch and colon cancer. I am praying it comes back benign. It looks like healthy tissue and nothing like my cancerous lesion 2 years ago. This all developed in 1 year! I am so depressed right now. :cry:
Dx 10/20/15 stage 1 T1N0M0 1.3cmx1.1cmx1cm low grade ( well to moderately differentiated) Rectal cancer age 47
Loving Husband and father of two girls age 19 & 15 Sole income provider
CEA <0.5
CT, MRI and PET show no metastatic spread
LAR Laparoscopic TME 11/30/15 with Illo
Pathology clean no lymph node or vascular involvement. Confirmed Stage1
No chemo/rad cancer free now and forever.
Illo reversal 01/26/16

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Hate prepping and now They found a poylop!

Postby susie0915 » Fri Oct 13, 2017 2:43 pm

I'm sorry. I'm going to be positive and think it's benign. Yes that lynch syndrome sucks. Sending positive vibes your way.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: Hate prepping and now They found a poylop!

Postby michelle c » Sat Oct 14, 2017 10:37 am

This is the reason you need to have a colonoscopy every year - to check and remove any polyps. With Lynch, polyps generally grow quicker, and so the risk for colon cancer increases, hence the need for yearly colonoscopies. It is more than likely benign. Try not to stress while waiting for your results. You could consider surgery to remove your colon. Maybe this is something you could look into. Hang in there. Sending positive vibes your way. Best wishes x
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

inder_muc
Posts: 9
Joined: Tue Oct 25, 2016 1:54 am
Location: Munich, Germany

Re: Hate prepping and now They found a poylop!

Postby inder_muc » Sat Oct 14, 2017 10:49 am

Hope it is benign. That is the problem with lynch. My best wishes.

Muc
DX 07/2016 Colon Cancer Age 38, Male - Right Hemicolectomy
Stage 2A T3N0M0
Lynch Syndrome

Buckeye
Posts: 109
Joined: Mon Jan 18, 2016 7:02 pm

Re: Hate prepping and now They found a poylop!

Postby Buckeye » Sat Oct 14, 2017 11:16 am

michelle c wrote:This is the reason you need to have a colonoscopy every year - to check and remove any polyps. With Lynch, polyps generally grow quicker, and so the risk for colon cancer increases, hence the need for yearly colonoscopies. It is more than likely benign. Try not to stress while waiting for your results. You could consider surgery to remove your colon. Maybe this is something you could look into. Hang in there. Sending positive vibes your way. Best wishes x


Thanks, I am having a colonoscopy every year. They mentioned the possibility of having a total colon removal in the future.
Dx 10/20/15 stage 1 T1N0M0 1.3cmx1.1cmx1cm low grade ( well to moderately differentiated) Rectal cancer age 47
Loving Husband and father of two girls age 19 & 15 Sole income provider
CEA <0.5
CT, MRI and PET show no metastatic spread
LAR Laparoscopic TME 11/30/15 with Illo
Pathology clean no lymph node or vascular involvement. Confirmed Stage1
No chemo/rad cancer free now and forever.
Illo reversal 01/26/16

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Hate prepping and now They found a poylop!

Postby DarknessEmbraced » Sat Oct 14, 2017 5:37 pm

I hope you don't have to wait long for biopsy results!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Buckeye
Posts: 109
Joined: Mon Jan 18, 2016 7:02 pm

Re: Hate prepping and now They found a poylop!

Postby Buckeye » Sun Oct 15, 2017 5:17 pm

The polyp is 15mm and it grew in one year. It doesn’t look cancerous on the picture. It looks like healthy pink tissue.
Doctor and nurse don’t think it is , but want to see biopsy results. They want to do another colonoscopy in 3 months . I am not sure if a polyp can turn cancerous in 9 or 10 months? Anyone have thoughts?
Dx 10/20/15 stage 1 T1N0M0 1.3cmx1.1cmx1cm low grade ( well to moderately differentiated) Rectal cancer age 47
Loving Husband and father of two girls age 19 & 15 Sole income provider
CEA <0.5
CT, MRI and PET show no metastatic spread
LAR Laparoscopic TME 11/30/15 with Illo
Pathology clean no lymph node or vascular involvement. Confirmed Stage1
No chemo/rad cancer free now and forever.
Illo reversal 01/26/16

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Hate prepping and now They found a poylop!

Postby Lee » Sun Oct 15, 2017 5:40 pm

Buckeye wrote: . . . I am not sure if a polyp can turn cancerous in 9 or 10 months? Anyone have thoughts?


I could be wrong, butt I don't think so. I know you have Lynch, thus polyps can grow faster, butt I believe it still take 2-3 yrs for a Lynch person to develop cancer from a polyp.

For the general population, about 10 yrs for a polyp to turn cancerous.

Sometime, especially those flat one, fold in the colon, not a complete clean out, some polyps do get missed. I know, not something you wanted to read.

Good luck, hopefully it is nothing serious, butt boy do I understand your fear.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!


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