Thank you all for your answers and support. My doctor ordered CT scan yesterday and today I got the call to see my oncologist this Thursday to discuss scan results. They would not release the results to me
. I asked them 3 times...
This must be bad news and I am very scared and nervous. Thursday seems so far away and why I cant get an idea today. Anyone with such experiences?
Pain is still there on the right side. Wondering if this is Liver, Lymph, Peritoneal or bone...
I'm so sorry you're having to go through this stress, but I do think it's much too soon to assume the worst. It would be very unusual to develop a met while in the midst of your initial chemo. I worried about this too when I was going through XELOX and my doctor said he had only seen it happen once or twice in his entire career. As you indicated in your initial post this could very easily be a post-surgical issue. I don't think it's fair to assume that the office's refusal to provide advance info necessarily means mets.
Will be keeping fingers and toes crossed that everything turns out OK. Good luck and please let us know!
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & Celebrex
4/18 clean CT
2/19 clean scope
Ongoing Celebrex, Tagamet & other carefully-targeted supplements
Post-chemo CEA 3.0, 2.5, 2.3, 2.0, 1.6, 1.3, 1.8, 2.1, 1.8, 2.0, 1.8, 1.9, 1.7, 1.5, 1.6, 1.5, 1.4, 1.4, 1.3, 1.3, 1.6, 1.6, 1.3, 1.4, 1.6, 2.2, 2.4, 2.1 and ? For sanity's sake I've stopped looking.
Mom to a 5 & 7yo