I have to give a HUGE shout out to O Stoma Mia for reaching out to me. Thank you so very much.
I have been searching for anything or anyone that is even remotely like what I have been told I have. Seeding in the omentum probably happened when I had my resection.
O Stoma remembered a member of the Colon Club had Drop Metastasis which sounded very similar to my description of my colon cancer in my introduction thread.
It sounds like it is the same
I've been reading here and trying to gather info on the best hospitals, CEA numbers, KRAS and all those other things that I'm still clueless on when it comes to my own disease. I've been pushing for those tests and I'm not happy with the direction that my oncologist wants to take after I'm 'through' with this current course of treatment. She is talking about chemo for life. This I discovered on this last appointment I had with her.
I saw the smallest roll of eyes when I mentioned HIPEC and she basically blew it off. At that point I decided that I NEED a second (actually it will be a third) opinion. My loving daughter-in-law is a nurse practitioner for a gastro doc. She took my first intital CT scan to a cancer doctor in her group and he charted for her the steps he would take for my case. My oncologist at first agreed that these were the same but she (now that I think back on it) totally glossed over the HIPEC suggestion.
So I went back to different threads to find that list that was generously supplied by another member here. I would love to go to MSK but realistically, that is not an option. I decided on Penn Presbyterian Hospital and have made an appointment for November 21. We will be in the area over Thanksgiving and that is a better fit for me as we were from the area and have family and friends available should I need them.
I will continue my chemo with my current doctor but am arranging for copies of everything the doctor in Philly needs.
The doctor I have an appointment scheduled with in Philly is Dr. Nevena Damjanov. I truly feel that HIPEC is probably my best chance of beating my particular cancer. I hope she agrees or maybe has another direction.
The first time I felt depressed and not feeling like I got this and I will beat it is after my last talk with the onc
Not acceptable. I'm back in fighting spirit.
Miss Julie YW if you read this, thank you for writing that blog. You are my inspiration and for the first time it feels like I finally found someone that has gone through what I am going through or will go through.