Hello friends,
Hoping you can give me some perspective on something I'm going through.
I just finished 12 rounds of chemo (Stage 2B pT4 NOMO) three weeks ago. Stopped the Oxaliplatin after 8 rounds due to bad liver #'s; 5-FU only Rnds 9-12.
I experienced neuropathy in my feet and especially my lower legs (socks) during treatments, which would diminish the farther I was in the bi-weekly schedule.
However, during the first week of my last round, I started feeling shocks in that area when I'd lower my head (L'Hermitte's). I also had really increased loss of sensation/cold numbness in my toes, balls of feet and fingertips, starting the day after my last disconnect. I waited a week to see if it would fade, like before, but because it was so much stronger and did not go down, I went in to see my oncologist.
He told me he doubted it was from the Oxaliplatin, since it had been about 8 weeks since I stopped getting it in the infusions.
What else could this be from? Chemo is the only thing medically that's been happening in my life for the last 7 months. I've gone through the forum posts about neuropathy and understand it could fade or it could be permanent.
I am sacred and angry about this - having a hard time walking - loss of balance and knowing where my feet are. Have burned my right hand twice and cut both twice (minor). Also, am very, very tired because my feet and lower outside legs tingle and hurt when I lay down to sleep and it keeps me awake. Am so afraid I'm going to injure myself and not know it.
Tomorrow, I go in for a "survivorship" appointment with a nurse PA. What questions should I be asking about this - I feel like the doctor was dismissive of me and for the first time I'm feeling really broken by all of this. Somehow, I kept my chin up til my feet went numb.
Thanks so much to everyone who posts here - you all helped me tremendously through my whole treatment.