A friend who passed formCRC

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betsydoglover
Posts: 879
Joined: Mon Aug 14, 2006 2:31 pm
Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

A friend who passed formCRC

Postby betsydoglover » Sun Oct 01, 2017 4:31 pm

The wife of my son's boss just passed from colorectal cancer - she had mets in peritoneum- had HIPEC 2 years ago.

She was only 49 and has kids - 13, 15 and 17.

Very difficult to understand why I am still OK and she has passed. I know there is no answer - please keep your family in your thoughts.
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 11/17

jhocno197
Posts: 811
Joined: Mon May 11, 2015 9:33 pm

Re: A friend who passed formCRC

Postby jhocno197 » Sun Oct 01, 2017 4:33 pm

I am sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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Shana
Posts: 156
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: A friend who passed formCRC

Postby Shana » Sun Oct 01, 2017 7:42 pm

Betsy,

Very sorry for your loss. We can't compare ourselves and our CRC with others because everyone is so different.
You're still here and that's a gift!

Stay well!

Shana
DX - 12/16
MSS - KRAS wild
Stage IV colon cancer with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17 - 2 wks on, 1 wk off to lessen side effects
CEA 12/17 - 37.8! Finally a measurable number down from the thousands!
CT-Scan 9/1/17. Shrinkage of liver mets (4 measurable) and no bowel blockage
CT=Scan 12/1/17 Shrinkage of liver mets continue, no blockage
Removal of primary tumor and resection to be discussed next Spring 2018 based on continued positive progress

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Robino1
Posts: 222
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: A friend who passed formCRC

Postby Robino1 » Sun Oct 01, 2017 7:58 pm

I'm so sorry for your loss. :(

{{hugs}}
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo Stage II
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7; 11/30/17 - 70.7
BRAF V600e mutation :(

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: A friend who passed formCRC

Postby Maia » Mon Oct 02, 2017 8:32 am

Betsy, so sorry. Wishing comfort to her family --and to you. Hugs...

DarknessEmbraced
Posts: 2849
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: A friend who passed formCRC

Postby DarknessEmbraced » Mon Oct 02, 2017 8:38 pm

I'm so very sorry for your loss!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

mariane
Posts: 580
Joined: Sun Sep 13, 2015 6:16 pm

Re: A friend who passed formCRC

Postby mariane » Mon Oct 02, 2017 8:41 pm

I am so sorry.
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: A friend who passed formCRC

Postby CRguy » Tue Oct 03, 2017 12:16 am

My sympathies over the loss of your friend Betsy,
and sincere condolences to her family.

Respectfully
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Steph20021
Posts: 503
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: A friend who passed formCRC

Postby Steph20021 » Thu Oct 05, 2017 12:54 am

I am so sorry for the loss of your friend. I've read peri mets are bad in terms of prognosis. Im in a similar boat. *hug* please don't have survivors guilt, I know easier said than done.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Currently stable suce Aug/16- on folfiri


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