Horrible Night(Updated)

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DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Horrible Night(Updated)

Postby DarknessEmbraced » Tue Sep 26, 2017 8:47 am

I had a horrible night last night with cramping that had me doubled over, hot and shaking and dizzy. I had large soft bm, then smaller softer bm and then explosive diarrhea, I was in pain all night while sleeping. Today the pain is awful! My left side feels like it's bruised and even my t-shirt touching it hurts! If it doesn't stop I'm going to the ER. I hope it's not ischemic colitis again.
Last edited by DarknessEmbraced on Tue Sep 26, 2017 9:19 pm, edited 1 time in total.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Horrible Night

Postby jhocno197 » Tue Sep 26, 2017 8:48 am

:(. I hope you get relief soon!!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Horrible Night

Postby DarknessEmbraced » Tue Sep 26, 2017 8:53 am

Thank you Jhocno!*hugs* I do too! I took buscopan but so far it doesn't seem to be doing much. I know that this isn't normal.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Horrible Night

Postby Shana » Tue Sep 26, 2017 10:12 am

I'm so sorry for your pain, I hope you find relief soon or head to the ER if needed. The ER can cure you with their long waiting sometimes! :)

I've had colitis twice and know how horrid it is so hopefully it is something you ate just not agreeing with you.

(((Hugs)))
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Horrible Night

Postby DarknessEmbraced » Tue Sep 26, 2017 10:15 am

Thanks Shana and yes they can. I had ischemic colitis December 29th 2015. At the time they didn't know what it was. I was hospitalized for a week. I just had some drinkable soup and some liquids. I don't really feel any better. Even with the buscopan and my regular dicetel. I'm going to take a shower and go from there. I'm really thinking of going.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Horrible Night

Postby Shana » Tue Sep 26, 2017 10:32 am

Good luck and by the way congrats on your latest NED status!

That's wonderful news!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: Horrible Night

Postby SweetC80 » Tue Sep 26, 2017 12:10 pm

Oh no!! I hope you feel better soon, and even if it sucks can figure out what's going on.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Horrible Night

Postby DarknessEmbraced » Tue Sep 26, 2017 12:16 pm

Thanks Shana and SweetC80!*hugs* Trying heat and some solid food. I will go if it doesn't let up. I probably should have gone last night.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

benben
Posts: 323
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Horrible Night

Postby benben » Tue Sep 26, 2017 1:10 pm

DarknessEmbraced wrote:I had a horrible night last night with cramping that had me doubled over, hot and shaking and dizzy. I had large soft bm, then smaller softer bm and then explosive diarrhea, I was in pain all night while sleeping. Today the pain is awful! My left side feels like it's bruised and even my t-shirt touching it hurts! If it doesn't stop I'm going to the ER. I hope it's not ischemic colitis again.



Almost sounds like my daily bowel movements. Really it varies, but during treatment days 6 on follow along those lines.
I've only had mild pain though, couple times little pain on my right side, close to where I had a drain put in after surgery.

I hope you're feeling better.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
7/20 CT - NED (3 years!)

DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Horrible Night

Postby DarknessEmbraced » Tue Sep 26, 2017 1:11 pm

Thank you Benben, me too!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Horrible Night

Postby DarknessEmbraced » Tue Sep 26, 2017 1:47 pm

I'm going to go to the ER because the pain hasn't gone away and it's getting worse again.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

benben
Posts: 323
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Horrible Night

Postby benben » Tue Sep 26, 2017 2:08 pm

DarknessEmbraced wrote:I'm going to go to the ER because the pain hasn't gone away and it's getting worse again.


I hope you get some relief and that it's nothing too consequential.

hugs
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
7/20 CT - NED (3 years!)

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Horrible Night

Postby Robino1 » Tue Sep 26, 2017 2:32 pm

{{{ Hugs }}} I'm glad you are going in. Let us know how it goes.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

bitchslapped
Posts: 1534
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Horrible Night

Postby bitchslapped » Tue Sep 26, 2017 2:58 pm

Best wishes to you DE for some relief & answers. Hope it is easily resolved.

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Horrible Night

Postby susie0915 » Tue Sep 26, 2017 4:51 pm

I have never had colitis. Is it the same pain you had last time? I'm glad you're going to the ER. We know when something isn't right. Four weeks after my resection I knew something was wrong, nothing in my bag for a couple hours and all of sudden pain. I tried walking but nothing. I went to the ER and it was a bowel blockage. I ended up in the hospital for 3 1/2 weeks. Please let us know how you are doing. I'm praying your pain subsides and you get some answers sooner than later. I feel bad, just after getting such good news about your scan. It never seems to end does it? Hugs.

Susie
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5


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