My mom's journey is over

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LMighty
Posts: 98
Joined: Sun Aug 28, 2016 6:16 am
Location: Hong Kong

My mom's journey is over

Postby LMighty » Wed Sep 13, 2017 3:27 pm

Despite recent scans showing gradual improvements, immunotherapy failed and rapid progression led to heart, lung and kidney failure in days. My mom passed away peacefully today. She fought a fierce battle with this dreadful disease. She is in a better place now.

I would like to thank everyone on this board for accompanying my mom on her journey.
Supporter to my mom (64 yr); KRAS wild type; MSS

2012: DX Stage I, rectal cancer; resection and colostomy
5/16: DX Stage III, mets found; right groin lymph node and soft tissue
5-6/16: Radiation + Xeloda
7/16: DX Stage IV, pleural effusion; cancer cells found in fluid
7-12/16: Xelox + Avastin X 6
1/17: Clean PET scan, NED
2/17: Pleural effusion; recurrence
4/17: Iri + Erb X 3
5/17: Ascites; Chemo failed
6/17: Keytruda X 1
7/17: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib)
9/17: At peace

aja1121
Posts: 211
Joined: Sat Jun 28, 2014 5:12 pm

Re: My mom's journey is over

Postby aja1121 » Wed Sep 13, 2017 3:33 pm

I am so sorry for your loss. You are in my thoughts.
DH dx Stage 3B rectal ca 5/23/14 (age 41) from Mpls, MN
6/14 Xeloda + 30 rad | 10/14 LAR/ileo, all nodes clean
12/14-04/15 FOLFOX x 10
05/15 VATS, single lung met
06/15 ileo reversal
09/15 local recurrence, 10/15 permanent colostomy
11/15 FOLFIRI x 4, 01/16 major growth
02/16 curative resection failed, tumor debulked
11/16 Xeloda/Avastin until progression seen 08/17
09/17 start NCT02024607 (BBI608 + FOLFIRI arm) until progression seen 02/18
03/18 start NCT02817633 (anti-PD-1 + anti-TIM-3)

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susie0915
Posts: 775
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: My mom's journey is over

Postby susie0915 » Wed Sep 13, 2017 3:45 pm

I am so sorry for your loss. Prayers for you and your family.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

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Robino1
Posts: 454
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: My mom's journey is over

Postby Robino1 » Wed Sep 13, 2017 3:50 pm

I'm am so sorry
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Joannerogers
Posts: 259
Joined: Tue Jun 16, 2015 4:50 pm

Re: My mom's journey is over

Postby Joannerogers » Wed Sep 13, 2017 3:55 pm

Sad news! I'm sorry!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

benben
Posts: 259
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: My mom's journey is over

Postby benben » Wed Sep 13, 2017 6:20 pm

Very sorry to hear.

May you find some peace in these difficult times and keep your mom's memory alive.

best wishes,
many hugs!
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8-12 - NO OXI, just Luke and 5FU
Current - 12 treatments done, CBC good, CEA decreasing.
10/20/17 CT-SCAN - CLEAR! - NED

Lee
Posts: 5565
Joined: Sun Apr 16, 2006 4:09 pm

Re: My mom's journey is over

Postby Lee » Wed Sep 13, 2017 6:29 pm

Please accept my condolences on the passing of your mom. She fought a brave battle with this cancer. There is a special thread for those left behind, you might want to check it out.

viewtopic.php?f=1&t=46183

Feel free to hang around here, maybe you can help the next person starting this journey.

All the best to you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

AussieAssCancer
Posts: 247
Joined: Sat May 21, 2016 10:16 am

Re: My mom's journey is over

Postby AussieAssCancer » Wed Sep 13, 2017 6:48 pm

So very, very sorry to hear. What a lucky woman your mother was to have you to support her. I wish you nothing but peace.

AAC
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

DebZ
Posts: 80
Joined: Fri Nov 14, 2014 9:01 pm
Facebook Username: Bulc

Re: My mom's journey is over

Postby DebZ » Wed Sep 13, 2017 8:03 pm

I'm so sorry to hear this sad news. I lost my mom a year ago and though I know it was a blessing, it's still hard every day without her. My thoughts are with you.
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014-May 2015: Folfox
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switch to Folfox+Avastin
Jan-April 2018: dropped oxali; CEA rising
May 2018: back on Folfox+Avastin, add pulse steroid treatment to get platelet count up (continuously in 50s)

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ocstacy
Posts: 238
Joined: Mon Jun 19, 2017 11:29 pm
Facebook Username: stacy

Re: My mom's journey is over

Postby ocstacy » Thu Sep 14, 2017 3:30 am

my thoughts and prayers are with you at this time. Hugs and god bless you.
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 back @ hospital due 2 abscess/hernia - back home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
Took her last chemo med 05/10/18! Reversal 07/2018?
Me: Colonoscopy age 38. 08/17 Benign polp. internal hemmy's post partum

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: My mom's journey is over

Postby BeansMama » Thu Sep 14, 2017 5:34 am

I'm so sorry for your loss. Keeping you and your family in my thoughts and prayers.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

mariane
Posts: 618
Joined: Sun Sep 13, 2015 6:16 pm

Re: My mom's journey is over

Postby mariane » Thu Sep 14, 2017 7:42 am

I am very sorry.
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: My mom's journey is over

Postby SweetC80 » Thu Sep 14, 2017 8:14 am

I'm so sorry for your loss. My heart breaks for you. Keeping you all in my thoughts and prayers.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

ValZen
Posts: 14
Joined: Fri Sep 08, 2017 8:16 am

Re: My mom's journey is over

Postby ValZen » Thu Sep 14, 2017 8:32 am

My heart goes out to you and your family LMighty. Please accept my prayers and condolences during such a difficult time.

Mercy110
Posts: 100
Joined: Wed Aug 16, 2017 12:13 am

Re: My mom's journey is over

Postby Mercy110 » Thu Sep 14, 2017 8:51 am

So sorry to hear this news. I will pray for your family. Take care.
Daughter of Mum age 56, NRAS-mutate Q61R
2017-05: Surgery with stoma. T4N1M0. Stage3C. Xeloda No Radio. CEA: 7.3, 8.0, 9.8 CT Scan: Multiple lung nodules. Stage4.
2017-09: FOLFOX + Avastin, 85% for serious diarrhea CEA: 7.0, 4.7 (10/10), 3.7 (11/10), 2.9 (12/3), 2.2 (12/21), 2.4 (01/09), 3.4 (2/24), 2.6 (3/9), 3.6 (5/24)
2017-11: Stable CT
2018-03: Folfox Allergy, 2 months chemo break
2018-05: Stable CT result, 3 months break

WISH ALL MIGHTY GOD HEALS MUM WITH HIS MIRACLE


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