pdp497 wrote:I had not really been thinking about side effects and just looking toward treatment but now one day out I am getting anxious. What have your experiences been like what should I be looking out for on the unexpected side effect front? How effective has the treatment been for those of you out there that have been on it?
pdp497 wrote:I had not really been thinking about side effects and just looking toward treatment but now one day out I am getting anxious. What have your experiences been like what should I be looking out for on the unexpected side effect front? How effective has the treatment been for those of you out there that have been on it?
Volfan wrote:If two replies show up from me I apologize. I must of hit the wrong button because it disappeared. Lol
On the topic of side effects the severity seems to vary from person to person from what I've read here.
I've kind of have two categories for my side effects.
Total pain in the butt category: fatigue and stomach issues. These two here can change how I go about my day. Get up to go to work and get ready then start to walk out and all of a sudden I start pooping for the next 30 minutes so late for work. Or be at work and fatigue hits and I can barely make to my car I'm so tired. This is not an all the time thing. Just hit or miss.
Category two is inconvenience side effects: first bite, hiccups(the first night of this wife thought we were having an earthquake the way the bed was shaking), not able to grab something cold, calf muscle stiffness which just started.
As far as how the treatment is working doc seems to be pleased so far. I started treatment the first of April. Avastin was added two months after starting Folfox. Had my first scan since starting treatment 2 1/2 months in and my two liver mets shrunk on average 40% and the rectal cancer had significant response.
My cea was 103 when I started treatment and is 7.6 right now. New number will be available this afternoon. Doc checks it once a month.
pdp497 wrote:Thanks for the information everyone. It is a little easier to prepare with some information. Robino1 unfortunately Injad to get a PICC line placed for now because they wanted to start treatment and the wait at MD Anderson for a port was too long. I will get the port eventually. Volga's I hope you got good news from the doc today.
tater wrote:Volfan wrote:If two replies show up from me I apologize. I must of hit the wrong button because it disappeared. Lol
On the topic of side effects the severity seems to vary from person to person from what I've read here.
I've kind of have two categories for my side effects.
Total pain in the butt category: fatigue and stomach issues. These two here can change how I go about my day. Get up to go to work and get ready then start to walk out and all of a sudden I start pooping for the next 30 minutes so late for work. Or be at work and fatigue hits and I can barely make to my car I'm so tired. This is not an all the time thing. Just hit or miss.
Category two is inconvenience side effects: first bite, hiccups(the first night of this wife thought we were having an earthquake the way the bed was shaking), not able to grab something cold, calf muscle stiffness which just started.
As far as how the treatment is working doc seems to be pleased so far. I started treatment the first of April. Avastin was added two months after starting Folfox. Had my first scan since starting treatment 2 1/2 months in and my two liver mets shrunk on average 40% and the rectal cancer had significant response.
My cea was 103 when I started treatment and is 7.6 right now. New number will be available this afternoon. Doc checks it once a month.
Thanks awesome results so far. If you don't mind me asking what size were your liver mets?
pdp497 wrote:I had not really been thinking about side effects and just looking toward treatment but now one day out I am getting anxious. What have your experiences been like what should I be looking out for on the unexpected side effect front? How effective has the treatment been for those of you out there that have been on it?
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