Basil wrote:Has anyone talked to you about staging? If all this happened in February I would think you'd really want to know what you're facing before now. Good news is if chemo is not needed you're likely in an early stage. I was diagnosed March 16 and when straight from mycolonoscopy to ct for staging. So, welcome. Sorry you're here.
Basil wrote:P.S. I've had a temp bag for exactly one week and am already harassing my surgeon for a reversal. I haaaattteee this fucking thing.
mpbser wrote:Welcome, JennPixie. What a whirlwind you have experienced. I know a little bit about whirlwinds!
I second what Basil says about staging. Also, you should get a PET scan done because CT scan may not have detected any metastases to other organs such as the liver and/or lungs.
My husband's CT scan only showed the 5 cm mass in his left descending colon with a few "suspicious lymph nodes" while he actually had 9 positive nodes, spots on his liver, and had/has a huge polyp/tumor (6-7 cm!) at the right-transverse colon junction. Now he has to have a second colon resection because the other polyp/tumor was missed.
Basil wrote:P.S. I've had a temp bag for exactly one week and am already harassing my surgeon for a reversal. I haaaattteee this fucking thing.
tammylayne wrote:...Your doc put the bag in...he/she is the best one to discuss when and how to take the bag out....
JennPixie wrote:
They said I had stage 2, that two lymph nodes were involved. So they got those, as well as the affected colon.
Achilles Torn wrote:JennPixie wrote:
They said I had stage 2, that two lymph nodes were involved. So they got those, as well as the affected colon.
I'd ask for clarification on your pathology report and staging. If 2 lymph nodes tested positive for cancer then I think you would be stage III according to all the guidelines I've read. This isn't meant to scare you (stage IIIa has similar survival rates to Stage II) but it would guide some treatment decisions and may mean your insurance is more willing to pay for additional scans/tests. It sounds like you've done well and are likely cured, but It is never wrong to stay as aggressive and informed as possible. Just my 2 cents.
AT
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