Tdubz wrote:Round six in the books. Can't believe I'm at the halfway point already! However I feel a lot worse than previous rounds. Usually day 1 is just like any other day for me but this time around I've got some severe heartburn and I feel super tired with headaches and joint pain. I'm hoping this doesn't mean days 2 through 5 are going to be worse too lol.
I might be able to stop iron infusions since anemia seems to be getting under control but we will discuss that next week, so that's good, should save me about 30 min of infusion time.
I also get to do an echo on my heart this week. Hopefully that will give me some answers as well. The light at the end of the tunnel is definitely getting brighter! i hope these last few rounds stay on schedule like the first 6. My daughters birthday is the week after my last treatment and I'm determined to make that party!
Question about neuropathy. do you guys have fingers/toes that are constantly tingling? I seem to only experience it when I'm typing or texting or doing things with my hands, sometimes I feel it in my toes when walking, but it's never been a constant thing, even though it lasted until yesterday, I still got the full dose of oxy today. The last time I had cold sensitivity was Thursday. If you had oxy reduced, what were the symptoms you had that made the onc reduce?
TDUBZ - CONGRATULATIONS on making the half way 6 rounds!
At least now you've made it to what the recent ASCO report suggests is nearly as good as the entire 12 rounds.
I got heart burn pretty bad my last round which was #4. To be honest I had been slacking on my prilosec(omez), as well as the few supplements my ONC said I could continue taking.
I definitely need to make sure I'm keeping those up, especially with round 5 coming Wednesday for me - provided the WBC is up. I got my single zarzio shot today. So far no bone pain.
As for Oxy reduction. I had mine reduced starting round 3 to 90%. The symptoms that my ONC stated we should reduce for were mainly some slight pervasive numbness in my hands/forearms - but the biggest reason
was the significant trashing of my WBC count all the way down to 420, even after 2 granix shots after round 2. So I had a 2 day delay for round 3 and reduction of OXY. I had 2 zarzio shots between round 3 and 4 and my WBC skyrocketed up to 5500 on the ANC and about 11k total WBC. So they decided to try 1 zarzio this round. I'll see how that panned out Wednesday morning during pre-infusion blood draw. Hoping round 5 continues that way I don't have to go to hospital during weekend for disconnect as the cancer center here is closed on weekends. Aside from the hospital screwing up the billing on my insurance, I don't like having to bring home the pump! It gives me a bad taste in my mouth every time I see it. I dunno - I just like the complete separation during my good week:).
On the symptom side of things, with reduction of the oxy and continued CBD/THC use, my symptoms are significantly less. Where round 2 I had numbness in my feet all the way up my calf muscles for about 15 minutes one day. I still experience some slight numbness in my hands and forearms, but nothing that seems to be interfering with much. I'm still capable of working and typing at least 60 words per minute. I use my hands ALOT for work. I can also still play guitar, which I really enjoy and find it very therapeutic.
I'm interested to hear what your heart results were. I hope everything turns out good for you. I did notice round 4, directly after disconnect my blood pressure dropped pretty low as well as my heart rate.
Normally I run between 125/70 - 135/85 with bpm of 75-85. 3 days during disconnect it had dropped to 103/60 with bpm low of 57. I talked to Nurse that gave me my injection today and said that's not really normal and should bring it up with the nurse during blood draw on Wednesday.
May you have continued minimal symptoms with the last half of treatment! Climb Onward.
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treatments
Treatment 7 reduced to 75% OXI
Treatment 8-12 - NO OXI, just Luke and 5FU
10/20/17 CT- NED
3/18 Scope - Clean
7/18 CT-Scan - Clear, CEA 4.6
8/30 CEA 2.6
10/5 CEA 1.5