Ladies, thank you for all your support. We had a good talk Friday night and it appears he is more at peace with this than I am. He will continue to fight but understands the odds. He does like hearing about the research and people who have beaten the odds. His big concern with hospice is not ever wanting to go back into the hospital for weeks at a time (those 2 weeks in October were just horrible) and the FDA making certain pain drugs unavailable. Our doctor keeps asking about pain, says it will come. Not really what we need to hear now, I would prefer they treat him like he is living, not like he's about to die.
For the short term, it's monthly CEA test tomorrow and hoping it's still around the 12 mark as it was in June. Then a CT scan in August. Then a consult with a Dr at Georgetown who treated a work buddy. This Dr is apparently a pro at spheres and they have Cyberknife and Proton too, none of which our Dr thought were reasonable.
Headed to NYC on the train in 2 weeks to see special exhibits at Natural History!
Hugs to all, Melissa
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials