A sore bottom- diaper rash med recommendation?

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A sore bottom- diaper rash med recommendation?

Postby CatzinDJ » Thu Jun 15, 2017 5:21 pm

My bottom is sore almost like before surgery last year. I recently had a colonoscopy and a CT scan- so no obvious problem. (CEA is not in the normal range but it isn't too high either.)

Is there any ointment that you recommend? I'm using butt paste now. I am still going to the restroom 6-8 times a day. The butt is sore.
53 & Female
DX: Rectal Cancer (RC) diagnosed in Thailand
Tumor Location: Rectum
Tumor type: invasive adenocarcinoma
Tumor size: 4 mm
Tumor grade: low grade
Baseline CEA value (4.46) 5/2016
CEA 6/2/2016 4.8
Lynch- Negative.
LAR 7/13/2016 in Seatle, Wa
Home 7/18/2016.
CEA 12/9/2016 2.8
CEA 6/8/2017 5.6
Colonoscopy and Cat scan June 2017 NED? A nagging suspension of mine about the CEA rising.

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Location: Washington State

Re: A sore bottom- diaper rash med recommendation?

Postby benben » Thu Jun 15, 2017 5:39 pm

LOL what exactly is this Butt Paste?

So far I've not used anything, but Nurse recommended Desitin to me this past week when I started developing diarrhea.
I did get some in case it keeps happening. Otherwise I generally hop directly into the shower and use my removable shower head to thoroughly clean and sooth.
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8-12 - NO OXI, just Luke and 5FU
Current - 12 treatments done, CBC good, CEA decreasing.
10/20/17 CT-SCAN - CLEAR! - NED

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Re: A sore bottom- diaper rash med recommendation?

Postby jhocno197 » Thu Jun 15, 2017 6:59 pm

Are you using wipes instead of tp? There are also bidet attachments you can hook up fairly easily to your toilet.

The tp that I like is Cottonelle with aloe. Easier on the tushie.

Are you using regular or extra-strength butt paste? Regular worked for some ​of my kids, but the last one needed extra-strength.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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Re: A sore bottom- diaper rash med recommendation?

Postby GreenLakeGirl » Thu Jun 15, 2017 8:34 pm

Boudreaux Butt Paste: http://www.buttpaste.com

Using toilet paper is irritating to skin that is already irritated by going multiple times a day. Consider using a squirt bottle of water to clean up (https://www.amazon.com/Medline-Perineal ... B01M2BKNLE), or soft wet wipes (and note that wipes are hard on sanitation systems because they don't dissolve). I found that even wet wipes were too much for me, so sometimes dampened TP worked better.

Sitz baths or a soak in the tub in a Epsom salt bath can both be helpful.
2009, age 37 with a 2yo: CC, IIIB (T4N1M0). IBD history
2010-11: FOLFOX, 12 rounds. 5 surgeries (3-step Ileal j-pouch, infection, VATS)
Currently NED.
Mom, you can go the hard way if you want, but the easy way is much easier. ~my 3yo

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Re: A sore bottom- diaper rash med recommendation?

Postby zephyr » Fri Jun 16, 2017 10:55 am

Been there. My gastroenterologist recommended Destin. A chemo nurse suggested A&D ointment. Both worked about the same for me. Keeping the area clean & dry is the key: wet wipes and a blow dryer after each seating.
Oct-2009 Stage I CC
Jun-2016 Stage 3 (T3 N1c)
Jun-2016 Surgery
Jul-2016 PET: Probable Stage 4 with inoperable lung mets
Aug-2016 Folfox
Jan-2017 Dropped oxaliplatin, continuing with 5FU, added Avastin
Aug-2017 Dropped Avastin, continuing with 5FU
Dec-2017 Chemo stopped working, lung mets growing but CEA stable, considering other treatment options
Jan-2018 Begin Folfiri & Ramucirumab; also receiving Vitamin C & Quercetin by IV every week

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Location: Omaha

Re: A sore bottom- diaper rash med recommendation?

Postby KElizabeth » Fri Jun 16, 2017 12:23 pm

Barrier cream wipes work well and are not greasy. You can find them on Amazon. I clean up first then apply the barrier wipe. Don't flush the wipes.
Female age 38- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 -current
CEA at recurrence:10.1/august, 2015
CEA: 1.9 February, 2016
CEA: 16.4 March 2017
CEA: 90.1 October 2017

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Joined: Thu Dec 01, 2016 10:56 am

Re: A sore bottom- diaper rash med recommendation?

Postby ashima2016 » Sat Jun 17, 2017 11:09 pm

well, no diaper cream works better than wash and let dry - experience from treating my son's diaper rash.

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Re: A sore bottom- diaper rash med recommendation?

Postby Lee » Sun Jun 18, 2017 12:50 am

I have a colostomy, so my situation is totally different, butt I used A&D Ointment for other reasons. Butt they are for diaper rash & skin protection. Maybe worth a try.

Hope it gets better,

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Facebook Username: aqx99
Location: Pfafftown, NC

Re: A sore bottom- diaper rash med recommendation?

Postby Aqx99 » Sun Jun 18, 2017 12:56 am

I used Aquaphor when my butt started catching on fire from going a ton of times a day.
Anne, 40
Stage IIIB Rectal Cancer
2/21/17 Diagnosis, Age 39
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Diagnosed w/ovarian cancer
9/6/17 CA 125 11.1 U/mL
11/27/17 CEA 2.6 ng/mL
12/5/17 CT showed NED
12/13/17 CEA 2.9 ng/mL
1/11/18 CA 125 8.6 U/mL
1/23/18 Reversal

Posts: 596
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: A sore bottom- diaper rash med recommendation?

Postby teachpdx » Tue Jun 20, 2017 6:22 pm

I second the use of a bidet. I'm 4 years post reversal and I made sure I had one installed on my toilet before my reversal - it's a godsend. Barriers can make it hard to get your bum clean - they smear. The bidet gets most of the mess off and I just then blot and dry after. It's the rubbing that's really hard on the rear. That's my suggestion.
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

Posts: 408
Joined: Sun Dec 28, 2014 10:38 am

Re: A sore bottom- diaper rash med recommendation?

Postby Jacques » Tue Jun 20, 2017 11:26 pm

DX(2012): RC
Stage IIc,T4b N0 M0 L0 PN1 H0 D0 P0 I1
MSI: not tested
Chimiothérapie adjuvante : capécitabine + oxaliplatine
CEA < 1.0,
5 years NED,
End of 6-month follow-ups: 7/2017
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