on and off bleeding for 5 years - no pain

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fol
Posts: 3
Joined: Thu Jun 15, 2017 12:34 pm

on and off bleeding for 5 years - no pain

Postby fol » Thu Jun 15, 2017 12:41 pm

Hi,

I am 36 yr old male and I had rectal bleeding for five years on and off.
In the last year or so, it been severe with frequent bleeding and increased blood volume.
I even had involuntary bleeding couple of times.

I hv family history of piles..and can feel a visible external pile in my bottom.
given it is painless and i hv been ignoring it, but involuntary bleeding made me to
go an see and specialist and he suggested colonoscopy even though he is certain it is 80 % piles.

anyone with similar symptom shed some light ?

when i go toilet, the bleeding is profuse..and dripping at times and the toiler bowl is
at times splattered with blood.

is it just piles ? or anything serious ?

jhocno197
Posts: 803
Joined: Mon May 11, 2015 9:33 pm

Re: on and off bleeding for 5 years - no pain

Postby jhocno197 » Thu Jun 15, 2017 7:00 pm

Definitely get the colonoscopy.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

benben
Posts: 178
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: on and off bleeding for 5 years - no pain

Postby benben » Thu Jun 15, 2017 7:26 pm

When in doubt, Scope it out!

Seriously any sign of blood needs to have a scope, and not just an anoscope, or sigmoidscope - scope the whole enchilada.
I first started having some mild bleeding around 29 years of age. All the docs just said its most likely some hemorrhoids, etc.. etc..
I had my first visit specifically about it to GI doc around 36 years of age. Even then he performed an anoscope, saw a couple inflamed hemorrhoids and very small fissure and said that's probably it. Too young for cancer etc.. etc..
He said he could do a full scope if I wanted, but thought it not necessary. A couple years later I had an endoscopy done by a different GI doc and she said she could do a colonoscopy at the same time, but didn't think it was necessary either given my age - even though I was still having periodic bleeding. Finally 6 years later I told my gen doc I wanted to have a scope because of blood. First ran me through fecal tests and they did show blood so they could write up a GI visit for scope - result stage IIIb cancer. Always get a scope when you see blood is my advice. No matter the age and no matter the doc recommendation.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8 - NO OXI, just Luke and 5FU here on out.
Current - 9 treatments done, LOW WBC/ANC/RBC

User avatar
LeonW
Posts: 305
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: on and off bleeding for 5 years - no pain

Postby LeonW » Fri Jun 16, 2017 4:18 am

benben wrote:When in doubt, Scope it out! . . . Always get a scope when you see blood is my advice. No matter the age and no matter the doc recommendation.

Definitely get a colonoscopy.
L
Dec 2012 - Dx CC; MM @ 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, mets shrink from #3
Sept - nuclear liver scan, 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, bad delirium, emboli, encephalopathy) all cancer gone, pCR
2014/15 - recovery; benign polyp Apr '15
Apr 2016 - new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, May2017, next Nov 2017

fol
Posts: 3
Joined: Thu Jun 15, 2017 12:34 pm

Re: on and off bleeding for 5 years - no pain

Postby fol » Fri Jun 16, 2017 5:40 am

thanks guys..any side effects of colonscopy ? is it painful ? doc said sedation..but that means injection right ?

and is that the ultimate test ? and would it definitely tell if I hv cancer or not ?

and can they not distinguish if the blood is for piles or colonoscopy by any other method ?

given I did not have cancer symptoms like weight loss etc, how likely this to be cancerous ?

also I been having some sticky and bloody stuff coming out ? would piles cause this ? also occasional sensation like something vibrating in my bottom..
I am freaking out....................

Utwo
Posts: 129
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: on and off bleeding for 5 years - no pain

Postby Utwo » Fri Jun 16, 2017 1:19 pm

fol wrote:thanks guys..any side effects of colonscopy ? is it painful ? doc said sedation..but that means injection right ?
It's moderately painful even without sedation.
In some countries colonoscopy without sedation is a norm.

The biggest risk is 0.1% to 0.5% chance of a colon perforation.
This is a reason colonoscopy is not done for the sake of entertainment.

fol wrote:and would it definitely tell if I hv cancer or not ?
No it would not.
Cancer can be missed in case of unskilled colonoscopist especially in case of inadequate "preparation".

fol wrote:something vibrating in my bottom..
You better ask your boyfriend about it. :)

fol wrote:I am freaking out....................
It's OK to freak out.
Many people do this.
You just need to understand that this is not the end of your life.

fol wrote:given I did not have cancer symptoms like weight loss etc, how likely this to be cancerous ?
All these "cancer symptoms like weight loss etc," are for late stage cancer.
You want to identify it earlier to have a better chance of survival.
58 yo male at diagnosis - T1bN0, 0/15 lymph nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy #1: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy #2: caecum sessile 3.5 cm polyp piecemeal removed
05/2016 CT scan, blood test ...
05/2016 laparoscopic right hemicolectomy with a few complications (bleeding, leak, infection)
06/2017 CT scan, colonoscopy OK; CEA = 1.6

jhocno197
Posts: 803
Joined: Mon May 11, 2015 9:33 pm

Re: on and off bleeding for 5 years - no pain

Postby jhocno197 » Fri Jun 16, 2017 3:37 pm

You will be out for the colonoscopy itself, so it won't be painful. Prep for it sucks, but you need to do this.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

benben
Posts: 178
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: on and off bleeding for 5 years - no pain

Postby benben » Fri Jun 16, 2017 4:26 pm

As stated, usual method includes sedation - so you won't feel anything during scope - unless you're in an area where they don't put you under.

Scope is best option to find out the cause of lower GI bleeding. Nothing else can really confirm the reason.

I had zero weight loss prior to my diagnosis. In fact I felt fantastic, better than mid 20's health wise.



fol wrote:t
also I been having some sticky and bloody stuff coming out ? would piles cause this ? also occasional sensation like something vibrating in my bottom..


This is what concerns me most. I had periodic bleeding in stool for years, but this was one of the main symptoms that got me to DEMAND a scope.
Increased bleeding and some mucous with blood - which I still am having about once a weak - post OP and mid Chemo - Go figure.

But relax, breathe, get the scope scheduled, make sure to do the full cleanse so everything can be seen easily, then get results. Then you can know either way what your next step is.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8 - NO OXI, just Luke and 5FU here on out.
Current - 9 treatments done, LOW WBC/ANC/RBC

Lydia666
Posts: 649
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: on and off bleeding for 5 years - no pain

Postby Lydia666 » Sat Jun 17, 2017 12:23 am

Get a colonoscopy! Yes, they can tell you precisely the source of the bleeding. The colonoscopy does not hurt given the sedation, and it's over in 15 min. It is really not too bad but the prep sucks, i admit. But you really don't have a choice at this stage. Get the colonoscopy to get an answer!
Oct 2012- thyroid cancer
June 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/chemo 5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda /positive CHEK2 mutation
May 2016- clear CT
July 2016- ileo reversal
August 2016- DCIS breast cancer
Oct 13,2016 - lumpectomy
Dec 2016 - clean scope
Feb 24,2017- prophylactic double mastectomy
April 2017- clean scope
May 2017 -clean CT scan
Sept 2017 - clean lung scan
Mom to 2 & 5 yrs daughters

AbbyDoo
Posts: 111
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: on and off bleeding for 5 years - no pain

Postby AbbyDoo » Sat Jun 17, 2017 3:26 am

You have put this off far to long,,bleeding from the pooper is not normal.
Get the scope and get to the bottom of this problem! Your hemoglobin is probably low from bleeding and I'm pretty sure you don't feel 100%
I was in the same boat as you a few years ago and kept putting it off and what a dumb and painful mistake that was.
My first colonoscopy I told the doctor I wanted to watch so I was awake but numbed up pretty good. I'm glad I did because I got to see my tumor. My second one I was totally out.
It's an easy procedure except for the preparation. One day of being uncomfortable is a small price to pay to feel good and have some piece of mind knowing what going on.
Geter Done
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

fol
Posts: 3
Joined: Thu Jun 15, 2017 12:34 pm

Re: on and off bleeding for 5 years - no pain

Postby fol » Mon Jun 19, 2017 4:54 am

thanks all for the answers once again.

since I saw the docs and the rectal examination, the bleeding has been non-stop..the doc said he is hv 80-90 % certain it is piles..but wanted scope anyway...
he may well wanted to do it, so that he can charge me more....lol..

i think it bleeds when I stress out..given bleeding can be for piles as well as cancerrous, is there a way to differentiate without scope ?


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