What do you drink during cold sensitivity?
What do you drink during cold sensitivity?
what is your favorite room temperature drink? I try to do water when I can, but for some reason it seems to taste funny in chemo weeks. Gatorade lemon lime has been my go to drink so far, just curious what everyone else does and maybe looking for some alternatives.
-
Soccermom2boys
- Posts: 222
- Joined: Tue Nov 10, 2015 10:29 pm
Re: What do you drink during cold sensitivity?
Hey Tdubz--
Nothing worse than drinking room temperature water, it is just not refreshing when it's not cold. I would have a cup of OJ, but I would let it sit out for a while until it wasn't so cold and then if it started to hurt a little when I swallowed because it was still on the cooler side, I would just take tiny sips at a time. One can only drink so much tasteless room temperature water. I would also use those Mio type flavor boosters you squirt in to water, just that the water had to be room temp. Another way to get some fluids in you is soup/broth. I realize it may be heading in to summer wherever you are and the thought of soup or warm broth is not what you were thinking, but when you want something with flavor and not cold, it does the trick! Good luck! I have been reading many of your posts and following your ups and downs with chemo, you are doing well and hanging in there with everything. It's a tough roller coaster of emotions and physical effects, but you're still staying on the rails, you got this!
Nothing worse than drinking room temperature water, it is just not refreshing when it's not cold. I would have a cup of OJ, but I would let it sit out for a while until it wasn't so cold and then if it started to hurt a little when I swallowed because it was still on the cooler side, I would just take tiny sips at a time. One can only drink so much tasteless room temperature water. I would also use those Mio type flavor boosters you squirt in to water, just that the water had to be room temp. Another way to get some fluids in you is soup/broth. I realize it may be heading in to summer wherever you are and the thought of soup or warm broth is not what you were thinking, but when you want something with flavor and not cold, it does the trick! Good luck! I have been reading many of your posts and following your ups and downs with chemo, you are doing well and hanging in there with everything. It's a tough roller coaster of emotions and physical effects, but you're still staying on the rails, you got this!
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox
Re: What do you drink during cold sensitivity?
Hot chocolate
Squeezable kool aid (the kid kind)
Teas that were boiled but cooled by sitting on shelf for a bit
Milkshakes I let get melty and not icy cold anymore
Crystal lite single serve packs in a bottle of room temp water, the lemonade flavor
Good luck!
Squeezable kool aid (the kid kind)
Teas that were boiled but cooled by sitting on shelf for a bit
Milkshakes I let get melty and not icy cold anymore
Crystal lite single serve packs in a bottle of room temp water, the lemonade flavor
Good luck!
Last edited by TXLiz on Thu Jun 08, 2017 4:07 pm, edited 1 time in total.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear
Re: What do you drink during cold sensitivity?
How about tea. Can drink it hot, cold or at room temperature.
Lee
Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
-
KElizabeth
- Posts: 400
- Joined: Sat Oct 31, 2015 12:41 pm
- Facebook Username: KElizabeth
- Location: Omaha
Re: What do you drink during cold sensitivity?
Room temp Snapple mango juice. Yummers.
I've microwaved coke or Dr pepper too and that was actually good.
I've microwaved coke or Dr pepper too and that was actually good.
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current
Re: What do you drink during cold sensitivity?
I mostly sought something that would cut through the slimy lining of throat and mouth: things like room temperature water, tonic water, or coca cola. Freshly squeezed orange juice was also nice. Besides these, I tried anything likeable that I could think of, if only for a single sip.
Leon
Leon
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!
Re: What do you drink during cold sensitivity?
LeonW wrote:I mostly sought something that would cut through the slimy lining of throat and mouth: things like room temperature water, tonic water, or coca cola. Freshly squeezed orange juice was also nice. Besides these, I tried anything likeable that I could think of, if only for a single sip.
Leon
So the slimy lining isn't just me lol.
-
Steph20021
- Posts: 553
- Joined: Sat Dec 27, 2014 4:58 pm
- Location: Ontario, Canada
Re: What do you drink during cold sensitivity?
TXLiz wrote:Squeezable kool aid (the kid kind)
Yesssss, I LOVEEEE koolaid Jammers!!!! In those little pouches! The blue raspberry and the Strawberry-Kiwi are the two best!
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
Re: What do you drink during cold sensitivity?
Microwaved water. I know how to party.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?
Re: What do you drink during cold sensitivity?
horizon wrote:Microwaved water. I know how to party.
LOL
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear
Re: What do you drink during cold sensitivity?
I drink Lukozade as my back up but not too much. Tea, room temperature fruit juices and water at room temperature. Yes it's horrid but I push it in!
Hope you find something acceptable!
Xx
Hope you find something acceptable!
Xx
May 2004 Breast cancer lumpectomy followed by radiotherapy, Tamoxifen 5 years, then Femara 2 years.
Jan 2017 resection around colo-rectal junction
T2bN1 M0
March 2017 Chemo Folfox started. Oxaliplatin for 4 treatments, then just 5 FU and Leucovorin for remaining 8 treatments.
June 2017 clear scan
Last chemo August 2017
August 2017 clear scan
February 2018 clear scan
Jan 2017 resection around colo-rectal junction
T2bN1 M0
March 2017 Chemo Folfox started. Oxaliplatin for 4 treatments, then just 5 FU and Leucovorin for remaining 8 treatments.
June 2017 clear scan
Last chemo August 2017
August 2017 clear scan
February 2018 clear scan
Re: What do you drink during cold sensitivity?
horizon wrote:Microwaved water. I know how to party.
Lol!
Re: What do you drink during cold sensitivity?
I used to take a glass of milk and a glass of oj and place them on my end table before my nap and drink them when they were warm
iced tea during chemo only
v8 and vitamin water is also very good warm along with dark chocolate ensure
was never able to drink coffee or soda during chemo
iced tea during chemo only
v8 and vitamin water is also very good warm along with dark chocolate ensure
was never able to drink coffee or soda during chemo
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09
Re: What do you drink during cold sensitivity?
Room temp Guinness...everything else tastes like shit.
Honestly, water tasted like shit. I would advise trying different kinds of bottled water, try Figi, Dasani, Aquafina, etc. They all have a slightly different taste and one may be more tolerable than the others.=m but damn water was so hard to drink.
Honestly, water tasted like shit. I would advise trying different kinds of bottled water, try Figi, Dasani, Aquafina, etc. They all have a slightly different taste and one may be more tolerable than the others.=m but damn water was so hard to drink.
Kelly, mom 14 yo girl
Dx 11/15/12 Rectal Cancer @ age 40
Stage IIIC
5.5 weeks Xeloda & Radiation - complete 2/5/13
Colectomy 3/12/13, 7 of 14 nodes positive - no ileo
4/24/13-8/20/13 - 5 rounds Xelox, 1 Xeloda only
Dx 11/15/12 Rectal Cancer @ age 40
Stage IIIC
5.5 weeks Xeloda & Radiation - complete 2/5/13
Colectomy 3/12/13, 7 of 14 nodes positive - no ileo
4/24/13-8/20/13 - 5 rounds Xelox, 1 Xeloda only
Re: What do you drink during cold sensitivity?
I kept a pitcher of water with a fruit holder thing in the middle in the fridge, and a glass of the water on the counter to warm up a bit. The little bit of fruit flavor made a big difference for me. The pitcher was something like this: https://www.amazon.com/dp/B0023UL86A/re ... 6348000801
Dan - Male - Age 41
3/5/2012 - Colonoscopy - dx: sigmoid colon cancer
3/29/2012 - Colon Resection - growth through wall, 1 of 23 nodes, 4 tumor deposits - dx: Stage 3b
5/7/2012 - Begin Folfox
10/10/12 Finish Folfox
10/22/12 CT scan = NED
4/17/17 Lung nodule discovered to be colorecretal cancer met
5/12/17 Met removed
3/5/2012 - Colonoscopy - dx: sigmoid colon cancer
3/29/2012 - Colon Resection - growth through wall, 1 of 23 nodes, 4 tumor deposits - dx: Stage 3b
5/7/2012 - Begin Folfox
10/10/12 Finish Folfox
10/22/12 CT scan = NED
4/17/17 Lung nodule discovered to be colorecretal cancer met
5/12/17 Met removed
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Who is online
Users browsing this forum: No registered users and 176 guests