Doctor Bedside Manner Training

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
Phuong
Posts: 1508
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Doctor Bedside Manner Training

Postby Phuong » Mon May 15, 2017 9:39 pm

Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

Stewsbetty
Posts: 170
Joined: Thu Jul 14, 2016 7:08 am

Re: Doctor Bedside Manner Training

Postby Stewsbetty » Tue May 16, 2017 8:37 am

Interesting article. I have come across a wide variety of abilities to communicate and levels of empathy from the medical professionals I have been involved with. Not sure how much help these classes would give to those that have a more naturally abrasive personality. But I would enjoy putting some on a list for them. :)
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!

User avatar
Phuong
Posts: 1508
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: Doctor Bedside Manner Training

Postby Phuong » Tue May 16, 2017 5:43 pm

I think the idea is to expose them to potential situations prior to actually being in front of a patient and having to deliver bad news. Guidance is given on what's appropriate and what isn't with hopes that they will learn and improve their bedside manner. Can you imagine if they asked us patients? :shock:
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

User avatar
CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Doctor Bedside Manner Training

Postby CRguy » Tue May 16, 2017 8:47 pm

Phuong wrote:Can you imagine if they asked us patients? :shock:
"You're FIRED !!! " ???? :twisted:

Think they'd want ME as a test patient actor ...... Hmmmmmm do ya' ? :shock:
:mrgreen: :mrgreen: :mrgreen:

actually I think a good idea for training purposes ... BUTT
I still want the best surgeon doing my surgery, even if he/she is a jerk !!!

JMO

Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

crazylife
Posts: 256
Joined: Wed Dec 30, 2015 11:29 am

Re: Doctor Bedside Manner Training

Postby crazylife » Tue May 16, 2017 9:50 pm

DH's oncologist is awful! Only reason we stay is because it's MSK. She will literally just get up and leave the room abruptly and we sit there waiting to see if she is coming back. After about 8 minutes we figure she isn't coming back. Definitely gives us a good laugh uring stressful meetings with her though - HA!
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

Kathy
Posts: 114
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Re: Doctor Bedside Manner Training

Postby Kathy » Wed May 17, 2017 5:48 pm

Dear Crazylife,

I think I know who your doctor is. I am 8 1/2 years NED thanks to the surgeon and the oncologist's knowledge. I was told she did not have a good bedside manner, but I would rather have her, than one with a terrific bedside manner and bad results. My goal, from day 1, was to try to make her human. It was like a game. It takes a while to understand her but if you want someone to fight for you, she is it. My husband finally realized, a one minute visit is a good visit. Things are going according to plan. Her staff is a well oiled machine. If you need to talk, Trish is the one. The doctor goes over every scan and bloodwork herself and she has amended several CT scans because the radiologist missed something..

My husband was diagnosed with pancreatic cancer last November and I called her to see which doctor she recommended. She called me back herself within 5 minutes and told me who to go to. and she told me if I couldn't get in his next available day, she would get us in. The Pancreatic oncologist has a wonderful bedside manner and is excellent but we have to double check everything that is left to her staff. Many things fall through the cracks.

While my husband was in the local hospital with an infection, I suffered a heart attack.

I do cancer patient support and one of my patients called me while I was in the hospital. She was nervous about her CT scan. She told the doctor the next day when she went for treatment and the doctor CALLED me immediately. She really does care.

PM me if you would like to vent. I understand your frustration, but you are in the best hands.

Kathy
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Doctor Bedside Manner Training

Postby juliej » Wed May 17, 2017 7:24 pm

I would be happy to give some tips to the actors who portray the patients! :D

crazylife wrote:DH's oncologist is awful! Only reason we stay is because it's MSK. She will literally just get up and leave the room abruptly and we sit there waiting to see if she is coming back. After about 8 minutes we figure she isn't coming back. Definitely gives us a good laugh uring stressful meetings with her though - HA!

Crazylife, I've been going to the same oncologist at MSK for over 5 years now. In many ways she is a researcher first and a doctor second. That means she leaves no stone unturned when dealing with your unique case and you get the very best of care - technically speaking - that you possibly can. But she doesn't have a warm-and-fuzzy personality, although she cares deeply about all of her patients.

She has warmed up over the time I've known her and I often make her smile now. Like Kathy, I would rather have her brilliant mind on my case than someone with a good bedside manner. In every crisis I had during my treatment and surgeries, she was there for me in the way I needed the most, getting me emergency appointments with specialists the same day I saw her, bumping me up to the head of the line for a CT scan, calling me at home personally to discuss an issue, whatever it took. She is highly respected at MSK which is why she can pull so many strings when she wants something done. I literally owe my life to her.

You're not the first patient who's waited in the exam room not knowing whether she was done with them or not though! :D
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

crazylife
Posts: 256
Joined: Wed Dec 30, 2015 11:29 am

Re: Doctor Bedside Manner Training

Postby crazylife » Wed May 17, 2017 7:34 pm

Hi all,

It's not Dr. K! It's Dr. Won who was assigned to us by Dr. DeMatteo after surgery. He felt like with one respectable liver met we probably didn't need Kemeny. He's been right since it's now showing in his lungs.

Maybe Dr. K trained Dr. Won on bedside manner - ha ha!!
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Doctor Bedside Manner Training

Postby juliej » Fri May 19, 2017 5:06 pm

crazylife wrote:Hi all,

It's not Dr. K! It's Dr. Won who was assigned to us by Dr. DeMatteo after surgery. He felt like with one respectable liver met we probably didn't need Kemeny. He's been right since it's now showing in his lungs.

Maybe Dr. K trained Dr. Won on bedside manner - ha ha!!

Ha! A case of "profiling" if ever there was one! :D :D :D

I saw Dr. K with both liver mets and lung mets. She had a handful dealing with me! But I am NED now so keep the faith. Dr. Huang at MSK was my thoracic surgeon. I highly recommend him.
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Doctor Bedside Manner Training

Postby stu » Fri May 19, 2017 5:36 pm

My mum's current oncologist has it all going on , compassion with good decisions. With her last lung met I mentioned I was disappointed as she nearly got out the door. She pulled a wee face. I said but to you it's still a success. She said " yes" . Then I sat and thought about all she must see yet she has the human touch .
One or two others have made me sincerely wonder if they had a spectrum disorder and communication was genuinely difficult for them . I decided this was a good thing in that there was precise decisions going on but kind of needed to work in tandem with another member of staff to smooth over the rough edges.
But they might just have had a bad attitude and the science angle is more their thing. L x
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 115 guests