Went to see the surgeon today

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BeansMama
Posts: 929
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Went to see the surgeon today

Postby BeansMama » Tue May 16, 2017 11:55 am

She wants 2 more treatments and another scan. I go back on the June 27th.

She said Larry is getting smaller which is amazing, they are waiting for maximum response before they go in. If Larry gets small enough I may not have to have the Super duper surgery they are planning on, I may be able to have a standard resection. Which of course has a lot less risk involved.

Fingers crossed the Keytruda keeps shrinking Larry. I can't wait for the day he is evicted!!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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CRguy
Posts: 9122
Joined: Sun Feb 10, 2008 6:00 pm

Re: Went to see the surgeon today

Postby CRguy » Tue May 16, 2017 12:02 pm

Larry ?
"Yes CRguy."

Get the hell outta' Dodge sucker...
One of our friends is tired of your ugly mug !

Be Gone ...... :twisted:


Keep on with those good results BeansMama !!!!

Cheers
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing NONrandomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 2626
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Went to see the surgeon today

Postby DarknessEmbraced » Tue May 16, 2017 12:53 pm

That's wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/2016
NED 11/10/16

fumaros
Posts: 193
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Went to see the surgeon today

Postby fumaros » Wed May 17, 2017 8:01 am

More good news. i can't get enough of it. All the best.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 7/17 - NED

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LPL
Posts: 270
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Went to see the surgeon today

Postby LPL » Wed May 17, 2017 8:31 am

Thank You for update BeansMama.
It sounds wonderful if you can have a standard surgery :) My fingers are crossed that the Keytruda keeps shrinking Larry !!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

LMighty
Posts: 90
Joined: Sun Aug 28, 2016 6:16 am
Location: Hong Kong

Re: Went to see the surgeon today

Postby LMighty » Wed May 17, 2017 2:11 pm

Good luck to you BeansMama!
Supporter to my mom (64 yr); KRAS wild type; MSS

2012: DX Stage I, rectal cancer; resection and colostomy, no chemo
5/16: DX Stage III, mets found; right groin lymph node and soft tissue nodules
5-6/16: Radiation + Xeloda
7/16: DX Stage IV, pleural effusion; cancer cells found in fluid
7-12/16: Xelox + Avastin X 6
1/17: Clean PET scan, NED
2/17: Pleural effusion; recurrence
4/17: Iri + Erb X 3
5/17: Ascites; Chemo failed
6/17: Keytruda X 1
7/17: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib)

Soccermom2boys
Posts: 140
Joined: Tue Nov 10, 2015 10:29 pm

Re: Went to see the surgeon today

Postby Soccermom2boys » Wed May 17, 2017 4:59 pm

Love, love, love these posts of the amazing, shrinking, Larry! Keep em' coming! :D
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox
With these odds, how have I not won the lottery already?!

inorganic8
Posts: 38
Joined: Mon Feb 27, 2017 6:13 pm

Re: Went to see the surgeon today

Postby inorganic8 » Wed May 17, 2017 5:33 pm

Fingers crossed, toes crossed, nose hairs crossed... sorry, that was gross. I'm saying prayers and anything else that I think might work.

-Kim
Wife to wonderful man with CRC
Stage IV Diagnosis 1/27/17, Mets to Liver, Omentum, Peri
KRAS Mutation, G12, MSS
Folfirinox 2/8/17, completed 9 rounds
Follow-Up PET 4/13/17 - Very encouraging. Definite shrinkage and 2/3 liver mets resolved.
Follow-Up PET 6/13/17 - Very encouraging. Even more shrinkage.
Folfiri 6/14/17

Joannerogers
Posts: 236
Joined: Tue Jun 16, 2015 4:50 pm

Re: Went to see the surgeon today

Postby Joannerogers » Wed May 17, 2017 7:48 pm

Great news!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

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Maia
Posts: 2393
Joined: Fri Aug 24, 2012 8:00 am

Re: Went to see the surgeon today

Postby Maia » Wed May 17, 2017 7:52 pm

So happy, Annie!!
Keep going, keep going, until a 'regular' resection!!

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Hannah Faulkner
Posts: 29
Joined: Tue Feb 14, 2017 3:14 am

Re: Went to see the surgeon today

Postby Hannah Faulkner » Thu May 18, 2017 2:47 am

This is music to the ears, wish you all the best may the Larry! shrink

plastikos
Posts: 251
Joined: Wed Jan 14, 2015 6:09 am

Re: Went to see the surgeon today

Postby plastikos » Thu May 18, 2017 11:27 am

Awesome news. Wishing you, and everyone here, all the best.
Diagnosed St. IV Colon CA @ 37, male, Kras wild type, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab 12/2016 -> pseudoprogression (?), biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab

MDK
Posts: 44
Joined: Sun Nov 29, 2015 1:43 pm

Re: Went to see the surgeon today

Postby MDK » Thu May 18, 2017 11:37 am

So happy Beans!! Miracles happen every day honey - we must not forget this!!

When Larry leaves I believe we should have a huge party!!!!!! With cake, ice cream, balloons and champagne!

Marianne
Diagnosed 11/9/2015
Stage III Rectal Cancer
Began Chemoradiation 01/04/2016
Xeloda 3500 MG on Radiation Days
Completed Chemoradiation 2/17/16
24 of 25 regular, 3 boost treatments
Local Excision
Developed Rectovaginal Fistula
06/24/16 APR / Flap Repair Fistula
Permanent Colostomy
09/20/2016 Liver Mets, possible Lung Mets
Stage IV
Will begin chemo again soon ...

Philippians 4:6-7

Lee
Posts: 4974
Joined: Sun Apr 16, 2006 4:09 pm

Re: Went to see the surgeon today

Postby Lee » Thu May 18, 2017 12:07 pm

BeansMama wrote:Fingers crossed the Keytruda keeps shrinking Larry. I can't wait for the day he is evicted!!


Yes, so glad the Keytruda is shrinking Larry. I too look forward to the day when Larry is evicted.

All the best, (((BeansMama)))

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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WriterGirl1969
Posts: 418
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Went to see the surgeon today

Postby WriterGirl1969 » Fri May 19, 2017 10:30 pm

BeansMama wrote:Larry is getting smaller which is amazing, they are waiting for maximum response before they go in. If Larry gets small enough I may not have to have the Super duper surgery they are planning on, I may be able to have a standard resection. Which of course has a lot less risk involved.


This is HANDS DOWN the most AWESOME news. :D
First, you deserve it. It's about time they found something that is working!
Second, you deserve it. You've been dragged through the chemo ringer.
Third, YOU DESERVE IT!!! :D
Onward to that standard resection, or even Larry dying and disappearing altogether. GO, Larry, GO!!! :mrgreen:

Hugs from me.
--Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear
NED at 1 year
“If I can help somebody as I walk along, then my living shall not be in vain.”


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