Beautiful Update ... Cured

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CRguy
Posts: 10283
Joined: Sun Feb 10, 2008 6:00 pm

Re: Beautiful Update ... Cured

Postby CRguy » Tue May 09, 2017 12:13 pm

I did

will send again !

ivana
Posts: 7
Joined: Sat May 06, 2017 5:56 pm

Re: Beautiful Update ... Cured

Postby ivana » Tue May 09, 2017 4:10 pm

Congrats, such a blessing!
I saw your sig line on Aspirin usage. There is a study that suggest taking on baby aspirin 81mg a day reduces the chance of polyps by 40%. I started taking it a while ago despite it having the potential of bleeding in people with ulcers. Hope this helps someone
34 year old female
Crohns/colitis/uveitis diagnosis in 2014
Symptoms worsened over time
2017 colonoscopy revealed precancerous 1.2 cm large polyp

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Beautiful Update ... Cured

Postby mpbser » Tue May 09, 2017 5:08 pm

Congratulations!

Your wife had exceptional care under a doctor who also has a PhD in TCM. She was very fortunate!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

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very worried husband
Posts: 130
Joined: Mon Mar 28, 2011 1:20 am

Re: Beautiful Update ... Cured

Postby very worried husband » Wed May 10, 2017 7:36 am

Sorry CRguy! the email attached to the colon club is an old email and I don't check that one. anyway got your email now and sent the photos.
Yes Mbpser, we were very fortunate to had him in the beginning. He did not give us any appointment after 2013-2014 I think. :roll: :roll: Things work differently in some parts of the world, where you have to give gifts to drs, which we did, but sometime expectations are v high. ( long story!!).
Yes Ivana, she used baby Asprin for few years and then stopped before pregnancy was confirmed.
Caregiver to Wife age25
Diagnosed Colon IIIB Jan2011
7/29 Nodes +
5FU+Oxi in china. Feb-Aug 2011
CEA@Diagnose:0.79
Immunological chemistry: Ki-67 (+), MSH2(+), MLH1(++), ERCC1 (-)
NED Supplements: Aspirin,Vit D,Calcium, Genoderma Lucidium
Baby born June 2015 :D :D :)

Bostonzj
Posts: 38
Joined: Sun Dec 28, 2014 10:38 am
Facebook Username: Lili

Re: Beautiful Update ... Cured

Postby Bostonzj » Wed May 10, 2017 12:30 pm

Congratulations! Happy for you and your family!
So, quick question: during your wif's pregnency, was her CEA elevated/changed? Because I am thinking to have another baby as well, but so worried about the CEA will be shooting up:( so I have to be prepared for that:)
female, Dx @ 34 yo,mom to 3 yo daughter
stage 1 colon cancer
surgery on 07/30/2014
CEA <0.5 (after surger), no cea checked pre-op
no chemo needed
pray to god every day!
CT scan :08/2014 clean, 12/2014 clean,11/2015 clean, 11/2016 clean
NED forever!!!!

User avatar
CRguy
Posts: 10283
Joined: Sun Feb 10, 2008 6:00 pm

Re: Beautiful Update ... PICTURES !

Postby CRguy » Wed May 10, 2017 12:32 pm

As promised ... HERE are the pictures from very worried husband ... very cute
I'll leave it to you to add narration !
Cheers

Image
Image
Image

Bostonzj
Posts: 38
Joined: Sun Dec 28, 2014 10:38 am
Facebook Username: Lili

Re: Beautiful Update ... Cured

Postby Bostonzj » Wed May 10, 2017 3:30 pm

She is soooo adorable!! And beautiful!!
female, Dx @ 34 yo,mom to 3 yo daughter
stage 1 colon cancer
surgery on 07/30/2014
CEA <0.5 (after surger), no cea checked pre-op
no chemo needed
pray to god every day!
CT scan :08/2014 clean, 12/2014 clean,11/2015 clean, 11/2016 clean
NED forever!!!!

stu
Posts: 1459
Joined: Sat Aug 17, 2013 5:46 pm

Re: Beautiful Update ... Cured

Postby stu » Wed May 10, 2017 3:34 pm

Just beautiful. How wonderful. Thank you so much for sharing . I knew our friend could sort this. He is so good to this forum .
Take care
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Beautiful Update ... Cured

Postby peanut_8 » Wed May 10, 2017 4:28 pm

Thanks to both CRGuy and Very Worried Husband!

What a beautiful little girl. Hardly a monster at all...:shock: :shock: :mrgreen: :mrgreen:

Just kidding.

Best of luck to your wonderful family.

peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Lee
Posts: 6202
Joined: Sun Apr 16, 2006 4:09 pm

Re: Beautiful Update ... Cured

Postby Lee » Wed May 10, 2017 6:00 pm

She is adorable, thank you for sharing.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
very worried husband
Posts: 130
Joined: Mon Mar 28, 2011 1:20 am

Re: Beautiful Update ... Cured

Postby very worried husband » Thu May 11, 2017 7:02 am

Thank you so much everyone. believe me she looks innocent in pictures only, in reality she is different :mrgreen:
@ bostonzj, it sounds crazy, but my wife did not check CEA during her pregnancy. :evil: :evil:
Caregiver to Wife age25
Diagnosed Colon IIIB Jan2011
7/29 Nodes +
5FU+Oxi in china. Feb-Aug 2011
CEA@Diagnose:0.79
Immunological chemistry: Ki-67 (+), MSH2(+), MLH1(++), ERCC1 (-)
NED Supplements: Aspirin,Vit D,Calcium, Genoderma Lucidium
Baby born June 2015 :D :D :)

Wonderfullymade
Posts: 140
Joined: Tue Jan 12, 2016 4:33 pm

Re: Beautiful Update ... Cured

Postby Wonderfullymade » Fri May 12, 2017 7:59 am

This was exactly the message I needed to read today! For some reason I have really been discouraged and down, even though my last scan was stable...I just haven't wanted to post or even think about this blasted illness!
Reading that your wife endured for 6 + months gives me a boost to never stop fighting!
Thank you!
Wonderfullymade
DX 3/2015 53
Stage IVa CC w/liver met
BRAF/KRAS wild type MSI-High (MLH1, PMS2) not Lynch
Folfox 3 cycles
5/2015 ER for subtotal colectomomy due to perforated colon, ovary removed
Folfuri/Pantiumumab 5 cycles
8/2015 liver resection, gallbladder removed and new LN
10/2015 CT scan new nodes
10/2015 Pembro started CEA 2.2
5/2017 stable lung things, coltis, lymph nodes stable cea 1/2017 1.1
9/2017 NED CEA 1.1 ( stopped Pembro)
2/2019 ER for DVT/ PE
2/2019 clean CT (NED) CEA 1.1


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