BCIR Procedure

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Phuong
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BCIR Procedure

Postby Phuong » Sun Apr 30, 2017 6:11 pm

Has anyone ever heard of this? A friend of mine has recently been dx'd with rectal cancer and is looking at a colostomy, but the BCIR was mentioned as well. Apparently the procedure started in 1985 but there aren't any doctors in the SF Bay Area that are skilled in it, so it leads me to wonder if it is so specialized that more doctors aren't skilled in it or if there is another reason why it isn't as well known a procedure.
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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CRguy
Posts: 10209
Joined: Sun Feb 10, 2008 6:00 pm

Re: BCIR Procedure

Postby CRguy » Sun Apr 30, 2017 8:29 pm

Hey buddy !
don't believe we've had a member here with BCIR ... ????
BUTT there is a good google search which brings up a bunch of stuff
https://encrypted.google.com/#q=BCIR including a uoaa.org discussion forum !

it is basically an internal "pouch" option with continency as the goal
( J-pouch K-pouch etc. ) as opposed to an open stoma procedure

No personal info or first hand experience.

Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Phuong
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Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: BCIR Procedure

Postby Phuong » Mon May 08, 2017 8:20 pm

Sorry I'm slow on the draw here. Thanks bud!
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

benben
Posts: 323
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: BCIR Procedure

Postby benben » Mon May 08, 2017 8:53 pm

Phuong wrote:Sorry I'm slow on the draw here. Thanks bud!


Hi Phuong, Off Topic - I know, but I just wanted to say I saw you on the Colondar and read your story.
You've been through so much and you have the scars to prove it, but your story is quite inspirational.
Your story is beautiful and so are you Phuong - scars and all. God bless you and yours. May you continue to reside in good health.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
7/20 CT - NED (3 years!)

MissMolly
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Joined: Wed Jun 03, 2015 4:33 pm
Location: Portland, Ore

Re: BCIR Procedure

Postby MissMolly » Mon May 08, 2017 9:10 pm

The BCIR procedure is performed by only a handful of surgeons at only a handful of hospitals (mainly located in Florida and Texas). It involves making an internal reservoir for feces that is accessed to empty/drain by a catheter that is inserted through the belly button). It is an ostomy, of sorts, without an external bag.

I would caution anyone who lives out-of-area from the participating BCIR hospitals and surgeons to proceed with a BCIR. Only someone who lives in proximity to the providing hospitals and surgeons should consider a BCIR. If you have a problem with the internal pouch or the catheter few physicians are going to know how to manage it. The pouch is susceptible to frequent pouchitis (an e-coli bacteria) and the indwelling catheter tract is susceptible to chronic inflammation and fibrotic narrowing.

Bottom Line: Make sure that you fully investigate the BCIR procedure, a full and open due diligence. There is a lot of marketing hype that glorifies the procedure as a carefree option to an ostomy. The fact is, unless you intend to remain in the geographic area where the surgeon and hospital perform the BCI'R, you will be in a quandary to find and access follow-up care. The average surgeon has no idea what a BCIR is.

The BCIR is for a select few individuals.
- K -
Dear friend to Bella Piazza, former Colon Club member (NWGirl).
I have a permanent ileostomy and offer advice on living with an ostomy - in loving remembrance of Bella
I am on Palliative Care for broad endocrine failure + Addison's disease + osteonecrosis of both hips/jaw + immunosuppression. I live a simple life due to frail health.

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Phuong
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Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: BCIR Procedure

Postby Phuong » Mon May 15, 2017 9:41 pm

Thank you for the kind words benben.

MissMolly, I suspected as much but THANK YOU! That was exactly what I was looking for.
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC


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