Hi friends!
I'm looking for some advice on Folfox. I've searched many threads, but none are really answering my questions.. I'm hoping you can help. I'm just "coming back" from round 3. By coming back I mean, feeling somewhat normal, not extremely exhausted, emotional, nauseous, mood swingy, just all together foggy. It has taken 5-6 days after each treatment for the symptoms and most of the cold sensitivity to wear off. We switched meds up after the first treatment as I was extremely nauseous for the most part. Right now I'm taking Emend 3 day, Dexamethasone (day of), and zofran, or olanzapine when needed. My last treatment was so incredibly awful, I don't think I can handle it again, I've never been so sick in my life. It all hit with about 10 minutes left of infusion, nausea and vomiting began and lasted far too long. Is this my new norm? Did you poor people deal with this week after week? I haven't spoke with my oncologist yet about what changes we'll make next time, but damn sure something has to give. My liver counts were off, not enough to lower the dose but something that needed to be watched she said.
I'm a lucky one, and so thankful that I am technically "cancer free", I did chose to go ahead with APR surgery after being told my doctors were confident I had complete clinical response. Pathology showed nothing, the cancer was gone. I'm supposed to have 8 rounds of Folfox, but at this rate I can't even think of another. What happens going forward? If the oxali is lowered will I cope better, if so, lowered by how much? I'm really trying to give it my all, fight any last bit of this awful disease that could be left. Has anyone been in a similar position?
Thanks for listening to me complain, I would love some advice.