Wow! Thank you all for the great advice and the hope your stories provide. I was also recently diagnosed with stave iv prostate cancer and our 6yo son has thankfully been NED for 3 years after Neuroblastoma treatment. Unfortunately I'm getting used to advocating for treatments :/
They agreed to discharge my wife on a liquid diet and pain meds. She is still symptomatic (difficulty passing stool, pain and cramping), so we need to hurry to get our second opinions. I spent the last two days on the phone with insurance and doctors and we will see a liver surgeon (Dr Alan Hemming) and colorectal surgeon (Dr Sonia Ramamoorthy) at Moores Cancer Center at UCSD for second opinions this Thursday. Unfortunately, we have a very restrictive HMO (which I hope to change Jan 1) so not sure if the treatments will be covered at UCSD.
I have two follow up questions if anyone has any advice:
1. Does anyone have a recommendation for an oncologist in Southern California? (Preferably with experience treating colon cancer with liver mets)
2. Does anyone have a recommendation for a second opinion on the pathology? (The pathology report took a week and a half and there was some talk that it may be primary ovarian cancer that has spread. They discussed her case in a departmental conference and came to the consensus of Colon Cancer. But the question of ovarian cancer worries me especially since she has had ovarian cysts in the past).
I hope its okay I post questions on this board as they come along. This seems like the best source of information I've found. I really appreciate all of you willing to help out strangers in need, and wish you all the best